Graves, now 'hypo' after RAI, but always feel hot

[TaraJR]

I find it hard to manage over 23 degrees. Last summer was really difficult, and last week I had to hibernate with a fan.

I was diagnosed with Graves, and had RAI in 1989. I have been 'hypo' ever since, and I thought that would mean I'd feel the cold but I don't.

My TPOAb are slightly high eg 56 (0-34) But my TGAb are within range eg 88 (0-115)

I hadn't thought of myself as still having Graves, but I guess I do? It really confuses me!

SlowDragon SeasideSusie greygoose do you have any thoughts please?

[greygoose]

TPO antibodies are for Hashi's. Did you ever have your Grave's antibodies tested: TRAB or TSI?

Lots of hypos feel hot rather than cold. I always used to. Now, my temperature is more stable, but I still can't tolerate the heat - last Thursday it was 42° C here, and I thought I was going to explode! But, I'm usually ok these days.

So, perhaps you're under-medicated, it wouldn't be surprising. Most doctors keep their patients under-medicated because they're so terrified of over-medicating. Do you have a copy of your latest labs? If so, post them on here and let's have a look.

[bantam12]

I think maybe our temp control is altered and stuck on high after Graves as I can't manage the heat either 😕

[pennyannie]

Hello Tara

Graves is an autoimmune disease and as such, it's for life, it's in your blood and DNA.

Your immune system attacked your thyroid probably giving you some very uncomfortable symptoms, so much so, that you had to visit a doctor and get professional, medical help. The thyroid is a major gland responsible for full body synchronisation and your internal central heating system, along with controlling your mental, physical, emotional, psychological and spiritual well being, and when it's " out of whack, or under attack " it can be said to be life threatening.

True, after treatment many disabling symptoms experienced will have gone or diminished, whilst other characteristics or maybe new symptoms might be noticed.

You might like to take a look at the Elaine Moore website. This lady has the disease and went through RAI in the late 1990's. She found no help or understanding with her journey, with this disease, so wrote a book to help others in the same predicament. She has now a much respected, well researched website and is a leading force driving forward research and understanding into this poorly understood and treated disease.

[SlowDragon Administrator]

Mildly raised TPO antibodies could still be due to Graves, not necessarily Hashimoto's

As you had RAI, not thyroidectomy you still have "dead" thyroid and in effect still have Graves. As I understand it.....Like Hashimoto's, Graves is there for life

Poor temperature control is common...more usually too cold. But quite a few find they feel permanently too hot

Are you on strictly gluten free diet?

Vitamins optimal ?

What dose Levothyroxine/T3/NDT are you currently taking?