For a friend : Hi Guys , could someone have a... - Thyroid UK

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For a friend

Anniebokder profile image
22 Replies

Hi Guys , could someone have a look at these Medichecks , my friend has multiple health problems , feeling very tired now as well .Being treated for over active

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Anniebokder profile image
Anniebokder
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22 Replies
greygoose profile image
greygoose

Well those labs are over-active. What is s/he being treated with?

His antibodies are positive for Hashimoto's Thyroiditis - know by UK medics as Autoimmune Thyroiditis. That starts with a hyper phase, and then goes on to be hypo. As he has Hashi's, s/he should not be treated with anti-thyroid drugs. The hyper levels will do down by themselves, and then the last thing s/he will need is drugs that reduce thyroid hormone production. S/he will need thyroid hormone replacement - usually levo.

Anti-thyroid treatment is for Grave's, so unless s/he has also been tested for Grave's antibodies, he shouldn't be taking it. And, the biggest problem is that once doctors get you on those, they are very reluctant to take you off it. They just do not understand the difference between Grave's and Hashi's, I'm afraid.

Anniebokder profile image
Anniebokder in reply to greygoose

Makes sense as she was given drugs for hyper , thank you

greygoose profile image
greygoose in reply to Anniebokder

Yes, doctors often make that mistake. More proof - if proof were needed - that they don't really know what they're doing. I would advise her to have strong words with whoever put her on anti-thyroid drugs, and insist he tests her Grave's antibodies: TRAB or TSI. And if they are negative that he weans her off the drugs and puts her on levo when her TSH goes up, which it doubtless will.

greygoose profile image
greygoose in reply to Anniebokder

OMG! I'm so sorry! I've just realised my mistake. The first line of that first response should read 'those labs are not over-active'. I missed out the 'not'. Were they from her diagnosis, or after she'd been on anti-thyroid drugs for a while?

Anniebokder profile image
Anniebokder in reply to greygoose

Will check

Anniebokder profile image
Anniebokder in reply to greygoose

She is on 450 of levo ..

greygoose profile image
greygoose in reply to Anniebokder

Wow! That's a high dose. And she's on anti-thyroid drugs at the same time? I don't understand.

Anniebokder profile image
Anniebokder in reply to greygoose

She is only on levo now , but i think she was on anti ones , her case is complicated had awful damage done by mesh . She doesn't really understand what is going on , is seeing an Endo

greygoose profile image
greygoose in reply to Anniebokder

What's going on is that she has Hashi's and an absorption problem. To only have an FT4 of 14.5 on 450 mcg of levo means that it isn't entering her system at all. Can you ask her how exactly she takes her levo? Does she take it on an empty stomach and wait at least one hour before eating or drinking anything other than water? Does she take any other medication at the same time as her levo?

Anniebokder profile image
Anniebokder in reply to greygoose

Yes she takes it on empty stomach , blood thinner an hour later

greygoose profile image
greygoose in reply to Anniebokder

Maybe try the blood thinner two hours later. Because she really isn't absorbing that levo.

Has she had vit d, B12, folate and ferritin tested?

Anniebokder profile image
Anniebokder in reply to greygoose

Yes all on my original post , maybe low B12 but all the rest looks okish

greygoose profile image
greygoose in reply to Anniebokder

Oh, yes, sorry. It's difficult to read at that angle. :) Well, B12 and folate are a little on the low side. Ferritin we can't really judge without seeing a CRP result. Vit d could be higher. Probably be better up around 100. But, that still doesn't explain that high dose of levo… Also, you would expect the TSH to be suppressed on that dose, and with the high FT3. Very strange.

Anniebokder profile image
Anniebokder in reply to greygoose

O.93 CRP range 0 .5 , she also has a stoma from a botched vaginal mesh removal, was used as a guinea pig , has had sepsis twice even though her removal was a long time ago , so absorption is probably the issue

greygoose profile image
greygoose in reply to Anniebokder

Ah, yes. She's had a lot of problems. Well, regardless of her dose, her levels are good. So, the next thing to do would be to raise her nutrient levels slightly?

Are you sure about that CRP range? Normally, it's under 5, not 0.5.

Anniebokder profile image
Anniebokder in reply to greygoose

Yes under 5 , its a sliding scale i read its a zero to 5 , its me being stupid .

greygoose profile image
greygoose in reply to Anniebokder

:) So, her ferritin is good.

posthinking01 profile image
posthinking01 in reply to Anniebokder

Hi there Annie - are you in the UK may I ask? That is certainly a very high dose and from my experience a dose that is too high gives you the same symptoms as being too low - hair loss - fatigue etc. etc. as it puts a strain on the adrenals trying to keep up with the metabolism uptake. Why were they put on such a high dose. Even patients who have had their thyroid removed don't go on that high a dose.

Anniebokder profile image
Anniebokder in reply to posthinking01

Yes its for a friend , i am Hypo but she is struggling , has no understanding so does not know what questions she should be asking , we are in N Ireland

greygoose profile image
greygoose in reply to posthinking01

Her dose may be high, but her blood test results are in-range, so I doubt she's taking too much. :)

Anniebokder profile image
Anniebokder in reply to greygoose

Thank you , helpful as ever

greygoose profile image
greygoose in reply to Anniebokder

You're welcome. :)

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