Night sweats: Been taking LEVOTHYROXINE 25mcg for... - Thyroid UK

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Night sweats

Ladybex profile image
23 Replies

Been taking LEVOTHYROXINE 25mcg for a week now... the rash that was half way up my arm is now all the way up and also in my chest area. It’s 3 am again and always same time I wake up with this fever and pins and needles in my right hand..

so uncomfortable and anxious 😩

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Ladybex profile image
Ladybex
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23 Replies
Greekchick profile image
Greekchick

Hi Ladybex,

I looked at your old posts and you were having fever at night 6 months ago. I am not sure the fever is related to your taking the levo. The rash is a different story.

What brand of levo are you taking? Some brands cause allergic reactions like rashes. Apparently some people on the forum have issues with Teva. Others have allergies to the dyes or fillers in their brands.

Do you have an antihistamine you can take to help with the rash? It may give you some relief.

How high is your fever? Is it over 38 degrees?

Ladybex profile image
Ladybex in reply to Greekchick

I’m now taking Levo brand WOCKHARDT ...

Greekchick profile image
Greekchick in reply to Ladybex

It may be that another brand might work better for you if you have had this problem since you started. I am not the expert on this - so I will defer to others on the forum who know more than I do here. I wish I could help with the different brands offered in the UK. In Canada we only have 3. All the best, and sorry I can’t offer further advice here.

Ladybex profile image
Ladybex in reply to Greekchick

No worries Hun ... thanks for being there 😊

Greekchick profile image
Greekchick

Hi again, Ladybex,

I also saw another post from 5 months ago about a rash and fever at night as well - it seems these symptoms have not been resolved for you after all this time - I feel so bad for you! It’s awful to be up at this hour on your side of the pond and suffering this way. Can your daughter go to the doctor’s with you on Monday? Is there an emergency clinic on the weekend?

I do not believe this is from the levo - based on your past posts, you have an underlying condition that has not been diagnosed properly. It may be related to hypothyroidism as was suggested by Heloise and pennyannie.

Also, you have only been on levo for a week - you would need at least 6 to see some results with respect to your hypothyroidism if in fact the fever and rash are related to that. Do you have your latest bloodwork? Can you post it tomorrow? (What was taken when you got your prescription for levo). There are others more experienced than me who can see if you are possibly being underdosed.

I am truly sorry that you are having such a bad time - please update here tomorrow and let us know how you are doing . Wishing you all the best.

Ladybex profile image
Ladybex in reply to Greekchick

Thank you Greek Chick, it has been going on for over a year and I’m exhausted.. I did put my blood test results in here ... will try and find them again. There’s no GP till Monday and walk in medical centres have sent me home before ...

Ladybex profile image
Ladybex in reply to Ladybex

My blood test results are on my profile ... can you see them ?

Ladybex profile image
Ladybex in reply to Greekchick

THYROID FUNCTION TEST

Previous raised TSH normal T4

Serum TSH level ... above range ...

13.53 mU/l (0.35-5.5)

Above height reference limit

Serum free T4 level 10.00 pool/L (10.0-19.8)

HAVENT A CLUE WHAT THAT MEANS ... HELP ...

Greekchick profile image
Greekchick in reply to Ladybex

Hi Ladybex,

So I read all your posts today with bloodwork. radd has given you some excellent information . And without the T3, it’s hard to interpret your results. If your MD will not give you that test, you may want to consider doing the Medichecks so you can get the full panel of bloodwork. You have no antibody results either - these are essential.

So if you have an appointment next week, see how it goes. Ask your MD for the all bloodwork SlowDragon has suggested and post everything when you get it. You will get a lot of help from the experts on this forum.

I know it is rough for you - you have been dismissed by many in the health care field. And without sleep and your symptoms, it’s no wonder that you feel so exhausted! Sleep is restorative, and without it we can’t recover from what ails us.

I hope you feel better soon and get some answers. Your symptoms have been going on for a long time now, and you deserve some relief and sleep. Wishing you all the best.

radd profile image
radd

Ladybex

Rashes are a common symptom seen in people who are intolerant to fillers in their thyroid meds. You might have to eventually try a different brand but to confirm this the reason, you could try taking an antihistamine with Levo and see if the rash is absent.

Night sweats can be a response to infection but more commonly seen during menopause or other hormonal imbalance such as adrenal issues. Waking between 3 & 4am can be a sign of unbalanced blood sugar levels. If night sweats have increased since you started Levo, this may be indicating flagging adrenals.

Thulasi1 profile image
Thulasi1

Please also check for vitamin b12. As it’s deficiency causes night sweats as one of the symptoms as it happened to me.

Ladybex profile image
Ladybex in reply to Thulasi1

B12 etc come back normal ...

haggisplant profile image
haggisplant in reply to Ladybex

I didn’t believe it at the time but teva 25 seemed to give me an itchy arm rash. I’m usually mega suspicious of these things but changing to mercury pharma sorted it.

Ladybex profile image
Ladybex in reply to haggisplant

Thank you haggisp but it isn’t itchy ... just spreading ☹️

SlowDragon profile image
SlowDragonAdministrator in reply to Ladybex

Night sweats can be low B12. Levels can still be within range for symptoms

b12deficiency.info/signs-an...

bmj.com/content/349/bmj.g52...

Can you add the actual results and ranges for B12

Range on B12.is typically 190-700. You can experience symptoms when B12 is under 500, especially when hypothyroid

Also have you had folate, vitamin D and ferritin tested?

Add results and ranges if you have them

Rash may be hives...also common with Hashimoto's

verywellhealth.com/thyroid-...

thyroidpharmacist.com/artic...

Do you have any gut symptoms?

Teva brand of Levothyroxine upsets many people

Ladybex profile image
Ladybex in reply to SlowDragon

I’m on Levo 25mcg and the brand is WOCKHARDT ... just been On them 1 week so early days ... first Levo I had made me quite ill ...

SlowDragon profile image
SlowDragonAdministrator in reply to Ladybex

What were actual results and ranges of B12, folate, ferritin and vitamin D tests?

If not all been tested ask that they are at next test

Plus thyroid antibodies need testing

Bloods should be retested 6-8 weeks after each dose increase in Levothyroxine

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).

Ladybex profile image
Ladybex in reply to SlowDragon

Have written a letter asking for these actual results and should know next week... will put them on here soon as I have them ... thank you 😊

glennss3 profile image
glennss3

I was taking a generic brand of levothyroxine, and I had a rash on my chest, every once in a while trouble breathing, and all my hair started to fall out. My Endocrinologist kept saying that the levo couldn't be causing these symptoms and it was something else.

But I really campaigned to switch to Tirosint (brand of levothyroxine for people who have allergic reactions or are sensitive to the dyes or bindings of the normal brands). And within four or five days all my symptoms were gone.

Maybe it is something else causing these symptoms, but it never hurts to try different brands and see if you are having some kind of reaction to the medication! I really hope you feel better and get this figured out.

Ladybex profile image
Ladybex in reply to glennss3

Thank you Glenn that’s really helpful. I have noticed my hair falling out more than normal since I started Levo .. will ask for the other make 😊

sbadd profile image
sbadd

I have been experiencing night flushes and waking to pins and needles in my hand, i have also been having rapid heart rate and recently abnormal menstrual, fatigue during day as well as a heap of stress , i definitely think atm i have a hormonal inbalance going on of some sort, seeing specialist on wed.

Ladybex profile image
Ladybex in reply to sbadd

I get pins and needles in my right hand sometimes but not my left... sending best wishes and keep me updated sbadd please

sbadd profile image
sbadd in reply to Ladybex

Will do

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