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Thyroid UK
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Should i wait o go private?

Hi all, i’m a 22 year old male for the past 2/3 weeks i’ve been suffering from dry mouth/thirst and excessive urination. I will often urinate every 20/30 mins on a bad day or every hour on the best of days. I went to the hospital last week where they did blood tests and urine tests where they eventually told me to go to a gp if symptoms pursue. Today i went to my Gp and he referred me to an endocronologist but tol me the waiting time could be anywhere from a month to 6 months!! This is really starting to affect my day to day life and i dont know what to do going private seems the best thing to do but its also a lot of money for me. Please help and give me some advice i will attach my blood test results.

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Ganxter102, were you tested for diabetes when you went to hospital?

Thirst and frequent urination is a common symptom. Are you losing any weight? Is your vision as crisp as you would usually expect it to be?

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hi yes i was tested for diabetes when they checked my glucose levels, i've lost weight although that may be diet related, my vision is still good whilst i wear my glasses

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DO you know what your blood glucose numbers were, and did they give you any further guidance on that?

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they were 4.5, not really they have left me in the dark about a lot. The only thing i know that they have told me is that my calcium levels were high but when i go online it says that hypercalcemia is dangerous so i don't understand why they would let it slide. Obviously i'm not a doctor so i dont say much as i feel like they would know what they are doing but...

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If you want more information on hypercalcaemia linked to vitamin D toxicity

- too high vitamin d can causes hypercalcemia there is mention in the article Is vitamin D harmful without vitamin K . Taking vitamin k supplements may help to reduce the vitamin d levels. If you don't know if you've had the vitamin D levels yet I would wait until you get a print out. Just type in Is Vitamin D harmful without vitamin K - link should come up on healthline.com. Your doctor might know if vitamin K will help - ?

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I would ask for the full printout of all recent lab with the reference range of each stated alongside.

Type 2.

Type 1.

Dr Richard Bernstein

m.youtube.com/channel/UCuJ1...

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if i call the hospital would they send it to me? or will i have to do the tests again

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You're legally entitled to a copy of your data. Either ask them to post the full list with the ref. ranges to you, or arrange to collect them.

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thanks, i will call them tomorrow

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Your doctor should have been sent a copy of the test results. You can ask your practice manager for a print out of your test results. Is there anything in your diet which is giving you a salt overload? Cheddar cheese salty ham, and salty snacks can lead to too much sodium affecting your sodium potassium balance. As you having to spend so much time with this distressing water problem, are you cutting back on water? Drinking filtered water might help if you have chlorine in your water supply. As you have lost weight is this due to cutting out certain foods and what are they?

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the only results they sent me are the ones that i attached in the post, i dont think so because i have since switched to a more plant based diet and the symptoms have persisted, if i stop drinking water i dont urinate as frequently although i get really thirsty, especially in the morning the thirst is unbearable. i lost weight due to cutting out out processed foods, meat and dairy which has helped massively with the constipation i once had albeit i am passing gas every 5 mins now lol

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Think the gas is coming from something in your diet may be a grain - wheat rye barley oats rice, and perhaps egg. Kidney stones, or urinary tract infection might be related. As you have had these symptoms for several weeks unresolved - then I would drop into your minor injuries unit which is open at weekends and until 6pm at night. You can drop in.

You could make an appointment with the nurse to do urine test for infection to rule that out. If it is endocrine related then you may have to wait for a referral from your doctor to go privately. If your back is hurting it is sometimes the sign of an infection of the urinary tract.

Gas can also be a sign of a bowel infection. Out of hours doctors at minor injury units are usually able to diagnose problems and will give you a thorough overhaul. Drinking water, in sips, may help to flush out toxins. Take care - don't be afraid to see another doctor in the practice - it may take several visits to get the right information or referral.

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You will benefit from doing keto diet if you do have diabetis. You will need to get rid of all sugar from your diet including fruits.

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Can't agree with you with diabetes, as other factors are involved including vitamins, and minerals. Fat's burn more readily, but many can lead to arterial deposits of plaque from calcification which can lead to coronary artery disease. Diabetics have to watch their cholesterol levels as they are more prone to heart and circulatory problems, and too high ketones with diabetics, can affect patients so they feel very tired. Fats in cheese are additional to those found in dairy with cream, and soft cheeses have lactase in them which converts to sugar in the liver and can make diabetics sugar levels rise. Have been on a ketone diet but even though I lost weight did not feel well. Further tests showed hypercalcaemia from too much calcium in the fats and cheeses, so since cutting these down, feel much better.

If you have too high calcium too low vitamin D and vitamin K this can lead to hypercalcaemia which may be part of Ganxter's problem.

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It's more likely too much protein which is responsible for hyperfiltration.. Hyperfiltration causes high calcium levels..

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That's interesting but I thought Ganxter had changed his diet removing meat and dairy and processed food and seemed lower in protein with more vegetables.

The symptom's of frequent urination, don't seem to be linked to an excess of protein unless supplements are being used. Test results have not been fully given, so no doubt the doctor will be able to interpret them.

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I've yet to come by a doctor that knows how to accurately interpret lab results and advise accordingly.

The immunologist that I saw had, unbeknown to me, included Vit D test. He told me that all my lab results were fine and that I should just have a vaccine. Years later, I got my records from the hospital and found that my Vit D during the summer was in the 20's (nmol) and yet the immunologist had failed to tell me and/or my GP, had failed to prescribe, had failed to advise me to even purchase Vit D, etc. But hadn't failed to push a vaccine. When a clinician has little ability in the way of creative thinking or lateral thinking and his first consideration is always a vaccine, it's time to look elsewhere.

FastForward a number of years, and I see another immunologist who wants to do some blood tests. I ask if he's going to include CRP? No. Is he going to include Vit D? No. He says he doesn't normally do those tests. And yet he wasted no time, in that very first appt, in pushing vaccines several times.

Thankfully, I, from time to time, attend conferences where highly knowledgeable Professors and clinicians with a great deal of expertise speak on immunology, autoimmune, chronic illness, infectious diseases, and vaccines, etc.

Anyone who thinks there are no eminent and expert and knowledgeable scientists and/or clinicians capable of speaking on controversial topics, inc. on the subject of potential and known adverse side-effects of vaccines, needs to open their eyes and understand that there are people out there who are more expert and more advanced (than themselves) in some fields of science and medicine, and to disparagingly label and dismiss such people as Quacks is offensive and shows a level of immaturity and intolerance - in just the same way that it is offensive to disparagingly label and dismiss thyroid/endocrine patients as psychosomatic or hypochondriacs.

Here's one of those Professors, with hundreds of publications to his name, whose lecture I have attended.

applied-bioresearch.com/wp-...

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You are lucky to find out the right leads from senior professional clinicians. Your experience with vitamin D deficiency resonates as it is major cause of depression.

It is only recently I have been researching vitamin K and D as I have had a melanoma, and had no information to build my immune system. it was then on reading an article by Dr Mercola that I realised that vitamin K and vitamin D work together to increase Matrix GL protein or MGP which is protects your arteries from calcification. In healthy arteries MGP helped the lining of the arteries preventing them from depositing calcium crystals. MGP levels aree tsted for to establish cardiac and vascular status. I now take D3 as it is the activated form of vitamin D, and have to keep out of the sun due to medication and because of the skin cancer.

Too high calcium in the blood may be due to these intricate balances of vitamins and an overload of calcium in too much cheese, and dairy. Having tests of cholesterol levels ,mine when up with eating cheese and felt liverish. I have type 2 diabetes so when you have so many different physiological abnormalities may be a gastro specialist and an endo would be able to track something like gluten plus other deficiencies. Just hope Ganxa has tests to rule out infection, and also with his sudden change in diet, someone who can interpret if he has any Vitamin D and K deficiencies, as well as thyroid problems.

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Out of interest, what blood level (NMOL or NG) do you keep your Vit D3 at?

And what daily dose of K's do you take, and which product/brand?

Ps. I'm not sure you mean about me being "lucky to find out the right leads from senior professional clinicians"?? My previous reply was trying to illustrate that that's not what I've had.

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That is what I was referring to by use of language as sometimes respondents may be experts in their field, and may take a comment amiss! I don't supplement with vitamin K but eat the right foods - plenty of dark green vegetables, meat and use lactase free milk as I am part dairy intolerance with cows' milk protein casein.

I had IBS so badly that stools were tarry and had the runs. It was not until I had food intolerance tests, I found I had multi grain part dairy and egg, and banana intolerances. As I had all these problems with digestion and diabetes and the melanoma it was a trial and error programme of helping myself improve my health to lower my blood sugar, and fats. I now use coconut oil, olive oil and eat oats cous cous humous and lentil and chickpea pasta, and potatoes to replace the grains which were numerous. Then I had work out barley related substances, such as malt, screening them out of diet including marmite, malt vinegar, beer. Sorbitol and corn syrup and cornflour a by product of maize were removed too.

Since cutting down grains in bread, rye biscuits, and the dairy in yoghurt, ordinary milk and soft cheese the Sugar levels and the IBS have improved so I can go out for the day without having to stop frequently. My blood sugar is now within normal limits but should be 5 to be completely diabetic free. My blood pressure has gone down to 112 over 62 when previously it was 165 over 100. I have not had my vitamin D levels done but my B12 after supplementing with sublingual drops rose and was tested so I had a two year reserve of it. I still need to lose weight but though I would be labelled as medium sized, By lowering my blood sugar by removal of grains despite eating potatoes, carrots, and oats, my weight loss of nearly 3 stone has remained the same. The grains were creating gas and bloating, with the dairy so my system is slowly regaining strength. I need to do more exercise such as walking. I do have occasional troubles, but without all the info from articles on the net, I do not think I could have defied the assumption that clinically obese people have insulin resistance which cannot be restored. I am still over weight but no longer diabetic! Does that make sense to the experts and would some type 1 diabetics who are eating grains, and dairy, be able to cut down their insulin and be better with removing these carbs? The dairy has lactase as you know so with going lactase free I was again reducing my sugar.

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Attending those conferences must put you in the know.

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I can't see your results, but you may have diabetes insipidus or diabetes melitis.

Lots of information on the latter available, & a great deal you can do to help yourself with a low carb diet. Michael Mosley has some good advice without having to sign up for his programme. Chris Kresser's information is good & free, too.

This might shed some light on the former condition: pituitary.org.uk/informatio...

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Badhare, with a blood glucose of 4.5, it is unlikely Ganxter102 has diabetes, although I wouldn't bet the farm, as diabetes can be a sneaky condition

.

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Sorry, I couldn't read your test results!

Maybe one of the diabetes groups can be of help.

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Diabetes Insipidus is different and yes its a possibility given the symptoms

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I was tested for this. Don't think they got that right, either!

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And you definitely don’t drink diuretics? No squash or tea?

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Ganxter102,

Welcome to our forum.

Your symptoms match that of Diabetes Insipidus. This condition is nothing to do with the more common diabetes that involves high sugars & insulin.

Has this been suggested to you?

.

Diabetes Insipidus

nhs.uk/conditions/diabetes-...

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A bit confusing as Ganxa said his tests were clear for diabetes. Having had bladder and urinary problems, with similar symptoms, it was related to infection. I have type 2 diabetes

which is said to now be within normal limits - so I am cured. I had the symptoms years before and also thyrotoxicosis and was warned diabetes might occur later - the physician was on the nail but the medical centre where I had a test some 4 years before diagnosis showed my blood sugar levels were 15. I only found out when I left a practice, as felt let down by the practice, and the had to have a blood test on joining the new practice.

Do you think vitamin D and calcium malfunction of absorption could raise calcium levels in the blood? Would you recommend supplements of vitamin K and vitamin d3 as well as calcium magnesium and potassium?

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I was seriously ill with diabetes for 3 years before I received a proper diagnoses. Blood sugars fluctuate wildly and doctors often need a blood sugar reading of 10 mmol brfore they act (which is far too late). Assume you have diabetes, the symptoms are too strong to ignore. Get Richard K. Bernstein's The Diabetrs Solution, educate yourself. Go on a strict low carb diet, get a blood glucometer and start recording your blood sugars.

An awful lot of damage occurred to my body because I had no idea what to do and trusted doctors for too long. Please get a glucometer and check your own bloods. I live in Ireland, if you're in the UK or elsewhere, hopefully someone can show you how to get a glucometer without having to pay for it.

I wish you well.

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P.s. I was as close to death as you can imagine before they started taking my symptoms seriously. I don't want to scare you but but let that happen to you.

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Your symptoms align with hypercalcemia (too much calcium in the blood) which was mentioned. That can have a variety of causes, but most common are disorders of the parathyroid. You definitely need to see an endocrinologist to find the cause and treat it.

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HI i think this is what i have too although i dont know how dangerous it can be if im being told i might have to wait up to 6 months to see the endocronologist which is whybim thinking of goin private

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I think that 6 months is too long to wait. Can't your GP get you in sooner? I would likely wait a month to be seen, but not 6 months. Much depends on how uncomfortable you are.

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You know I'd go back to your doctor, as what your going through all the time with this sounds horrible ,and must be driving you mad,I certainly wouldn't feel happy myself if I had your problem and being told could be up to 6

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What existing issues if any do you already have which you are being treated for?

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I second the hyper parathyroid mentioned above...

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?

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Hi Ganxer102

I usually don’t respond but as I have diabetes insipitus I know all too well about excessive thirst. This is not diabetes as most people think. It is pituitary based. Go to the endo doctor. It is a problem with the hormone ADH. The water balance hormone.

Good luck.

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Hiya,

You've posted on the thyroid uk section of HU so am I right in assuming that you have a thyroid condition? If so, this can result in diabetes because thyroid conditions affect your metabolism. Your age and symptoms indicate Type 1 diabetes so it best to wait and see an endocrinologist who can order the genetic blood tests needed to confirm a diabetes diagnosis. A finger print test for diabetes can only indicate your sugar levels and not whether you are Type 1 or Type 2. Try not to worry and take care.

TT x.

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Ask gp to do calcium, vit d and pth (parathyroid hormone) tests from the same blood draw. If your calcium levels are elevated as well as pth levels that can indicate hyperparathyroid issue. If it's clear from those results that's it's this, then you can request be referred to a parathyroid surgeon direct. Often endocrinologist just slows process down. Theres a brilliant Facebook group for parathyroid, can give you support and info. I know cause I had parathyroid adenoma removed last April. Had dreadful thirst, fatigue, whole host of symptoms. Surgery is only cure and it's not a huge surgery, can be day surgery in some cases. If it's not this then keep pestering your doctor anyway! All the best.

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It would be interesting if you have taken any supplements and what foods you eat or have removed. If you want to go privately it is best to visit the doctor three times before you will get a referral. If you want a referral to a specialist most of them work on the NHS and have special interests. You can look at private providers which have pay schemes, Nuffield .BUPA and Spire are some -they may give info on the specialists on their websites indicating their specialties.

If you have medical insurance they won't pay unless this is a new condition so if it is a thyroid condition, unless it can be described as a non pre existing condition, the insurance won't pay up! If you can track back to when these symptoms came out of the blue eg was it after a change in diet, or did you have a virus may be this will be a good pointer.

If this is a kidney related problem then you will be in the wrong unit. You had better get your test results back, and then if you need others such as vitamins, and minerals calcium ferritin iron and thyroid levels you can send your thyroid results through. At the moment you don't know what these tests are. Some doctors are reluctant to refer you to a specialist so unless you have had your tests back in full and need others, you might find this a difficult process. Keep drinking water, especially in the evening and remove alcohol as this dehydrates you. Hope you will improve as these problems are debilitating.

If you have hard water in your area this is a sign of high calcium. Other sources of calcium are cheese, and milk. If you look up the article The delicate balance between Vitamin D and K you might be able to see if you somehow have too much calcium and whether the vitamin d and k are working together to prevent over calcification. If you vitamin K level and vitamin D levels are not right, then you may need supplements.

articles.mercola.com/sites/...

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Have you had prostate test? B12d can cause urine frequency I’ve had this years & sometimes can be a nightmare so I feel your frustration. You need to be tested before taking any B12 or will skew results plus serum test isn’t great & misses many people, you can be in the range & still deficient. It’s best to be tested 4 months free of B12 but even then you might not be low enough to get injections, I had to fight for them as you often do but it’s the best way to say if your symptoms improve.

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