Liquid levothyroxine : Anyone take liquid... - Thyroid UK

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Liquid levothyroxine

Maggiemay12 profile image
13 Replies

Anyone take liquid levothyroxine, do you find it better than tablet form .

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Maggiemay12
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13 Replies
lesleywilsam profile image
lesleywilsam

Hi i took it originally ( Dont swallow tablets well ) The doctors took me off it because it was too expensive so now i crush the tablets with no problem. I liked the liquid but not great for taking on holiday as too bulky to carry.

Maggiemay12 profile image
Maggiemay12 in reply tolesleywilsam

What way does it come in as my endo is prescribing it so I can get a more accurate dose ad I’m cutting a 25 dose tablet and need a bit more than half so really hard getting same amount every day

mandy72 profile image
mandy72

i was on it a long time ago, did well on it until endo demanded i go back on tablets

ive recently asked my dr about it again (the dr who originally prescribed it) and he said it was too expensive

posthinking01 profile image
posthinking01

Hi there - Yes I do its fantastic - I can only speak for Mercury Pharma though - Teva I daresay is not so good. I had lost nearly 3/4 of my hair and had other thyroidy symptoms and couldn't understand why - then realised when I found a test result from the 1990's I was lactose intolerant. I was already using Lactofree milk, cheese, yoghurt and butter and cream because I noticed i was 'bad' on ordinary milk etc. but never realised the urgent trip to the loo after taking my tablet was as a result of lactose in tablet - I was losing the medication via the loo virtually - started with liquid and hair grown back and other symptoms gone and really easy to up the dose if you are suffering like I do with cold weather or hot weather thyroid issues - where I take a tiny bit more (0.05 mcg) when cold or same amount down in hot weather. Only problem is it is £80 a bottle which only lasts two weeks. You would need a test result to prove you are intolerant. Hope this helps.

Chippysue profile image
Chippysue

I have purified levothyroxine in gel capsules which are hand made by Martindales. I could not tolerate standard levo because of the fillers.

One day my gp will stop them. They cost nhs a lot of money.

HLAB35 profile image
HLAB35 in reply toChippysue

I really hope they don't if it is working for you. I worry that this is going to be withdrawn in the same way as t3. Great timing, as I am not getting any younger and may request this in the future for an easier life. Check out the links I found.

HLAB35 profile image
HLAB35

It has been proven to be better absorbed and can be taken with food which means patients don't have to set the alarm on cold winter mornings. Personally, I feel that anyone over eighty, anyone who is in a rush in the morning, or those suffering from the greatest fatigue, heart failure, or cognitive issues should be given this form ....but do the endos care, when it is 'so expensive' ? There was a published article on how it improves quality of life in many patients including the older ones.

moh-it.pure.elsevier.com/en...

ncbi.nlm.nih.gov/pmc/articl...

I have definitely got people my Mum's age in mind (including her) as being eligible for this, but it's hard enough arguing for them to give her proper blood tests!

Panda_26 profile image
Panda_26

It was prescribed for me as an alternative to try when regular thyroxine stopped working after 10 years . Wasn’t great for me , made me feel really nauseous so had to abandon it . Eventually went on to ndt having exhausted all options !

HLAB35 profile image
HLAB35 in reply toPanda_26

This figures in your case as it would suggest poor conversion if regular thyroxine wasn't working for you and liquid Levo would probably have made the symptoms worse for you as you would have had 'more' t4 to convert due to the better uptake of liquid Levothyroxine. Your doctor clearly did not check your rt3 or Free T3 levels.

Panda_26 profile image
Panda_26 in reply toHLAB35

They were checked and on paper looked ok . Symptoms however suggested otherwise . Conversion has never been a problem in my case so not sure why . I guess we’re all different ...

Naomi8 profile image
Naomi8 in reply toPanda_26

The subject of good results but persistent symptoms is of great interest to me.I did a Medichecks full thyroid panel-all the thyroid tests & the relevant vitamins.All the results were good.So why can't I lose weight & overwhelming fatigue?Why temperature stuck at 36.2 for years,but feeling too hot but cold feet & hot flushes,adrenaline rushes at 69?

Panda_26 profile image
Panda_26 in reply toNaomi8

Hmm ,indeed, it would seem that what results show doesn’t always reflect what we’re feeling . I share your frustration!

HLAB35 profile image
HLAB35 in reply toPanda_26

Could be thyroid hormone resisitance or Low / High TBG?

My first guess based on my experience is always to do with conversion, but I realise it can be a bit nuanced. To some extent I've been a bit baffled by fluctuating levels of t3 and I think the way that the body (mis)handles TBG helps to explain it somewhat.

kresserinstitute.com/why-yo...

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