Pain After RAI

[dodge1979]

Hi All,

I had TT in June due to cancer, Rai in Oct 2018 and had a lot of pain in my intestines started in Nov and still with me. every day all day

not getting any ware with the NHS so had some food and drink intolerance tests done

also stool

it came back with Dairy protein is not digesting and low gluten intolerance

I have been advised to go G & D Free for 3 months. so today is day 3 and I am not feeling much better. coffee causes more pain even decaf

made a bone broth today

any advice would be great

[SlowDragon Administrator]

You will need to get FULL Thyroid and vitamin testing 6-8 weeks after changing your diet to gluten and dairy free

For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if FT3 is low

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

After RAI you may need the addition of small dose of T3 prescribed

Getting vitamins optimal and diet intolerances sorted is first step

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients