Nhs guidelines

[hortEta42]

Hi all. I have noted that in a few posts (by Snapdragon i think) there is mention of the nhs guidelines on tsh levels in people on levo. Where can i find these guidelines please? I've done a google search but no luck. I want to bring them to the attention of my gp. Thanks.

[SlowDragon Administrator]

Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine

(Many of us need TSH nearer 0.2 than 2.0 to feel well)

See box

Thyroxine replacement in primary hypothyroidism

pathology.leedsth.nhs.uk/pa...

New NHS England Liothyronine guidelines November 2018 clearly state on pages 8 & 12 that TSH should be between 0.4-1.5 when treated with just Levothyroxine

Note that it says test should be in morning BEFORE taking Levothyroxine

Also to test vitamin D, folate, B12 and ferritin

sps.nhs.uk/wp-content/uploa...

[hortEta42 in reply to SlowDragon]

Thanks for the prompt reply. Sorry if i am being a bit slow here but this website appears to refer to leeds and bradford labs. I did come across it but didnt realise the lab did the tests for all the nhs. Thought it was a local guideline.

[SlowDragon Administrator in reply to hortEta42]

It's the only printed evidence of recommended thyroid results we have ever been able to find by NHS!

[galathea in reply to SlowDragon]

There are no NICE guidelines on treating hypothyroidism, But some are currently being worked on. They are due to-be released in november.

[Hidden]

Guidelines I have come across include hypothyroidism NICE CKS - clinical knowledge summary and British Thyroid Association guidelines on hypothyroidism 2015 (this references both American an European guidelines from my memory) Both can be found by google search! I think both state to normalise TSH in reference range, as reference ranges may vary. The BTA guideline suggests to avoid a ‘subnormal TSH’. I don’t think the nhs makes guidelines as such, it’s usually Specialty organisations or NICE, SIGN etc

[hortEta42 in reply to Hidden]

Thank you all. You wont be surprised to know two different gps have told me my returning symptoms cannot be the thyroid as i am 'within range'. Have followed the advice on this forum (thanks) regarding vitamins etc but I am also looking for evidence to help my case. Not holding my breath with the medical profession.

[Hidden in reply to hortEta42]

gpnotebook.co.uk/simplepage...

Gp notebook? Mentions to aim for low range tsh...

[hortEta42 in reply to Hidden]

Thank you. Will have a read.