I have been taking a low dose of 10mg Carbimazole for the past 4 months now after being diagnosed with an overactive thyroid.
This was initially found to be the problem after I went to the doctors because my right eye vision was slightly blurred and the eyeball slightly bulged. NO OTHER SYMPTOMS.
My doctor said the results were low and not alarming, just in a very early stage.
So, after a trip to the hospital and being put on these tablets, I have found I have gained weight and gone from a happy 9st lady to a miserable 10st 3 lady!
I have lost my confidence, nothing fits me and I’m feeling really depressed now.
Today I am seriously considering stopping the tablets as I feel the negatives of weight gain far outweigh the initial problem!
Sorry to ramble, - so my questions are:
WILL I BE OK IF I STOP TODAY? ..... WILL I BE REALLY UNWELL??
Thanks everyone.
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Aqualulu
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Having Thyroid Eye Disease does not necessarily imply that you are hyperthyroid.
And, even if you were, it is expected that the dose of anti-thyroid medicine (carbimazole) should be adjusted when your thyroid hormone levels drop.
Carbimazole prevents the thyroid manufacturing thyroid hormone. From starting, it can take a few weeks for that to result in reduction of blood thyroid hormone levels into the acceptable range. And it is so very common for people to dive into hypothyroidism at that point.
There are, broadly, two approaches at that point. First, reduce carbimazole dose until thyroid hormone levels rise a bit. Second, add levothyroxine. When the thyroid is fully suppressed and you rely on levothyroxine, that is called block and replace. But we have seen several people treated by some odd approaches of using reducing carbimazole and adding levothyroxine.
If you stop suddenly, you could find your thyroid hormone levels rise fairly rapidly. But if you had no other symptoms, I am questioning why you were prescribed carbimazole at all. This needs to be cleared up.
Do you have any blood test results? Most especially for FT4, FT3, TSH, and TRab (Thyroid Stimulating Hormone-Receptor antibodies)? You should be able to get a print out from your surgery without charge.
The thyroid hormone tests should have been repeated several times in four months.
If you want to suffer from the effects of hyperthyroidism, stop the Carbimazole. You'll become tachycardic, develop A-fib, congestive heart failure, and osteoporosis. There is a lot of very good information on this forum.
First thing is, do you have any actual blood test results? if not will need to get hold of copies.
You are legally entitled to printed copies of your blood test results and ranges.
UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
In reality many GP surgeries do not have blood test results online yet
Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
If TPO or TG antibodies are high this is usually Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease). However Graves' disease can also raise TPO or TG antibodies
About 90% of all hypothyroidism in Uk is due to Hashimoto's.
Low vitamins are especially common with Hashimoto's and Graves. Food intolerances are very common too, especially gluten.
So it's important to get TPO and TG thyroid antibodies for Hashimoto's and Graves and TSI or TRab antibodies for Graves' disease tested at least once .
Private testing for suspected Graves - TSI or TRab antibodies
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