Especially for those who do not have a thyroid-trained doctor or a competent doctor.
1.I now know that my gut instinct to not stop the carbimazole at 18 months when the doctor suggested it, was correct. Given my high TraB level, staying on carbimazole was the correct course of treatment. After 3.5 years on carbimazole, it came down to just above the high end of the range which is 1.5, my reading 1.8 still high.
2.Had I gone off carbimazole as the doctors suggested, I cannot imagine how bad my relapse would have been given my high TraB level, and to what extent it would have reactivated my TED. This is the damage inexperienced doctors can inflict.
3.Given how the disease is unfolding, it's 4 years since diagnosis, 4 years experiencing hyperthyroid ups and downs without guidance from an experienced thyroid doctor. Judging from the attacks becoming more sinister, it might perhaps be time to have the thyroid destroyed. I feel sad when I remember the periods of wellness and normalcy otherwise.