Radio iodine treatment

Underwent this yesterday . Let's hope those horrible symptoms of graves finally disappear?

[suggi]

It will take time but you will feel better. I had RAI Sept 2017 and then went hypo. I do hate to tell you it is not a picnic to go hypo either. I still do not have the right Levo dosage and my endo does not want to test FT3 so even if I get it tested myself and it is off she will not look at the result and change anything. Hopefully your endo will be more flexible. Hope you feel better soon. Hugs

[Hidden in reply to suggi]

Only symptoms today are I'm bloody freezing.

[suggi in reply to Hidden]

Sounds like you are already going hypo.

[shaws Administrator]

I wish you a speedy recover and a doctor or endocrinologist who is sympathetic and will ensure you get an appropriate thyroid hormone replacement that makes you feel well.

[Hidden]

Highly likely you will never find the correct dose of levo after RAI. I stuck it for 8 years always believing it was my fault that I never felt well. Eventually gave up and now on NDT. Suffered a couple of false starts, believing my Individual Funding Request had been granted, but it has not yet happened.

“The aim of treatment for hypothyroidism is to render the patient ‘euthyroid’ or with a normal thyroid state”, according to the latest SPS recommendation regarding the use of NDT. This means that that doctors take no notice of your symptoms if your blood results fall within certain limits......the dosage is NOT titrated.

You therefore need to speak to your doctor if you become euthyroid with continuing symptoms of hypothyroidism, which is the inevitable condition you will develop after RAI.

All doctors are INSTRUCTED by the General Medical Council to inform you of any medication that they believe may improve your health irrespective of whether they are permitted to prescribe it. It would save a great deal of argument if your doctor were to obey his obligations as I reckon that so many sets of recommendations are issued concerning NDT that any doctor who is unaware of its existence is certainly not doing his job properly.

[shaws Administrator in reply to Hidden]

If you are in the UK NDT is no longer prescribed.

Unfortunately, despite it being the very original thyroid hormone replacement which saved lives and in use in various forms since 1892 the BTA withdrew this a short time ago by making False Statements about it.

Despite a scientific Rebuttal sent to them by one of TUK's advisters before his untimely death and he sent three yearly reminders asking for a response - they never did and it is no longer prescribed.

A short time later T3 was withdrawn due to exorbitant costs by the suppliers.

So, we are left with levothyroxine alone in the UK and people - some who may not have sufficient money - have to source their own healthy-giving hormone.