y question is that i have been : my question is... - Thyroid UK

Thyroid UK

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y question is that i have been

BEATNINE
BEATNINE

my question is that i have been on thyroid medication almost 15 years levothyroxine for 15 years and now i have stopped taking my medication alone i took the responsability and then went to a good doctor i am in europe and was checked and he told me i have never been a hypothyroid patient and all they gave me for years was medication for no reason and now i am off my medication and i feel much better than before.

so does anybody have anything to say its just the doctors who are not well trained i am sorry to say it but it is the truth doctors do all the damage there is to patients

4 Replies
SeasideSusie
SeasideSusieAdministrator

Beatnine

I think what you need to do is obtain the test results from when you were originally diagnosed and prescribed Levo, see exactly what made them make that diagnosis at that time.

Did you have regular annual tests, as is the norm, following this diagnosis, with possible changes to the dose of your Levo?

And what were the test results from when you saw this doctor in Europe who told you that you didn't have hypothyroidism

You say in another post that you have Hashimoto's. Well, the antibodies are going to fluctuate, your test results will fluctuate as can symptoms. So sometimes you are going to have a "hyper" swing, sometimes you will be more "hypo".

Most doctors tend to dismiss antibodies and not really understand the nature of Hashi's.

I agree, I think it's definitely a good idea to get hold of that recent test results and confirm the diagnosis for yourself.

And then keep track of the level of wellness and be alert to that changing. Doctors certainly do make mistakes all the time, so don't completely trust that doctor 15 yrs ago, it the current one, double check everything for yourself.

SlowDragon
SlowDragonAdministrator

It's also very common to feel better initially off Levothyroxine, but it often doesn't last

You will need to do full retest of thyroid and vitamins every 3 months

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

According your your previous posts, you have Hashi's. Do you know about Hashi's? It's an autoimmune disease where the immune system attacks and slowly destroys the thyroid. And, because of that, your levels swing from hypo to 'hyper' and back again. And, in between 'hyper' and hypo, you can have a long period of euthyroid. That could be what you're experiencing now.

Did your good doctor look at your past records? Or is he just going by your latest results? And, as you're on 75 mcg levo, doesn't it occur to him that your results could be good simply because you're taking 75 mcg?

How long have you been off levo? And what were your last results? It is very, very rare that we see a misdiagnosis of hypo. Because doctors hate diagnosing it! Most would rather chop off their right hand than even test a patient for thyroid. So, I would be very, very wary, if I were you, and keep a close eye on your thyroid. :)

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