Yesterday evening I was diagnosed with hyperthyroidism, I was told I was an a more severe end of it,I was kept in hospital over night and my heart rate was 155,
Today is a new day and it’s all finally sunk in, I’m stressed about it and panicking, I’m 21 years old and work an active job and no one I know has been diagnosed with it
Has anyone got any advice with how I approach this diagnosis or how I continue to live how I always have? Has anyone had any problems?
Daisy
Do you have a copy of your blood test results? If not, get one. You need to know exactly what was tested and exactly what the results were. Then you can take it from there.
Did they put you on any medication?
Welcome to our forum and try not to worry too much.
Quite a number of people have problems with their thyroid gland malfunctioning. They are autoimmune diseases and we don't really know why our body reacts to develop an autoimmune condititon.
I have hypothyroidism but those who are or have been hyperthyroid will respond. A couple of links in the meantime:-
thyroiduk.org.uk/tuk/about_...
thyroiduk.org.uk/tuk/about_...
Always get a print-out of your blood test results from now on, for your own records, and you can post them for members to comment upon them. Always put the ranges - Ranges are in brackets after the results.
I had hyperthyroidism in my teens I was kept in hospital row weeks whilst I stabilised my resting heart rate was 180 bpm I was in a dreadful state, the gave me lugals iodine and propanonol, but was allergic to the iodine, so was put on a very high dose of carbimazole,I couldn’t even light my cigarettes as my shaky hands put out the match before I could get it to the fag.. anyway they finally stabilised me, quite a lot of that hospital stay was a blur,,
They did a sub thyroidectomy very quickly after the diagnosis, I was classed as thyroid toxic crisis, in my long stay in hospital
, I had felt fine on the meds and I knew very little on my disease,
I would find out why you are hyper, most is graves
Graves is auto immune so isn’t really a thyroid disease the antibodys attack the TSI so that’s what causes hyper
If I had k own now I would of tried to hang on to thyroid as it’s worse being hypothyroid that for sure , well is in my case,
Normally the NHS will give you 18–24 months to go into remission , they do not tell you what could trigger it,
This could be gluten, low vitamin D, magnesium, B12 ,Folate , Ferriton, low iron ,selenium , you will need to get these tested to see levels are, Drs seem to not know much on vitamins so all these things will need to be sorted out by you as very rarely do the care even if they are low, a friend of mine has graves her Vit d was below the range and Drs told her to buy her own, so I’m afraid it will be downto you to probably supply all thatslow, ,she’s recently started to take vitamins as I had suggested and after two years her bloods have become normal.. They were pushing radio active iodine to kill her thyroid off, I did quite lot of reasearch for her as said try cure the antibodies and your thyroid will be fine,
Anyway Drs will push for radio active iodine and thyroidectomy to get you off the books,
It has recently been proved that carbimazole is safe to take and so if you wish you may refuse RAI or surgery to destroy the thyroid because with these options you will become hypothyroid, it is a chronic disease and personally I wish I had known now what I do now
Their is a new drug coming out sone called ape tops that cures the antibodies, it’s been trialed and works so is only matter of time till comes out, I think I saw 2019 so very close,
Stress causes hyperthyroid so if you could do yoga this will help keep you calm and keep stress levels down
Potassium is normally quite low in hyper so eat plenty of bananas
Join lots of hyper groups on Facebook . If you are in uk use uk ones , join graves natural therapy groups on Facebook, and ask lots of questions they are very helpful on there and very happy to answer questions as they have all been in your situation or still trying to go into remission, everyone is different so may take some longer to go into remission and some never go into remission
I suggest you change diet and try and find out the triggers , people on Facebook will steer you in right direction for that,, avoid people who give advice then try to seell you something, there are plenty on there who will tell you how they did it, as said you will have to try different things as everyone doesn’t react to the same things
So all I can say is do not let them kill thyroid off unless they really have to many live on low dose carbimazole quite safely if they don’t go into remission,,
You could ask on here for a list of good sympathetic Endo crinologists if your one pushes to kill thyroid off, remember they have a new drug coming and you really want to try avoid becoming Hypo after RAI or surgery .
believe me the treatment for Hypo is crap and Drs know very little about it, they tell you one little pill will make it all better but it does not work on loads just read hypos posts to see how we are all treated..
So research m always keep copy of all blood tests and when you have them done write exactly how you are feeling at that time so you have a record to see what ranges you felt better at..
I wish you luck in your journey to health and hang on to that thyroid with your life as you have a healthy thyroid it’s the antibodys at the movement that’s considering you have Graves,
Lactose is also another trigger for graves..
Ask them to rest anti bodies as well as all above for Graves and Hashimotos
carbimazole is pretty safe and you will just have to have regular liver tests make sure all is working correctly,,,
I hope this helps xx
The Phase 2 trial of Apitope is supposed to begin next year, so it will be a while before it is generally available. However, as you imply, Daisykate has time on her side, and if she can hang onto her thyroid this may be an option in the future.
I know some people have had bad experience of RAI, but I’ve some across others who are happy with their decision. If the Graves’ can be kept under control with a reasonable dose of Carbi, that would probably be my choice for the long-term too. But this doesn’t work for everyone.
Hi Daisykate
It’s quite likely to be Graves’ disease, an autoimmune disease which can’t be cured, but can be treated, hopefully with antithyroids (Probably Carbimazole). If these don’t work, the endos will suggest radioactive iodine or thyroidectomy as Pascha1 suggests, but but provided your thyroid levels at least begin to come down with Carbimazole, that decision is probably 12-18 months away. They may also prescribe something to keep your heart rate under control until your thyroid levels come down a bit.
For now, I would ask for a copy of your results (ideally they will have tested TSH, FT4, FT3, TPO and either TRAb or TSI).
I would ask what they think caused you to be hyper, and on what they are basing this.
I would also ask them to explain your treatment plan. Ask lots of questions, if thee is anything you are still unsure of, post here and hopefully we’ll be able to help you.
If this is Graves’, it’s not a quick fix, but you should begin to feel a lot better within a few weeks, although it may be a while beyond that before you feel back to normal.
One of the symptoms of being hyper is anxiety, so although it’s natural to worry at the moment, it is worth bearing in mind that your natural anxiety is being exacerbated by the excess thyroid hormones. I know it’s a tough ask, but try to keep calm and not get overly stressed.
When I was first diagnosed with Graves’, I found that I knew quite a lot of people with thyroid problems (I’m quite a lot older than you !), and that the two who had Graves’ were leading normal lives. One had achieved remission with Carbimazole, the other had been treated with RAI, and was now hypo, and taking thyroid hormone replacement, but this doesn’t appear to be impeding her from having a full and active life.
Diagnosed hyperthyroidism
Still can't get diagnosed but extra tests being carried out
Newly diagnosed 
Newly diagnosed
