Diagnosed hyperthyroidism: Hi everyone, Been to... - Thyroid UK

Thyroid UK

141,245 members166,488 posts

Diagnosed hyperthyroidism

BorderCollieDex profile image
8 Replies

Hi everyone,

Been to see the gp today, well I’ve seen three as the first two knew nothing about thyroids, been diagnosed with hyperthyroidism and prescribed Carbizamol, I’m unsure whether to take these before my bloods are done in the morning and I’ve seen the specialist they’ve referred me to as seasidesusie (sorry don’t know how to tag) warned me yesterday that the gp would do this and to question the diagnosis. Unfortunately the gp dismissed my concerns (very politely) and I’m not a very assertive person when it comes to these sorts of things. Any ideas anyone? Much appreciated!

Previous post here healthunlocked.com/thyroidu...

Written by
BorderCollieDex profile image
BorderCollieDex
To view profiles and participate in discussions please or .
8 Replies
SeasideSusie profile image
SeasideSusieRemembering

BorderCollieDex

With your Medichecks results of

TSH: <0.005 (0.27-4.2)

FT4: 41.7 (12-22)

FT3: 27.1 (3.1-6.8)

It's understandable that your GP has said you have overactive thyroid, as I predicted.

However, with

TPO antibodies of >600 (<34)

Tg antibodies of 450 (<115)

he cannot say for certain that it's not a hyper phase of Hashi's and that it's definitely hyperthyroidism. I personally would want TSI and TRAbs antibodies tested before doing anything.

How long is the wait to see the specialist? Is it being done as an urgent referral?

BorderCollieDex profile image
BorderCollieDex in reply toSeasideSusie

He’s said it can take up to two weeks and if I’ve not heard from the hospital by then to book another appointment with him, I’m having bloods done once a week starting tomorrow but I’m unsure as to what exactly they’re testing other than a full blood count. Thank you 😊

SeasideSusie profile image
SeasideSusieRemembering in reply toBorderCollieDex

Hopefully the blood tests will include your thyroid too - TSH, FT4 and FT3, I imagine your GP wants to keep an eye on these levels.

If it was me I'd wait the two weeks.

pennyannie profile image
pennyannie

I was diagnosed way back in 2003 and knew nothing.

I went to the doctor with exhaustion, insomnia and dry gritty eyes, and he ran blood tests phoning me at work the following day to come back in to see him, same day.

He started me off on carbimazole suggesting should I start to feel unwell and have a sore throat to go straight to the hospital.

This never happened, but believe I was then picked up be the hospital for on going monitoring of my Graves Disease.

I do not know to this day, if I had the correct blood tests for a diagnosis of Graves Disease.

It is very important that you are checked for either TSI or TRAb antibodies as the medication and outcome are very different.

It reads that you have now seen a specialist, through referral by your doctor, was this an endocrinologist and has he agreed the diagnosis or undertaken further blood tests ?

Oh, OK just read your answer above in that you are waiting for hospital appointment.

Until you have a positive for TSI or TRAb antibodies you do not have Graves Disease.

BorderCollieDex profile image
BorderCollieDex in reply topennyannie

Thank you both!

I’m just really struggling to decide about the medication, my partner and family are adamant the I take it and listen to the doctor but after talking to you guys I’m thinking wait till I’ve seen the specialist, hopefully they’ll test for TSI and TRAb in the morning and I’ll have some answers.

SeasideSusie profile image
SeasideSusieRemembering in reply toBorderCollieDex

I doubt you can get TSI and TRAb tested at primary level, but you can ask.

I can understand your family saying you should listen to the doctor, but honestly if you had been a member here longer you would be used to the regular horror stories of misdiagnosis, mistreament, sheer ignorance of thyroid disease and how to treat it at both GP and specialist level. This forum has a wealth of information from many experienced members that far outweighs what most doctors know - what a dire situation where that needs to be said.

Out of the 4 or 5 years at medical school, we are told that one afternoon is spent on the endocrine system of which thyroid is only part. It's no wonder that doctors aren't up to speed. All they understand is that low TSH and high hormone levels means hyperthyroid and that high TSH and low hormone levels means hypothyroid. They don't seem to have much understanding of autoimmune thyroid disease and that Hashi's starts with a hyper phase so it often gets misdiagnosed as hyperthyroidism.

Sweetpea1157 profile image
Sweetpea1157

Hi BorderCollieDex, am sorry to hear and see the dilemma you are in , it can be very overwhelming when you get a first diagnosis , we've all been there , I've been suffering with thyroid probs for around 30yrs, it's only in the last year of being on this site , talking to people here , listening to their advice , that I have finally been able to partially understand what has been going on with my thyroid , i say partially as you are constantly learning here .

Sorry i cant help you more , but i find this forum so helpful , try to remember , the people here have been where you are today , they've seen the film , wrote the book and worn the T-shirt as so to speak , so their advice can be quite valuable . I hope you find the answers you are seeking here and hope you start to feel better soon , take care ☺

BorderCollieDex profile image
BorderCollieDex

Thanks so much for the replies everyone, it helps so much just to talk to people in the same situation.

Not what you're looking for?

You may also like...

Newly diagnosed hyperthyroidism

Hi 👋 I’m newly diagnosed with hyperthyroidism, multiple nodules. I’ve been prescribed 1, 2.1/2...
Emerald1953 profile image

New hyperthyroidism

Hello, I’m new here. I was recently (March 2022)diagnosed with hyperthyroidism. I was symptomatic...
Omomi profile image

Hyperthyroidism (overactive thyroid) Please Help !

Hi, I’ve just had a Thyroid test and it’s come back overactive, the GP as booked me in with the...
MEFMARK profile image

Management of Carbimazole/hyperthyroidism and other symptoms

Hi all, I’m new here, I’ve written out my history in my profile including all test results so won’t...
LeopardLegs profile image

Newly diagnosed Hyperthyroidism- what do my blood test results mean?

Hi there, I’ve been newly diagnosed on Friday with an overactive thyroid. I have been prescribed...

Moderation team

See all
Buddy195 profile image
Buddy195Administrator
RedApple profile image
RedAppleAdministrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.