Help : Sorry for the long post.... Last October I... - Thyroid UK

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6 years ago•4 Replies

Sorry for the long post.... Last October I got diagnosed with an underactive thyroid / hasimotos after 3 years on and off with a overactive thyroid going over then back to normal and so on.... Like I said last October I got diagnosed with having an underactive thyroid and in May my bloods had shown me being back overactive and got told to come off my levothyroxine and got sent for a radioiodine uptake scan in July and my bloods then shown my blood levels are in the correct rang I'm no longer underactive or overactive I'm confused..... But for the past week or so I've had a really bad headache to the point it feels like I've been punched in the eyes and making me feel dizzy / sick anybody no why this could be

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Blue_Bee6 years ago

Dear SarahMay, Sorry to hear you're not feeling so great. Sounds like you've been through the mill with hyper and hypo symptoms. An ongoing heavy headache was one of the many symptoms that I suffered for months and months, until I got proper treatment for Hashimotos Hypothyroidism. SarahMay, you need diagnosis of the reason for your headache and you need effective medical treatment for your Hashimotos. This means being persistent in seeking the best medical care you can find, and doing this despite feeling so unwell. You can do it. Be gentle with yourself, trust your symptoms and keep going until you find the medical care you need to get well. Kindest wishes, BBxx

in reply to Blue_Bee6 years ago

what worked for you in terms of "treatment"? thanks!

SlowDragonAdministrator6 years ago

First thing is, do you have any actual blood test results? if not will need to get hold of copies. You are legally entitled to printed copies of your blood test results

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need enhanced access to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can no longer charge for printing out, rules changed after May 25th 2018

Can you add most recent results and ranges for TSH, FT3 and FT4, plus have you also had thyroid antibodies tested

Also if have had vitamin D, folate, ferritin and B12 tested. Add results and ranges if you have them

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

helvellaAdministratorThyroid UK6 years ago

When you see a user name of Hidden, it means that the person is no longer a member of this forum.

We often close posts that were originated by people who have left - there is no point in wasting our time making replies. Occasionally, the thread might still be active and popular and will be left. More often, it is simply a case of none of the admins noticing!

I shall now be closing this post to replies.

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