Myasthenia Gravis with hypothyroidism.

[McPammy]

I have recently been quite unwell. My limbs are so weak I cannot walk far. Sometimes it’s hard to sit up or hold a knife and fork eating my food.

I have hypothyroidism for 11years now and low cortisol recently.

Each time I take my Levothyroxine within 2 hours my weakness gets much worse.

I’m waiting to see a muscular neurologist. Does anyone out there have this or similar condition please

I’m struggling to understand what is happening to me. I think it may be myasthenia along with hypothyroidism??

Thank you !!

Pam

[Marz]

On your post/thread of 17 days ago there were lots of good suggestions and questions but on reading them through there were not many responses from you. I appreciate you are feeling poorly but it is difficult to help when there is so little information from you - sorry.

Hope you soon feel stronger 😊

[McPammy in reply to Marz]

Hi Marz

I’m sorry I don’t recall seeing 17 responses for a post I made were I didn’t respond. I’m confused as I’m on this site most days reading posts and commenting.

If it was about test results maybe I didn’t have them at that point I’m still confused and concerned now. 😔🤮

[Marz in reply to McPammy]

It was 17 days ago - not 17 responses !! Just thought reading through your last Post and Replies would reveal the good support and suggestions by members - and save me writing loads.

Click onto your Username above and you will see your last post and replies ... no need to be concerned. Do you have your test results now - if so do post them so members can advise/support 😊

[McPammy in reply to Marz]

Ok I’ve found the thread. Sorry but I thought I’d replied to quite a number of replies at the time.

I have just posted my latest results. These are changed quite a lot in the past 2 months!!

Thanks

Pam

[Marz in reply to McPammy]

Yes you did respond well but not with results requested etc. 😊

[SlowDragon Administrator]

For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Can you add your most recent results and ranges for all tests you have had

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

Symptoms list

thyroiduk.org.uk/tuk/about_...