Thyroid tissues

[thyroidx100]

I first had the right half of thyroid removed 21 years ago. Then the left hand thyroid grew from left to right. Now there are lumps growing in my throat and it's getting uncomfortable. Took my husband and went to the doctor's. Been for scan nothing found. But my doctor saw the a lump that why she sent me for a scan. Now I go back. I tell her how I'm feeling not good at all nd my husband takes over. Doctor then reads my chart and discover that when I was operated on the doctor left some tissues of the thyroid in my throat because it would not cause any problems. Fast forward it's giving me a dance of my life. That lump is sitting middle of my throat. So doctor wrote to someone in the hospital. So I will find out when the doctor gets a reply. Anyone have the same problem.

[SlowDragon Administrator]

You also need to test thyroid levels and vitamins too

For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

[thyroidx100 in reply to SlowDragon]

I live in Leicester UK. Anywhere can I get check as my doctor won't do that test.

[shaws in reply to thyroidx100]

We have two labs who do postal home pin-prick tests. Make sure you are well-hydrated a couple of days before.

Medichecks and Blue Horizon are the labs.

thyroiduk.org.uk/tuk/testin...

[shaws]

It must be an awful worry for you. You didn't expect some thyrid tissue to be left in your throat. I hope it is resolved shortly.

Other members who've had the same op/problem will respond.

[thyroidx100 in reply to shaws]

Thanks so much. Want to know if anyone else had this problem

[JanetGarrettN]

Hi,

I live in the U.S. I had 50% of my thyroid removed in 2009 due to goiter that could not be ruled out as cancerous after 3 biopsies. About 18 months later, I started having swallowing, hoarseness, pain, and sleeping issues due to compression. It is common that this happens generally five years after thyroid surgery. In 2012, I had the remaining thyroid half removed.

Both my surgeon and endocrinologist, who I've been with for 9 years, has explained it is much better to leave even the smallest amount of tissue if possible. This is for easier and more stable maintenance. Being 100% reliant on thyroid replacement makes life very challenging with many medications you cannot take and that will push into either hyper or hypo territory. If you've gone 21 years, I think you have done awesome. Good luck.

Janet