Start medicate levo: Hi all I have a lot of brain... - Thyroid UK

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Start medicate levo

Adam1805
Adam1805

Hi all

I have a lot of brain fog and dizziness , i stop eating gluten and its improve a lot

Before 5 days i start to take levo beacusr hashimoto .

Now my brain fog and dizzines comeback .

I know its take time till levo start to work (4 weeks or something)

My question is if its possible that until levo improve things there is increase symptoms ,its possible?

8 Replies

Hi

This thyroid business takes time, I’m still learning.

What dosage of Levothyroxine have you been started on?

If it’s 25mcg that’s a too low dosage to start on, unless your elderly or have heart condition.

The low dosage of 25mcg can often make you feel worse. Can you ask your GP to up it to 50mcg earlier?

My GP tried putting me on 25mcg of Levothyroxine, but advice from here was start on 50mcg which he agreed.

You will then need blood tests every 6 weeks TSH, T3, T4 and make sure you book an early morning appointment for those. The earlier the better.

Don’t take Levothyroxine before your blood is drawn and only water. No food.

Morning bloods give the best results for an increase. This tip is passed on this forum (don’t disclose to GP) and it does work.

Make sure they take all three thyroid bloods as said above, TSH, T3 & T4.

Often they only test TSH, which is no good, you need to look at the whole picture.

Get your official results as well, including ranges, they can no longer charge you. EU ruling.

Don’t be fobbed off by the receptionist or GP saying they are normal.

The receptionist tried this one on me, and they were clearly not normal, plus I still don’t feel right.

In my surgery I can now access my official results on line, so maybe ask your surgery if you can do the same.

Vitamins are very important for thyroid function, iron, ferritin and vitamin D and B12, got those checked out as well.

Take selenium this helps thyroid function 200mcg a day.

Best wishes

Peanut31

Adam1805
Adam1805 in reply to Peanut31

I take 50mg levo

Its possible that till my thyroid balance i feel worse in the start

Its happen to someone here?

Peanut31
Peanut31 in reply to Adam1805

Yes Adam1805

It’s quite possible and does happen, many have posted the same experience as you.

I felt fine then I started to go down hill again, which pointed out that I needed an increase.

Remember that your thyroid is not working so you are now introducing hormones to your body so it takes time, hence the 6 week wait until your next blood test.

What ever you do, don’t leave it any longer than 6 weeks for an increase or let your GP tell you other wise.

Hashimoto’s will not help your condition either, I have this too.

I see you are gluten free which will help, and maybe look at dairy free as well?. Use almond milk in your tea and gluten free cereals.

Try and eat plenty of fruit and vegetables fresh foods. Stay away from processed foods, sugars, fizzy drinks.

Every time you get your blood results posts them on here including ranges and the experts will advise and how your thyroid is taking to the medication.

This forum has helped me no end, but it is a slow process.

Good luck

Peanut31

Adam1805
Adam1805 in reply to Peanut31

Thank you

SlowDragon
SlowDragonAdministrator

How high was your TSH on diagnosis?

Have you had vitamin D, folate, ferritin and B12 tested?

Did you GP explain always take Levo on empty stomach and then nothing apart from water for at least an hour after.

Many take on waking, but it may be more convenient and possibly more effective taken at bedtime

verywell.com/should-i-take-...

Many people find Levothyroxine brands are not interchangeable.

Which brand have you been given? Many people don't get along with Teva brand

Once you find a brand that suits you, best to make sure to only get that one at each prescription.

Watch out for brand change when dose is increased

Blood will be retested after 6-8 weeks. All thyroid tests should ideally be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Adam1805
Adam1805 in reply to SlowDragon

Thank for your reply

My tsh 4.02

I convinced me endo give me levo ( antibodies both above 1000)

My only questions is if in the first week its makeing symptoms worse?

(I know its take 4 to 6 weeks to work)

SlowDragon
SlowDragonAdministrator in reply to Adam1805

Yes it's not unusual.

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first and vitamin D, folate, ferritin and B12 if not already tested

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Adam1805
Adam1805 in reply to SlowDragon

I am with free gluten for 2 month and its help a lot with brain fog .but now when i start levo the brain fog return

I hope its beacuse hormone changes and in two week gone

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