Dizziness, shakey, jitters and back pain - Thyroid UK

Thyroid UK

137,936 members161,765 posts

Dizziness, shakey, jitters and back pain

happypurple profile image
3 Replies

Hi,

This is somehing that has been happening quite frequently recently.

A week or so before my period is due (although it has been on and off all the time for the last 2 months), I feel absolutely awful.

Unable to sleep more than 6hrs (often waking about 4-5am), jittery, weak feeling in arms, nausea, super dizzy spells, feeling faint, tension pain in my neck and lower back. Tingles down my legs, an excited/anxious feeling in my stomach, super teary and anxiety through the roof. Panic attacks and utter fatigue, even lifting a hand is hard work.

I'm pretty sure its adrenal related and I am trying to get the money together to do the test so I can see what my levels are. Then I'll be able to see improvement (or not) when I start Adrenavive II.

Do you think I could start Wellsprings 20/1 at the same time to aid the recovery of the adrenals? I figure the less they have to work and are supported, the better and quicker recovery.

I had a tubal ligation after the birh of my second child which threw me, head first from a pregnancy hormone laden body into menopause. The most I was told would happen is that my periods would be slivhtly heavier. They were so wrong.

After 4yrs of sheer hell every single minute of every single day, unable to even care for my new born, I found some reaearch that helped me persuade them into removing the clips.

Instantly, a lot of my symptoms subsided, but hormonally, it's been a definite decline as I guess the damage done, the scar tissue, can't be undone.

Dr.Peatfield suggested I probably had a thyroid and adrenal issue when I was born, so this probably just exaserbated the issues.

Has anyone else had a similar experience?

I'm scaring myself because I can't get he answers to the test and start supplementing immediately but i feel like my adrenals may give up before long. And then its game over. I know it sounds dramatic and OTT but I am genuinely terrified that I won't get to see my children grow up. 😔

Written by
happypurple profile image
happypurple
To view profiles and participate in discussions please or .
Read more about...
3 Replies
shaws profile image
shawsAdministrator

I am very sorry you are having a rough time and it is overwhelming when we don't feel right and yet few doctors really know what's going on - except for Dr P and the few doctors that remain of his era who were taught to recognise through clinical symptoms.

Have you had a blood test for your thyroid hormones? I will also give you a list of clinical symptoms and am sure you can tick off more than a couple:-

thyroiduk.org/tuk/about_the...

Request a Full Thyroid blood test (GP may not be able to do all if your TSH is 'normal' which doesn't mean you don't have hypo but that we remain undiagnosed until it rises high enough.

You need TSH, T4, T3, Free T4, Free T3 and thyroid antibodies. The ones GP wont or lab wont test you can get a private test which will do all of the ones we need.

The test should be at the earliest possible, fasting (you can drink water) and if you were taking thyroid hormone replacements you'd allow a 24 hours gap between last dose and test and take afterwards. GP should also test B12, Vit D, iron, ferritin and folate.Deficiencies in these can also cause symptoms.

Get a print-out from the surgery (we are entitled by Law) and some charge a nominal sum for the paper/ink. Make sure the ranges are stated (these are in brackets) and members will respond.

I think our instinct is high when we don't feel well and sometimes it is right - if only doctors knew more than only looking at the TSH result. TSH means Thyroid Stimulating Hormone and in the UK we have to wait until it is 10 before being diagnosed. We can diagnose ourselves if we get our own blood tests. A TSH above the the top of the range (usually around 5) but the NHS states it has to reach 10 before being diagnosed. On this forum quite a few get their own thyroid hormones as they are fed up being undiagnosed/undertreated.

happypurple profile image
happypurple in reply to shaws

Hi Shaws,

Thanks for your reply.

I did post a few time previously with blood test results and other questions.

Yesterdays episode was particularly bad for me. They seem to be getting incrementally worse each time they happen.

I am hopefully getting the thyroid ultra check by medichecks ordered on Friday, and today I plan to do the adrenal and sex hormone saliva tests advised by dr P.

I left my job on friday because of the impact the stress was having on me. I really just want to fix this...or at least manage it better so I can live my life more normally.

My TSH was 1.8 in october 2017, so more 'normal' than most, bit it doesnt exclude T3,T4 rT3, rT4 ect. My poor daughter has had a thyorid issue all her life we now suspect, her level was 4.6 or something close, she has tons of symptoms but they still won't help her. So we're off to see Dr P for her on Tues.

It really messes with your head. I never realised how awful this condition was for suffers before I experienced it myself.

Do you think the 20/1 cream and andrenavive II is fine to start together?

Do you have any experience of them?

Thanks

Happypurple🦑

shaws profile image
shawsAdministrator in reply to happypurple

It is a relief when we're finally diagnosed as doctors (who don't know any symptoms) will give us a prescription for something other than hormones we need.

Free T3 in particular is necessary but NHS doesn't think so or FT4. Considering our body cannot function at all if T3 is too low as it is the only active thyroid hormone.

I have no experience of the above two products but those who have will respond.

Dr P is an expert in his field and it is because he was another doctor who was hounded due to him diagnosing according to symptoms. I bought the book 'Tears Behind Closed Doors' and it was one woman's journey to health. This is a link and Diana Holmes went onto work with Dr Skinner - another doctor probably led to an earlier death due to the stress of being called before the GMC several times but always discharged as treating patients well. If it wasn't Dr S's patients who were complaining, it must have been those who didn't agree with his method. He became involved due to being sent patients (after blood tests were introduced as a criteria for diagnosing) as they had 'mysterious diseases' and he found that the majority were suffering from a thyroid disease and treated them.

thyroiduk.org/tuk/tuk_shop/...

You may also like...

Back Pain – Any Thoughts?

themselves and have probably got worse, so he's got me on an Adrenal Extra programme). I feel that...

Swollen and painful back of throat

Low back pain ( trapped nerve ) on t3

wondering if the t3 has affected my adrenals as I've read that low adrenals cause loose ligaments....

Gluten free, but tummy pains back

everything now. Once I have eaten I feel my tummy making popping noises and feel so windy. My...

Started on T3 now back pain at adrenal point

back just at the point of my adrenals. This pain has not gone away and I feel it constantly. Has...