struggling: Bear in mind I am x4 week post... - Thyroid UK

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sam295 profile image
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Bear in mind I am x4 week post pacemaker op. I have collapsed twice after operation, after first time they checked my Pm and said it was working ok. 2nd time I went to A&e first they were going to admit me then they changed their minds as noone was working on bank holidays . I tried to raise the subject if thyroid and was told that my results were within normal ranges, I did mention conversion problems and was told maybe and referred back to my GP again.

Any thoughts?

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sam295
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shaws profile image
shawsAdministrator

Sam, I see something has malfunctioned and there are three identical posts from you. I will erase two and return to you.

greygoose profile image
greygoose

After an operation like that, your T3 is bound to be low, because your body will have reduced it in order to make you rest while you heal. However, I don't know if that would cause you to collapse like that.

Another thing that will probably be affected is your B12 level. Some anesthetics destroy your B12. So, it might be a good idea to get that tested, and/or take some B12. :)

shaws profile image
shawsAdministrator

I have had a look at some back posts and you have gone through an awful time altogether.

I do hate the phrase doctors use i.e. within normal ranges'. The fact that you've had to be fitted with a pacemaker is awful and you don't seem to be having 'back-up' care. One minute they're going to admit you and the next minute send you home. It isn't good enough at all.

It is very scary when you have a heart problem (could be due to too low a T3) and I hate the word 'within normal range'. That's were the biggest faux pas occurs - normal - when we need optimal.

We don't know what the blazes is going on - we're treated - but we feel worse and not better or even improved slightly.

Has your GP taken any thyroid blood tests? If not you can have home pin-prick ones and, just in case, I'll give you a link and they are home pin-prick tests. If you decide make sure you are well-hydrated a couple of days before drawing blood or they can tell you where you can get blood drawn.

Blood draw should be at the very earliest, fasting (you can drink water) and if you were taking thyroid hormone replacements you'd allow 24 hours gap between dose and test.

You need TSH, T4, T3, Free T4, Free T3 and thyroid antibodies.

Your GP should test B12, Vit D, iron, ferritin and folate as all need to be optimal.

Blue Horizon and Medichecks are the labs and the latter has a special offer every Thursday but may not be for the ones you need.

thyroiduk.org.uk/tuk/testin...

TSH is highest early a.m. and drops throughout the day and may mean you don't get diagnosed as most only look at the TSH and I doubt they know anything about the Frees: Link below.

thyroiduk.org.uk/tuk/testin...

thyroiduk.org.uk/tuk/testin...

Our heart and brain need the most T3 (supposed to convert from T4) but sometimes we don't do so effectively. That's why FT4 and FT3 are necessary as are antibodies. Antibodies would mean you have hashimoto's which is he commonest form of hypo as the antibodies attack the gland until we're hypo and they wax and wane. Sometimes we feel hyper and at other times hypo.

sam295 profile image
sam295 in reply to shaws

I did post results a few days ago if you look back and they forgot to test ferritin and my TSH was low and T4 low

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