Hello, I don’t know where to start so I’ll try the begining!
48 year old female
Diagnosed with ankylosis spondylitis (auto immune disease) in 1987
Cutaneous Lupus in 2011
Hypertension in 2015
I recently went to the doctors and had bloods, she phoned me a few days later and said “you’re thyroid toxic” and said I had to take 20m Carbimazole daily.
I’m confused and frustrated as I am constantly freezing cold (a joke to my family and work colleagues), have to be VERY cautious as to what I eat as I put on weight so easily which is bad for my joints due to the AS so eat fruit during the day an one main meal after work.
My bowels are slow, normally 3-4 days but can be up to a week between movements (sorry that’s gross but I think it’s relevant).
I’m married to a wonderful, kind, supportive husband and love him dearly and find him incredibly attractive and apparently I should be a raging nymphomaniac but I’ve lost interest in sex!
I constantly suffer debilitating exhaustion, if one person tells me to exercise one more time I swear I will lose it, no one seems to appreciate the extreme fatigue that goes hand in hand with auto immune diseases.
I could go on but basically all of my symptoms, apart from heart palpitations, point to hypo not hyper, how can this be??????
My main concern is losing my hair (again, I have on a couple of times due to medication for the AS) and gaining weight, I CANNOT afford to put weight on because of my joints.
I eat so little now AND put weight on, what will happen once the carbimazole kicks in, will I just have to stop eating?? For example, I went on holiday for 2 weeks and put on 12 pounds, that doesn’t sound like hyper!
It just seems so unfair, I apologise for wallowing in my own self pity but I’ve been battling my own body for 37 years and I’m tired of it, I have contemplated not taking the medication and if my heart gives up, then so be it but my family depends on me and I still have a hefty mortgage (thanks to the ex) and no insurance (premiums too high) and don’t want anyone saddled with my debt.
I’m stuck between a rock and a hard place.
If I’ve done anything incorrect or followed the ring procedure then I’m truly sorry but I’m just reaching out for some advice.
Thank you everyone x