Newbie: Hi I'm seeing the doctor next week, as I... - Thyroid UK

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Hollyhock11 profile image
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Hi I'm seeing the doctor next week, as I think I've got Hypothyroidism. Does anyone on here still work and have it, and do you have to pace yourself, or reduce duties?

Also, are prescriptions for Levo.....? free in the UK?

Just trying to get informed in case I have to battle with the doctor to get diagnosed. She originally thought I had GCA or PMR, so I'm worried she won't believe me!

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Hollyhock11
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tee27 profile image
tee27

First of all yes, prescriptions in the UK for Levothyroxine are free. Also if you are diagnosed with hypothyroid all your prescriptions will be free, you will need to get from from chemist and get doctor to sign and send off and you will get certificate. I have congenital hypothyroidism and have never had any problem working, although while you are trying to get used to levels you may feel tired. People are different but it's never stopped me from doing anything.If it's not affecting you now when you're not getting any treatment, then when you are you should be fine.

jacky62 profile image
jacky62

Hi, yes, I still work, I can't afford not to! My job is active, so my symptoms often interfere with my abilities. My legs and feet ache almost constantly and my energy levels are low. I am on levo, but my last blood tests according to my doctor, said to stay on 50mcg/day. It's been 5 months since diagnosis, but I have apparently had this condition for years! I'm back at the doctors next week for more blood tests, so hopefully I'll get some further answers. Good luck.

Hollyhock11 profile image
Hollyhock11 in reply tojacky62

Thanks. I have had heavy legs and fatigue for a long time, and started a gluten free diet as I was being sick after eating wheat. However, I've started eating certain breads again, and get no problems. I have puffy hands and face, sleep problems, sweating, hoarse voice etc, so this is why I am convinced I have it. I'll see what she says and keep you all posted. So glad I found this forum.

Scazzoh profile image
Scazzoh

Have you had any blood tests done for thyroid function yet? If so, what were the results? What are your symptoms? I don't know what CGA or PMR is. You can lead a normal life with hypothyroidism, but you have to get the medication and supplements right and there may be lifestyle changes required - giving up gluten for example, if you have the autoimmune version.

Hollyhock11 profile image
Hollyhock11 in reply toScazzoh

I've had bloods done for GCA and PMR, but they came back as negative for them. Do you have to have a particular diet or avoid certain foods (apart from the gluten free I'm doing)? I read that green veg and sweet potato are not good for you? I'll just be glad not to feel tired and get my energy levels back!

Scazzoh profile image
Scazzoh in reply toHollyhock11

I am following the Paleo Autoimmune Protocol, which is a lifestyle program for people with autoimmune disease. It starts with a strict exclusion diet followed by an introduction phase. It includes stress management, sleep hygiene and detoxing. I have found it a very powerful healing tool and am back to normal after being very ill. If you want to find out more, these are good websites: Paleo Mom, Autoimmune Wellness and Phoenix Helix.com.

You haven't given any thyroid blood test results, but if you are on Levothyroxine, your TSH should be below 1 and your T3 and T4 towards the top of the range. That is a general guide and everyone is different. Also you need to have folate, ferritin, B12 and D3 checked as these can be low in people with an underactive thyroid gland. If your doctor won't do the tests, you can have them done privately. Here is a link:

thyroiduk.org.uk/tuk/testin...

Finally, eating tons of raw kale is probably not a good idea, because it is goitrogenic. Here is a link explaining how to eat green veg if you have an underactive thyroid:

blog.paleohacks.com/top-11-...

Hollyhock11 profile image
Hollyhock11 in reply toScazzoh

I haven't been to the doc yet, but am going next week. Thanks for the links, I'll check them out.

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