Is T3 still unavailable in the UK with endo su... - Thyroid UK

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Is T3 still unavailable in the UK with endo support ?

cazza1001 profile image
6 Replies

Hi - my endo has me on T3 - is this still officially unavailable in the UK - he says its now a black drug (ie, cant be prescribed in primary or secondary care for hypothyroidism) -

is this the case ?

thanks

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cazza1001 profile image
cazza1001
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6 Replies
SlowDragon profile image
SlowDragonAdministrator

No that's rubbish. If originally prescribed by NHS endocrinologist and deemed to have clinical need of T3 and doing well on it it should not be stopped

british-thyroid-association...

theyworkforyou.com/wrans/?i...

Look up your local CCG guidelines on Liothyronine

Some/many CCG's have tried to say it's black listed, but it isn't

Endocrinologists are however being pressured into de-prescribing patients

Clear legal outline

healthunlocked.com/thyroidu...

cazza1001 profile image
cazza1001 in reply toSlowDragon

the slight complication is that he is an NHS endo but I have been seeing him at his private clinic and he suggested I start on T3 as don't do well on T4 - thanks you for your help !

would this mean I still have a case for T3 as he is a registered NHS endo ?

SlowDragon profile image
SlowDragonAdministrator in reply tocazza1001

Unlikely unless you originally saw him on NHS

A private prescription will enable you to get German T3 20mcg (£30 for 100 tablets)

cazza1001 profile image
cazza1001 in reply toSlowDragon

thank you - is there a brand for the german one ?

SilverAvocado profile image
SilverAvocado

My Endo, whigh doesn't prescribe me T3 but has in the past, made a few noises to the effect she is no longer allowed to prescribe. Unfortunately something else came up and I didn't get a chance to question her.

Sounds like Endos have been contacted with instructions that are far stronger than the actual state of things.

keeponbelieving profile image
keeponbelieving

Well I pick up my NHS prescription from Boots every month. They tried to take it away but challenged them. Do not accept such a decision.

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