whose on what versions Uk

[Angelic69]

+Hi all, im due for my endocrine visit next week, his name is (edited by Admin). Hes already told me that he will not prescribe T3 for me as ive had issues with my heart. Despite the fact that my heart issue only rose its head after i started taking levothyroxine which probably caused it in the first place, and contrary to what ive read on the Thyroid foundation website which states that you can prescribe but extra care must be taken. Anyway i was wondering if anyone had information on what treatments are available to persons in the West Midlands as ive been told several different versions. Is there a website that gives NHS service users a none moveable boundary on whats available and the circumstances or criteria that a service user must be in , in order to access functional medicine approaches and a return to normal health.

[SlowDragon Administrator]

Marz has some info I think about a book that discusses low T3 and heart problems

[Marz]

It is my understanding the heart NEEDS good levels of T3. When I started taking T3 I was aware of my heartbeat when the next dose was due. Then it settled.

I bought a Book from Amazon ....

amazon.co.uk/Thyroid-Heart-...

You can look inside the book on-line and read the contents where you will see the mention of Liothyronine/T3 mentioned often. The book is a collection of research papers from around the world brought together by an Endocrinologist and a Cardiologist. This the first time the two medical disciplines have come together for the purposes of research. So to me it reveals the connection well.

Also google - Heart and Low T3 Syndrome - I think there is quite a bit of reading there too

[Angel_of_the_North]

Are you sure you want to see him if he's said no T3 without even seeing you? T3 is often prescribed for coronary problems and low T3 is one of the primary markers for poor prognosis with heart disease. IE T3 is good for your heart in the right amounts.

[Angelic69 in reply to Angel_of_the_North]

Not sure about what i am entitled too or my rights in connection with requesting another Endocrinologist or even if there is another in our local hospitals. Im dependant on the NHS.

I have seen my Endocrinologist, He refused on an earlier occasion.

[Angel_of_the_North in reply to Angelic69]

Honestly I don't know what your rights are in practice. In theory, once your GP has agree to refer you, you can choose any NHS specialist of that type in England (ncuh.nhs.uk/patients-and-vi... but I've never actually been given a choice nor has one been available on Choose & Book.

[shaws Administrator in reply to Angelic69]

I have removed the name of the Endo as it is not permtted to put names on the forum.

The NHS has instructed that T3 is no longer to be prescribed due to the high cost, It has gone from a reasonable price to exhorbitant. It was also a good reason for them to withdraw it.

You can source your own and if you want to, you have to put up a fresh post requesting information by a private message to you and you will be sent a Private Message by members who source their own.

On levothyroxine my palpitations were excessive and never stopped - even Cardiologist couldn't figure it out but T3 calmed everything down.

You can add T3 to your T4 and it is usually in a 1 to 3 basis. I am well now on T3 only. That's not to say it will be the same for everyone as it can be trial and error

Research has proven that a combination of T4/T3 works for many who don't on levo alone.

If you can get a new blood test and we have two private labs who will do home pin-prick tests. Blood tests for thyroid hormones have always to be at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between your last dose of hormones and the test and take afterwards. This helps keep our TSH at its highest and that's all they seem to notice and adjust dose unnecessarily.

You need a TSH, t4, T3, Free T4 and Free T3 and thyroid antibodies.

GP should test B12, Vit D, iron, ferritin and folate.

Get a print-out and put results with the ranges for comments on a new post.

[kluang in reply to shaws]

you could also go to the gp and request a print out of all your tests over a few years

[Eve00675]

You might be low on magnesium which can be a cause of heart issues - medicalnewstoday.com/articl... and here advice is given on taking magnesium citrate, COQ10 and selenium in relation to thyroid problems drruscio.com/reversing-dama... based on this medical study ncbi.nlm.nih.gov/pubmed/266...

[kluang]

I have arrhrythmia and it has become much better with ndt. At the same time I began to take epsom salt baths and use supplements of various sorts, including minerals and co-enzymeQ10. I believe the heart can be affected either by too much or too little T3, you need to find the sweet spot where it is happy. But just that was not enough, it has taken a lot of years of supplements too. I had a genetic test (blue horizon medicals) and it has explained the situation for me as I have a number of bad genes that cause the stress hormones to kick in and also to not clear them away properly. The thyroid foundation is run by the endos and they have a political/commercial agenda that is not necessarily in our interests as patients.

[Angelic69 in reply to kluang]

Who prescribed the ndt for you.