Hashimoto's Heart Research - more participants ... - Thyroid UK

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Hashimoto's Heart Research - more participants needed

lynmynott profile image
lynmynottPartnerThyroid UK
14 Replies

Thyroid UK members are being offered a free training as part of a study called ‘Hashimoto’s heart’.

The study is a collaboration between Hashimoto.help and Maastricht University in the Netherlands.

The mind and body, individual and environment have long been seen as separate entities. This online training takes the psychoneuroimmunology perspective. This perspective is based on the fundamental unity of the body’s systems. It is the function of these systems to help you stay healthy. The immune system is a part of that.

Patients with autoimmune disease have a different response to stress. They register more stress. Stress does not just come from outside of our body but also emerges as a result of our internal experiences, which influences our self-evaluation, self-identity, self-presentation and self-control. The internal and external stressors are registered in the same way in our body but the internal stressors are present 24 hours a day. The internal stressors have developed to protect us, to make sure we survive although in the long run they can make us sick.

By reprogramming the system, neurobiology, psychological and physiological changes will take place. You will be able to differentiate threat from non-threat and consequently the immune system will balance. You will get yourself back, feeling energetic and vital.

The training provides:

• understanding of the role of emotions as part of the immune system

• inner resources development

• experiential exercises and self-discovery

• development of life knowledge and skills

This is an excellent opportunity to learn about yourself and your body.

To be accepted as part of the study, you will need to be over 18; have been diagnosed with Hashimoto’s by a clinician; be a member of Thyroid UK or one of our online communities i.e. HealthUnlocked, Facebook or Twitter; have a good command of English; have access to the internet and be able to work with a computer.

Once you have applied, you will need to sign a consent form and complete a questionnaire.

This may seem a lot of work but the research produced at the end of the training will be very useful so do please take part if you can.

If you are interested in taking part in the study please send email to: info@hashimoto.help

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lynmynott profile image
lynmynott
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14 Replies
Pamela0106 profile image
Pamela0106

Hi Lyn! I’ve just e-mailed them and offered to participate. This is exciting stuff. I hope I will be able to help in some way as well as receive some help too. Thanks for this post! What a great opportunity!

Pamela0106 profile image
Pamela0106 in reply toPamela0106

Oh wow they replied already! I’m in! 🙌🏼👌🏼😂🦋❤️

lou66 profile image
lou66

Have emailed Them anything that's helps us all is a bonus

Peanut31 profile image
Peanut31

Yes, I've offered to participate too.

Best Wishes

Peanut31

iriscandy profile image
iriscandy

I'm in too, thanks!

lucylocks profile image
lucylocks

Hi Lyn,

not sure if I would qualify as I am not officially been diagnosed with hashi's.

My AB levels are high, but not over range, but some say because they are so high I could have hashi's.

What do you think.

THYROGLOBULIN ANTIBODY 103.000 IU/mL 0.00 - 115.00

THYROID PEROXIDASE ANTIBODIES 32.2 IU/mL 0.00 - 34.00

lynmynott profile image
lynmynottPartnerThyroid UK in reply tolucylocks

Unfortunately, you wouldn't qualify. :-( You are within the range in these tests and a doctor would probably say you don't have Hashi's. However, levels can change depending on stress and diet etc. I think everyone should be tested for antibodies so that they know if they might have problems in the future.

lucylocks profile image
lucylocks

I did not think I would qualify but thought I would offer just in case.

JaneChapple profile image
JaneChapple in reply tolucylocks

Hi Lucylocks and Lynn

Back in 2014 I had high TPO of 39 and recently had a check of TPO again when it confirmed I was in normal range. Im told on another forum that still have Hashimotos and always will have, its just that Im in remission apparently which is a good thing of course. Have you had previous checks which were out of range. Not sure if I would meet the criteria though in view of this? As we know TPO and TSH can alter all the time especially with Hashi flare-ups.

JaneCx

lucylocks profile image
lucylocks in reply toJaneChapple

Hi Jane,

Thank you for your reply.

No I have never had antibodies over range, but very near the top of range.

I was told on another forum because they are high in range, hashi's could not be ruled out.

Once you have one result over range then yes you are classed as having hasi's even if other results are under range as apparently they alter all the time.

lynmynott profile image
lynmynottPartnerThyroid UK

It's centred on Hashi's only. We often get people asking for help with their studies so keep an eye open for one on Grave's in the future.

I have just emailed them

JaneChapple profile image
JaneChapple

Hi Lucylocks and Lynn

Back in 2014 I had high TPO of 39 and recently had a check of TPO again when it confirmed I was in normal range. Im told on another forum that still have Hashimotos and always will have, its just that Im in remission apparently which is a good thing of course. Have you had previous checks which were out of range. Not sure if I would meet the criteria though in view of this? As we know TPO and TSH can alter all the time especially with Hashi flare-ups.

JaneCx

Katepots profile image
Katepots

Thanks for this Lyn, have applied.

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