Has anyone gone from hypo-hyper-hypo?

[Northforty1980]

I was diagnosed with underactive thyroid 17 years ago and treated with 112 or 125 mcg levothyroxine for the first 15 years and 100mcg levo and 5mcg cytomel (t3 drug)for the last 2 years. my tsh has always been suppressed .3- .01 (range .4- 4.5) but I didn't know until recently that I shouldn't take my thyroid meds before testing. I felt pretty normal until November of last year when I had my first hyper episode (heart rate of 130 at rest for 24 hours). I was told to stop taking the cytomel and lower my levo dose to 75 mcg. Feeling hypo now. Should I ask my dr about adding cytomel again and keep levo at 75? I did reverse t3 testing before starting cytomel and it indicated I have a conversion issue (don't remember the #). No antibodies.

Results- 4/22/17- tsh-.02 (.4-4.5), Free t4- 1.5 (.8-1.8) Free t3- 4.2 (2.3-4.2) Felt fine

9/28/17- tsh- .01, ft4- 1.5 no ft3 done

1/19/18- tsh- .18, ft4- 1.5, ft3- 2.8 This is with no cytomel and 75 mcg levo for 6 weeks

3/5/18- tsh- .54, ft4-1.3, ft3-2.4 My free t3 is bottom of the range and I'm feeling hypo. - lethargy, muscle aches, muscle cramps and exercise intolerance.

Thanks!

[Clutter]

Northforty1980,

If you are hypothyroid you can't go hyperthyroid but you can become overmedicated.

Your FT4 in March is halfway through range and FT3 is low in range so I think it would be helpful to increase to 100mcg to increase FT4 and FT3 and if FT3 remains low to add some T3.

[Northforty1980 in reply to Clutter]

I'm leary of increasing the levo since that's where it was when I was overmedicated. My free t4 seems to stay fairly stable regardless of dose.

[Clutter in reply to Northforty1980]

Northforty1980,

Well try it the other way around then and start with adding T3 and add extra T4 if your results aren't much improved after your next test.

[Northforty1980 in reply to Clutter]

Thanks!