Problem taking Levo: Hi all, I am new and... - Thyroid UK

Thyroid UK

141,244 members166,489 posts

Problem taking Levo

Urzsula profile image
9 Replies

Hi all,

I am new and after some advice, I am going to ask my endo tomorrow about some symptoms I have been having since starting Levo in Aug 2017 after being given a hypothyroid diagnosis.

Basically a few days after starting Levo I had some stomach cramps, empty feeling in gut, nausea, vomiting, diarrhoea. My last bloods were taken in December with Free T4 14.8 (12 - 22) end of normal range and TSH 4.88 (0.2 - 4.2 so out of range) on 25mcg Levo.

So I am

undermedicated. But I feel like a nuisance in asking for my brand to be changed, is it asking too much? I can't carry on like this.

Thank you

Written by
Urzsula profile image
Urzsula
To view profiles and participate in discussions please or .
Read more about...
9 Replies
SeasideSusie profile image
SeasideSusieRemembering

All tablets have fillers and some of us react to some fillers. You're not a nuisance if you fall into this category, it's not something you can help.

What brand is it? If it's Teva then many members have had bad reactions to that brand. I would ask to try a different brand.

Urzsula profile image
Urzsula in reply toSeasideSusie

Teva

SeasideSusie profile image
SeasideSusieRemembering in reply toUrzsula

In that case it would be worth trying a different brand.

Urzsula profile image
Urzsula in reply toSeasideSusie

I have tried Actavis, Mercury and Wockhardt and neither improved my levels, have informed endo secretary who has said she will pass on message

SeasideSusie profile image
SeasideSusieRemembering in reply toUrzsula

Did you have the symptoms of stomach cramps, empty feeling in gut, nausea, vomiting, diarrhoea, only after taking Teva brand or any of the others?

If your levels haven't improved then you may not be absorbing Levo properly. I have just seen from your other thread that you have Hashi's and SlowDragon has explained everything in her reply there. This is most likely where your problem lies so I would take on board all the advice given in that thread.

Urzsula profile image
Urzsula in reply toSeasideSusie

I had the the vomiting and nausea and empty feeling in stomach after takiog Teva, but the other symptoms started after taking the others. Thanks

SlowDragon profile image
SlowDragonAdministrator

You are currently very under medicated

Dose should be increased in 25mcg steps until TSH is around or just under one and FT4 towards top of range and FT3 at least half way in range

Do you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies?

If not been tested ask for antibodies to be tested

Ask endo to also test for coeliac disease and also vitamin D, folate, ferritin and B12

Gut problems are common. It may be the tablets. Or because you are so under medicated

Others to try are Mercury Pharma, Wochart, Activis

Urzsula profile image
Urzsula in reply toSlowDragon

Will post antibody levels, I do not understand them

Clutter profile image
Clutter

Urzsula,

You can discuss brands with your pharmacist when you take your prescription in. You do need to ask your GP for a dose increase though as you are currently undermedicated.

The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.2 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email dionne.fulcher@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

Not what you're looking for?

You may also like...

Antibody levels, can anyone please advise? Dose reduced from 175mcg to 25mcg Levo

Thyroid peroxidase antibody 485 (<34) Thyroglobulin antibody 288.3 (<115) I am going to ask my endo...
Urzsula profile image

Nerve issues, hypo or Levo related?

Hi all, I posted a while ago as a newbie and you were great! I wonder if any of you could offer me...
Tiff35 profile image

Thyroid Hormones Worse after 9 Weeks on Levo

Happy Sunday folks.i Bloods - all input welcome... thank you ! (A) Summary: - 9 weeks on Levo (4...
Cola4444 profile image

NDT-LEVO

Does any one know what the recommended starting dose of NDT is? I am on 25mg levo but although my...
foxglove profile image

TSH going up on Levo?

Hello, I’ve just had my test results back after increasing to 50mcg Levo for 4-6weeks. TSH 4.8...

Moderation team

See all
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.