Numb face, tongue & jaw?

[t3rcam]

My daughter has a new symptom of numbness in her tongue, face, jaw and it’s spreading to her chin and neck and her cheeks. She was at A & E last night and again today but doctors are puzzled. It’s not allergy related or food intolerance related, nerve or dehydration. She is currently being investigated for SAI but despite having skewed thyroid blood test results docs will not recognise her symptoms. She is a nurse and has done her research and thinks that she could have central hypothyroidism related to hyopituitaryism. Has any one come across these symptoms?

[SlowDragon Administrator]

Could be low calcium. This can cause numbness (and usually tingling) around mouth

Can be due to low vitamin D and/or low magnesium

All of these can be low with hypothyroidism

For full evaluation ideally your daughter would need TSH, FT4, FT3, TT4, TPO and TG antibodies, plus vitamin D, folate, ferritin and B12 tested

See if you can get full thyroid and vitamin testing from GP. Unlikely to get FT3

Private tests are available

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting This gives highest TSH and most consistent results

Link about antibodies

thyroiduk.org.uk/tuk/about_...

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

list of hypothyroid symptoms

thyroiduk.org/tuk/about_the...

[t3rcam in reply to SlowDragon]

Yes she had all of these tests done and despite being highly symptomatic doc says normal which as we all know is just ridiculous. I will try and find her results & Post a new thread.

[Clutter]

tr3cam,

What is SAI and what are your daughter's recent thyroid results and ranges?

Facial numbness isn't a typical hypothyroid symptom. Have calcium and B12 levels been checked?

[t3rcam in reply to Clutter]

I thought that I had replied to you Clutter. SAI is secondary adrenal insufficiency. My daughter is a nurse and has done a lot of research since becoming unwell and says that her symptoms are directly related to central hypothyroidism which is directly linked to hypopituitaryism. I’d never heard of these two conditions before.

[Clutter in reply to t3rcam]

T3rcam,

Central hypothyroidism is caused by pituitary or hypothalmic dysfunction. It presents with low-normal TSH and low FT4 and FT3. The thyroid gland is usually healthy but unable to produce hormone without sufficient TSH stimulation. Treatment is Levothyroxine replacement but management is usually by endocrinology as further investigation may be needed in case sex and growth hormones are also be deficient. cks.nice.org.uk/hypothyroid...

Pituitary/hypothyalmic dysfunction can also cause SAI webmd.com/cancer/tc/seconda...

[christa1]

my son had simular symptoms and is was :

Bell's palsy - Wikipedia

en.wikipedia.org › Bell's_palsy

Bell's palsy is a type of facial paralysis that results in an inability to control the facial muscles on the affected side. Symptoms can vary from mild to severe. They may include muscle twitching, weakness, or total loss of the ability to move one or rarely both sides of the face.

all the best for your daughters health.

xo

[t3rcam in reply to christa1]

The nurse practitioner and GP ruled out Bells Palsy because it’s not paralysis.

[t3rcam]

Thank you all for your replies.

[Are82]

Did you ever find out what was going on with your daughter? I have the same symptoms, was diagnosed with Hashimoto’s a year ago but my levels are well controlled with medication. I’ve had a normal MRI and I’m going to have a lumbar puncture soon to rule out MS. I’m interested to hear what they found due to her symptoms.

[Fifiba in reply to Are82]

Hi Are 82Did you find out what was going on?

Im have same symptoms and Im so scared

Can you please let me know

Thanks