Hashimotos

[jelston]

Hi I am new how is Hashimotos treated I have TPO antibodies 1700 (<34) thank you

[Peanut31]

Hi Jelston

Someone more experienced will

Be able to give your further advice.

However I have been diagnosed with Hashimoto’s by my private Endocrinologist (scan confirmed) after months of feeling so ill and not realising what was going on.

I should be on Thyroid medication, but, he refused to give me anything as my TSH improved over the 8 months I was under him and on my last appointment, he would not look at my private thyroid blood tests, which still showed antibodies present, but, focused on his blood test of TSH.

Hashimoto’s will never go away, and will eventually either make you over or under active.

You can improve your symptoms by making sure all your vitamin levels are correct.

Vitamin C

Vitamin D

Vitamin B

Iron, and going Gluten free.

Do you suffer with tummy pains, trapped wind etc ?

It is caused by a leaky gut that is also a symptom of Hashimoto’s.

I do believe that going gluten free has helped reduce my TSH level, but I’m still not 100%.

This forum has been more helpful than my GP and the private Endocrinologist.

You have to do your research and don’t think that the NHS has your best interest at heart.

I’m speaking from personal experience, GP informed me it was anxiety and my Endocrinologist said no medication would help me further and go on more holidays.

If you have had blood tests post them on here including the ranges.

Best wishes

[jelston in reply to Peanut31]

TSH 5.65 (0.2 - 4.2)

FT4 12.9 (12 - 22)

FT3 3.3 (3.1 - 6.8)

Taking 25mcg levo

[Rmichelle]

Hi there i also have hashis and like peanut has said it can never be cured but yiu can help reduce the antibodies by adopting a gluten free diet, i also am gluten free and soya free but i have celiac so its a must for me to be gf. Others will be along shortly to offer more in depth advice and they will also say that if you have your blood test results please post them with ranges.😊

[jelston in reply to Rmichelle]

TSH 5.65 (0.2 - 4.2)

FT4 12.9 (12 - 22)

FT3 3.3 (3.1 - 6.8)

Taking 25mcg levo

[jelston]

Diagnosed 2011

[crimple]

Your results are not good. For someone being treated with levo you should have TSH below 1. Ask for 25mcg increase in meds and another blood retest after 4-6 weeks when you will likely need another increase. Also ask for Ferritin, Iron, folate, Vit B12 and Vit D to be tested. When you have the results post on here for further suggestions re supplements. In the meantime do go Gluten free it will help reduce your antibodies and help your gut to recover which is probably why you will have low vitamin levels etc. GF made a big difference to me but I am permanently on VitD and B12

[jelston in reply to crimple]

Diagnosed 2011 shouldn't I be on a higher dose. Thank you

[jelston in reply to crimple]

Vitamins and minerals have been checked

FERRITIN 4 (15 - 150)

FOLATE 1.9 (4.6 - 18.7)

VITAMIN B12 166 (180 - 900)

VITAMIN D 9.3 (<25 SEVERE)

[SlowDragon Administrator in reply to jelston]

Can you see a different GP urgently? Today?

These results are so terrible.

How long since vitamins were tested and what if anything has your GP done and prescribed

You are extremely under medicated and vitamin levels dire as result

You need urgent iron infusion

If you feel breathless or faint go to A&E and take these results with you

See detailed supplements advice in these replies to posts from SeasideSusie

Low vitamins due to under medication

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Ask for bloods testing for coeliac disease

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ask GP for coeliac blood test first

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

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scdlifestyle.com/2014/08/th...

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