Living dead

[Kcdb]

Can hypo- thyroidism truly be the cause of feeling utterly lifeless, apathetic, basically not human? I am currently working with a practitioner and I realize progress is slow. However, I am consumed daily with thoughts have how awful I feel. My biggest accomplishment everyday is changing out of my pajamas into clothes . I sit usually staring out the window until time to put pajamas back on.

I can’t fathom how anyone could / would continue to live this existence ? Looking for success stories and encouragement. Thanks in advance .

[greygoose]

It sounds like you're very under-medicated. Do you have copies of your lab results? Can you give us a bit more information?

But, yes, being hypo can certainly make you feel like that, because thyroid hormone is needed by every single cell in your body to function correctly - including all the cells in your brain! Thyroid hormones control your energy, your metabolism, your temperature, everything. There's not one centimetre of your body that isn't controlled by thyroid hormone. So, if your thyroid isn't working correctly, and you are not on enough thyroid hormone replacement, you are going to feel very bad.

[Kcdb in reply to greygoose]

Thanks greygoose. I’m expecting new labs tomorrow . It’s been tricky finding correct medication . Just needed to be reminded this is not all in my head.

[greygoose in reply to Kcdb]

Nope. It's in your neck.

Seriously, though, it's often tempting to wonder if we're not just imagining it all, exaggerating, etc. But, we aren't. It's real - unfortunately!

[Kcdb in reply to greygoose]

Thank you for always replying greygoose. Feeling pretty sorry for myself and wondering why more people don’t reply to my posts? Am I posting incorrectly ? Thx

[bluebug in reply to Kcdb]

This forum is a UK based one with most members in the UK.

You posted the post I am replying to around 4.30am UK time.

I think if you start your threads at around 9am UK time you will get better responses as people will see your posts all day.

[Kcdb in reply to bluebug]

Thanks bluebug. Didn’t even think of the time difference ??? Thank you

[Marz in reply to Kcdb]

Lots of very helpful replies in your previous posts. Click onto your name and all will be revealed 😊

[Maggimay in reply to Kcdb]

Hi l often don't reply to posts because l don't have the expertise like folks on here and don't want to clutter thread up. Also though l often feel like you and don't have the energy and don't want to add to the gloom. Thought l would answer in the interests of solidarity. I know how you feel. Am in UK Hope you feel better. x

[Milpol in reply to Maggimay]

I feel like it too, every day. Am worried life is passing me by, but don’t have the energy to do anything about it 😳

[SarahG76]

My mood was pretty horrendous approximately 4 months ago, to the point my GP wanted to put me on antidepressants (which didn’t work for me so I stopped taking them) I did however start taking a magnesium supplement which has helped immensely with my mood, sleep and headaches.

This maybe some yo-yo I may like to look into 😊

I do hope you’re feeling better soon, I can rmpathysith you, when you get your results there is a wealth of information within this group x

[Hidden]

Hi - I totally know how you feel - I thought it was all in my head and I was just being a total lazy slob I got up and went to work and came home and did nothing and no inclination to do anything

I have been on 50mg Lethyro for 4 weeks now, I actually can feel a difference - I have a long way to go, I know, as I need to get retested in 2 -4 weeks and I am sure the meds will be increased

I am so looking forward to feeling fully human again

Wishing you all the best on your journey

[Hidden]

I felt a bit like you 18 months ago but now I feel fine. I self medicate according to my blood test but mostly from the advice from the good people on this site. I never visit the doctor for a start.

You will get better there is light at the end on the tunnel.

[Maggimay in reply to Hidden]

Bunny Jean l get latest results tomoz after taking advice on here re supplements Hope to follow your lead once l post them. Hoping Kcdb and me will follow you to feeling fine x

[Hidden in reply to Maggimay]

Good luck

[Kcdb in reply to Hidden]

Thank you bunny Jean !!! So wonderful to know others have figured it out!!!

I have tried all kinds of combinations of t4 , t3, NDT, etc.

basically starting over with a dr I REALLY have confidence in . Wants to see me bi weekly until figured out .

Currently on tirosint 50 mcg (t4) for five days / week and 75 for two days.

Off t3 now for three weeks and just had labs drawn - not that she treats by labs - but hoping to find patterns / clues. T3 definitely is needed - but can’t tolerate it. Makes depression and anxiety worse . I’ve never taken it in small doses like 2.5 mcg - always started with 5 or higher . Have appt today . We will see .

Thanks for taking time to post !!

[Hidden in reply to Kcdb]

Your welcome

[marigold22]

Yes, sadly it's how it seems to be. I felt like that on and off for many years until I got my dose correct, discovered I needed T3 instead of T4, and that I had Hashimotos and not straight forward Hypothyroid. It's best if you can ask your GP to do the one of the two thyroid antibody blood tests to see if it's raised. To get the two, you would need to pay for a private blood test unfortunately. If it is Hashi's, then you will have to work on reducing the inflammation that Hashi's causes in your body.

[Kcdb in reply to marigold22]

Thanks marigold22. I have had the antibody test several times - negative .

I was on t4 only for 8 years and functioned fine . Despite being on antidepressants and stimulants ???

I was engaged in life and never felt “ unwell “. I’m sure my thyroid wasn’t optimized - but this was 10 years ago.

In 2008, I had tubal ligation - never been put under anesthesia before - and woke up a different person .

Ten years desiring to engage in life.

I was put on armour after surgery - and felt good for 6 weeks then crashed .

Went on to be treated for Lyme , mold, gut, everything . I honestly believe it stems from thyroid not being optimized . I really think that the practitioners I have gone to over ten years are trying to treat everything possible when perhaps should have concentrated on thyroid. I have recently come across the work of Ken Blanchard and he explains t4 depletion when on NDT. I believe this is why I felt worse on armour 10 years ago.

Anyway , going to experiment with small doses of t3 and see.

Thanks again for your reply. It helps so much to know I’m not alone

[marigold22 in reply to Kcdb]

There are two thyroid antibodies that need to be tested. The NHS tends to do only one of them. My own NHS antibody returned as ok, but then in January 2017 I did a private blood test for both. The other one was very high, so I do have Hashimotos but the NHS never discovered it because of their ignorance and/or saving of money to do both tests. I'm sorry, I can't remember, have you had recent up to date bloods done for all the usual thyroid tests? TSH, Free T4, Free T3, Two Antibodies, vitamin B12, vitamin D, ferritin, folate? Without all that info, you won't really know where your body is. If you felt different after a general anaesthetic, your body maybe went into trauma. So maybe your adrenals are very low too? That happened to me.

[Gambit62]

you sound like you are in pretty much the same place as I am in.

I've been here before with B12 deficiency

Currently trying to figure out ways of getting out of it in relation to hashimotos - suspect the next step will be to try and find a good endo - at least one I can talk through what is going on with as I think its not just thyroid (my big crash came after being started on levo - was coping fine before that.

If you get the medication right then you will feel perfectly okay again - know I will but I do find myself wondering if I want to go on, but also know that that is actually a stress response.

Take a look at my profile in relation to getting your life back (though it's in relation to another condition)

healthunlocked.com/user/gam...

and take a look at this post in relation to the thoughts

healthunlocked.com/couchtob...

No magic wand though

[Kcdb in reply to Gambit62]

Thanks for your reply Gambit62.

I’m sorry you are in same place .

Feeling horrible definitely keeps stress response engaged - a catch 22 for sure. I look forward to reading the links !

Thanks so much for taking time to respond .