Newbie

[Topazgold]

Hi could someone please advise me where I can get T3 from. Despite having a clinical need for it I had it stopped by my endo in August 2017. I take 150mcg Levothyroxine thank you.

[SlowDragon Administrator]

Who stopped it ? GP

Did you originally get advised that was clinical need by NHS endocrinologist. If so it should not be stopped

Contact your MP

Email your story to Thyroid UK

They are collecting cases of T3 being stopped

Also go back see GP with copies of British Thyroid Association guidelines

If you PM me your email. I can email you the PDF

BTA website been taken down (very suspicious that only professional body that put out very pro T3 guidelines now has no website)

Clutter has some links too on how to fight this

Meanwhile yes you need an alternative supply. Suggest you inform GP that you will be forced to buy overseas with all the risk that evolves

Thyroid UK email

[e-mail]

Scottish parliament debate on T3

scottishparliament.tv/meeti...

[Topazgold in reply to SlowDragon]

New endo stopped it previous endo said I need it thanks

[Clutter]

Topazgold,

If your CCG or GP had stopped your T3 you could have appealed it but I'm not sure there is much you can do as your endo stopped the T3. Was your Levothyroxine dose increased to accommodate the withdrawal of T3?

[Topazgold in reply to Clutter]

New endo stopped it and previous endo said I need it. Levothyroxine not increased

[Clutter in reply to Topazgold]

Topazgold,

Has previous endo left the hospital? New endo obviously doesn't know what s/he is doing if Levothyroxine dose wasn't increased. How much T3 were you taking?

BTA issued FAQs guidance in Dec 2016 to patients, GPs and endos about withdrawing T3. Gist was that patients doing well on T3 should be entitled to stay on it and should not have it withdrawn for financial consideration.

This is the link but I've been unable to access the website for a couple of weeks so you may not be able to read it british-thyroid-association...

[Topazgold in reply to Clutter]

Hi previous endo left the hospital and was taking 10mcg T3

[Clutter in reply to Topazgold]

Topazgold,

10mcg T3 is equivalent to 30mcg Levothyroxine so if you were optimally dosed on 150mcg + 10mcg T3 new endo should have raised dose to 175mcg Levothyroxine and retested 6 weeks later to check dose was sufficient.

It's very hard when endos impose their bias against T3 and withdraw it from patients who were doing well taking it. Not sure there is way around it without seeing another endo who is in favour. If your endo is not the consultant perhaps you can request an appointment with the consultant to discuss reinstating T3.

The T3 you can get without prescription will be 25mcg. I suggest you quarter the tablet with a pillcutter and start with 6.25mcg and if you feel the need to increase take a 2nd 6.25mcg dose at bedtime. You need to ensure FT3 remains within range.