Weight loss ... : Hi everyone, For the last 1... - Thyroid UK

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Weight loss ...

GeekyMummy profile image
7 Replies

Hi everyone,

For the last 11 months my weight has stayed the exact same no up or down. I have Hashimoto’s which resulted in Hypothyroidism. I am taking Levothyroxine 50mg.

I only drink water have for over 10 yrs. I don’t eat sweets, I don’t eat chocolate, I don’t drink caffeine. I tend to not really have any gluten either unless I have the odd item here and there within a month. I also jog for 45mins 3-4 times per week and walk my dog daily.

I just wondered if anybody had any tips AT ALL?? It’s quite frustrating as before I turned Hypo I could maintain a decent weight as I exercised a lot.

Any advice welcome!

Thank you :)

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7 Replies
SlowDragon profile image
SlowDragonAmbassador

How long have you been on Levo? It's not a high dose, it's starter dose in fact.

Do you have recent blood test results.

Likely to have low vitamin D, folate, ferritin and B12 with Hashimoto's. Have these been tested

Gluten free does need to be 100% to be effective

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

GeekyMummy profile image
GeekyMummy in reply toSlowDragon

Thanks for your reply SlowDragon.

I’ve been on Levo for only 8 weeks. My doctor won’t test my vitamin levels. I recently did a private test and as part of it Iron was included this was at 20.64umol with the range being 6-26umol so well within normal range.

I am going to go private for Folate, B12 and Vit D because I do have MTHFR gene but the doctor just photocopied my gene test results and never tested my Folate. I know it’s low because my hair falls out terribly and I have half eyebrows. But before supplementing I wanted to know exact levels but Doctors are no help in that department.

My recent test results from a private test two weeks ago where..

TSH 4.98mUI (range 0.27-4.20)

Freethyroxine 13.7pmol (range 12-22)

Total Thyroxine T4 - 92.5nmol (range 59-154)

Free T3 - 4.62pmol (range 3.10-6.80)

Thyroglobulin Antibody - 679.000IU/ML (range 0.00-115.0)

Thyroid Peroxidase Antibody - 90.6IU/ML (range 0.00-34)

Then the doctor did only a TSH test on me a couple of days back and my TSH level was 3.34 so she said no need to increase dose. She also said even if it was 9.99 they wouldn’t increase it until it is over 10 even though there range is 0.2-5.5mUI.

SlowDragon profile image
SlowDragonAmbassador in reply toGeekyMummy

So you need to find a new GP. If your GP thinks TSH of 10 is acceptable, she's way out of line with recent Thyroid treatment.

Any others you can see in the practice

You have Hashimoto's (high antibodies) and with this when on Levo the TSH needs to be much lower than 3.34, Usually around one and FT4 should be towards top of range, around 18-20.

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l. In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l. This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the article by emailing louise.roberts@thyroiduk.org print it and highlight question 6 to show your doctor.

Graph showing average population TSH

healthunlocked.com/thyroidu...

You should have a full Thyroid test 6-8 weeks after any dose change.

Dose increase is normally 25mcg maximum

You need FT4 and FT3 as well as TSH, plus vitamin D, folate, ferritin and B12 tested

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

healthunlocked.com/thyroidu...

About 90% of all hypothyroidism in Uk is due to Hashimoto's

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms.

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

marigold22 profile image
marigold22

As Slow Dragon says, you need to see your latest blood results, or have more done if the last was more than 6 months ago. You won't lose weight if your levels are too high/low. So, get your TSH, FT4, FT3, vit B12, vit D, ferritin, folate, to the correct levels. Then I would suggest cutting out bread, cakes, pastries, sugar and eating mainly protein, good fats (avocados, nuts, even cream), cheese, vegetables, salads, a limited amount of fruit (due to the high sugar content). This may be controversial on here, but I've been sticking mainly to a diet that diabetics would recognise. I feel so much better, although I didn't need to lose weight.

GeekyMummy profile image
GeekyMummy in reply tomarigold22

Hi Marigold,

Thanks for your reply. I’ve posted latest results just above on response to SlowDragon.

I don’t eat bread, cakes or pastries. The only sugar I do have would be naturally occurring in foods such as fruits. I eat nuts for protein usually anyway due to running. I don’t eat cheese as I don’t have a lot of dairy products because my daughter is allergic so I drink Almond milk and don’t have cheese. I could try cut down on fruits but I only eat the RDA, maybe an extra banana here and there but it’s incorporated in to my protein shake.

I’ll check out diabetic diet and have a go, shouldn’t be too difficult as I gave up a lot of unhealthy foods years ago so have no cravings.

SlowDragon profile image
SlowDragonAmbassador in reply toGeekyMummy

You may want to avoid having almond milk everyday

See myth 3

thyroidpharmacist.com/artic...

Also soya is best avoided with thyroid problems

Flouride free toothpaste good idea too

Check your tap water doesn't have flouride added, most don't.

marigold22 profile image
marigold22 in reply toGeekyMummy

The newest research shows that our brains are a high percentage fat. My nutritionist has told me I can eat cream, cheese, full fat milk.

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