Help with t3 please

[Heritage]

Just had a call from my doctor telling me she has been advised all her patients on t3

should be changed to levo. She said research has told them t3 is unstable and can produce periods of hyper. I said to her I expect it's all down to cost which she assured me was not the case!!! I personally don't believe that for a minute.

I told her I was originally on levo which didn't agree with me. She asked what the

problems were and said she would have to write to an endocrinologist to check with him if it was ok for me to stay on it. She also mentioned there was the possibility of a

new medication, not sure what that could be?

I would be grateful for any advise from anyone who has been in my position. I know some people buy from abroad.

Thanks for any help you can give, much appreciated.

[Clutter]

Heritage,

Sounds to me as though the CCG is leaning on GPs. It is purely due to cost, of course. One CCG is incentivising GPs to switch patients from Liothyronine to Levothyroxine. healthunlocked.com/thyroidu...

See healthunlocked.com/thyroidu...

I would write to your GP (cc your MP) and tell your GP that the CCG does not have the authority to tell GPs what not to prescribe and you believe your GP is in breach of GMS contract by with-drawing treatment you have been told you need. Say you have been well on Liothyronine and wish to continue taking it. Attach the BTA guidance for patients and GPs.

The BTA issued guidance that patients doing well on T3 should not have their prescriptions with-drawn. See FAQS for patients and GPs in british-thyroid-association...

CCGs do not have the authority to tell GPs what not to prescribe. Individual GPs, not CCGs, could be found in breach of the General Medical Services contract if they do not prescribe treatment patients have been told "they need".

bmj.com/content/358/bmj.j36...

The GPC has warned that GPs would be in breach of the GMS contract and could get into legal trouble by following the orders and refusing to prescribe patients treatments they have told them they need.

gponline.com/gpc-warning-ig...

Please complete the NHS England Survey re withdrawing Liothyronine prescriptions. engage.england.nhs.uk/consu...

Please also sign the petition requesting better thyroid diagnosis, testing and treatment. change.org/p/itt-campaign-g...

If members can recommend anyone they will send you a private message. To read a private message: support.healthunlocked.com/...

To send Heritage a private message: support.healthunlocked.com/...

[Heritage]

Hello

Thanks so much for all the useful information. I know it will be a great help

when I next speak to the doctor. To be honest its so nice to know people

here understand how difficult and frustrating living with thyroid problems

can be.

Thanks again