saw a doctor to day: I went to the hospital today... - Thyroid UK

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saw a doctor to day

ovey123uk profile image
14 Replies

I went to the hospital today to see the first thyroid expert I've ever seen, which is a disgraces that anyone working within the NHS can cool themselves a thyroid expert within the UK. If that doctor thinks he is an expert in thyroids why isn't he an expert in thyroid medication. I take T4 and even though my lab test is always showing my levels are in normal range I'm barely able to look after myself let alone my family. I'm having Hypothyroid symptoms day and night which no doctor believes because my T4 is always showing it's in normal range. I feel I'm being left ill because T3 isn't allowed to be proscribed down to there cost. Anyone who suffers and still feels ill whilst taking T4 is denied there still suffering with Hypothyroid symptoms down to money (which I'm able to understand) but when an expert in thyroids is willing to keep you ill down to there health provider banning them from being able to use con-bind medication or T3 it's a scandal. This means that thyroid experts throughout England have gone agents why they become doctors in the first place and have began acting totally corrupt because they swear on oath they would serve there patients to the best of there ability and didn't swear on oath they would deny there patients medication because of it's cost. Why isn't anything more being done to stop this scandal taking places.

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14 Replies
SlowDragon profile image
SlowDragonAdministrator

Have you got recent tests and ranges you can add. Members can advise

Do you know if you have high thyroid antibodies?

Ideally you also want vitamin D, folate, ferritin and B12 test results if you have them

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw or

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after.

ovey123uk profile image
ovey123uk in reply to SlowDragon

Thanks for your reply. When seeing the Endocrinologist he sent me for a blood test. On the blood test from there was T4 written and T3 written in a different box. I'm sure I saw antibody written somewhere on the form but cannot remember now, but he never spoke about vitamin testing therefore I'm going to request this thanks to you. Do you think he should of known to get my vitamin tested and just didn't bother or do you think this is showing he isn't an expert in thyroid disorders. Thanks

SlowDragon profile image
SlowDragonAdministrator in reply to ovey123uk

In 22 years and numerous visits to over 6 different endo's not one ever tested my vitamins

They seem, even now to have little idea

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw or

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after.

ovey123uk profile image
ovey123uk in reply to SlowDragon

THANKS FOR YOUR HELP. I will let you know how I get on.

SeasideSusie profile image
SeasideSusieRemembering

If you've seen an endocrinologist then most of them are diabetes specialists, there are very few thyroid specialists. It's not worth seeing an endo, most haven't got a clue how to treat the thyroid.

ovey123uk profile image
ovey123uk in reply to SeasideSusie

Thanks for your reply, it was very interesting reading your response because I did see an Endocrinologist who told me he was an expert in thyroids. Is there anyway I'm able to find out if he was properly qualified and a real expert on thyroids. Can you also advice me on how people truly get to meet a thyroid specialist with in this country. Thanks

SeasideSusie profile image
SeasideSusieRemembering in reply to ovey123uk

Louise has a list of 'thyroid friendly' endos. louise.roberts@thyroiduk.org You can ask for feedback from members of the forum on any that you can get to, replies will have to be by private message.

As far as I know there is no 'qualification' that enables you to identify a 'thyroid expert'. All endos are likely to say they are thyroid experts, in reality most of them are diabetes specialists who pretend they know about the thyroid. That, of course, applies to the NHS.

For a real thyroid expert, the only one I know is Dr Peatfield who has helped numerous members here to wellness. He truly understands it, is hypothyroid himself, but gave up his license because he was hounded by the GMC for not toeing the NHS line. He now sees patients privately but he cannot prescribe although he does suggest what to use and where to get it.

ovey123uk profile image
ovey123uk in reply to SeasideSusie

Thank you very much for your assistance, it will help me greatly.

Shelley1954 profile image
Shelley1954

There are some good endos out there, few & far between but worth seeing. Email louise.roberts@thyroidUK.org for a list of those endos patients have recommended. NHS choose & book should allow you access to those outside of your area.

ovey123uk profile image
ovey123uk in reply to Shelley1954

Thank you so much I have just requested the list.

SlowDragon profile image
SlowDragonAdministrator in reply to ovey123uk

Get full blood tests FIRST before consultation and take results with you

Or get bloods tested and come back here first for advice on what supplements you need - on a new post

ovey123uk profile image
ovey123uk in reply to SlowDragon

Thank you very much / Good advice cheers

wowserclo profile image
wowserclo

Same boat. Uncannily similar. Apparently my levels are optimal and I'm just a crazy lady. X

ovey123uk profile image
ovey123uk in reply to wowserclo

We must somehow be related because that's truly how my doctors see myself. Unfortunately I couldn't care less about what my doctors think and until I get what I'm after I will keep haunting there doctor sugary and already I'm sure they wish they never started this battle with myself. Good luck please keep fighting and always if possible go to your doctors with someone else. I only got my appointment at the Hospital by not leaving my doctors consulting room and giving them no chose but calling the police out on myself. My doctor wouldn't listen to myself, so in return I would listen to my doctor when asking me to leave her consulting room. The police actually supported me. I had took along two other people who supported me and identified when the doctor tried lying about what had took places within her consulting room between us. I also had took along a book on hypothyroidism which made the police want to know about my condition. They didn't make me leave the doctor sugary until another appointment was made for me to see another doctor two days later. Which I attended and I'm guess this doctor didn't really get given much chose but to listen and make my referral. Obviously the referral didn't go as planned but he did request a second opinion, so I'm going to request to see another doctor who is on the list of endo's helping people like our self's and has been know to proscribe T3 to his patients, I guess If I ever get to feel better again the fight will have been worth all the pain but who knows.

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