Borderline tsh receptor antibodies

[Justiina]

Oh well just got my results and it's borderline, but the nurse said it needs to be handled by specialist as it's mildly positive according to reference range.

This test did not separate blocking /inhibiting antibodies. My TSH is 3.2 now.

This test was ran because I have had chronic yersiniosis. One doctor suggested I could have Basedow instead Hashimoto.

[maxart]

That seems like high TSH. Normally I think the aim is to be under 1.0 ...

How are you feeling?

[Justiina in reply to maxart]

I am not medicated and I feel beaten my TSH has been fluctuating between 2.9 -3.6 but my GP has not trialed levo until my TSH reach 4.

[maxart in reply to Justiina]

😣 so sorry to hear that. There seems to be an over dependence on blood tests which I think aren't always reliable. Have you read Barry Durrant-Peatfield's book? He gave me such hope.

I've had to self-medicate T3, with dosage on trial and error.

Much better now, but surely it shouldn't have to be this way?

[Justiina in reply to maxart]

Self-medicating is not actually an option in Finland as you cannot order meds without prescription and I cannot afford to travel at all But I am now getting referred to another doctor because of mildly positive TSHrab. Will see how it goes!

[maxart in reply to Justiina]

I hear your pain. We can't get T3 either with or without a prescription. I order online from a site abroad 😔

[Justiina in reply to maxart]

In Finland you can get T3 easier than in UK at least for now, but ordering without prescription is impossible unless you go gambling and hope customs won't pick it.

It's a shame how difficult the situation for thyroid sufferers is!!!

[maxart in reply to Justiina]

It really, really is. Good luck with everything

[Justiina in reply to maxart]

Thanks

[nightingale-56]

Good luck with the new Doctor Justiina .

[Justiina in reply to nightingale-56]

Thanks the rogue doctor who told me to get tsh receptor antibodies hopefully will help. Have emailed him and waiting what he has to say.

[nightingale-56 in reply to Justiina]

I like rogue doctors. They very often seem to be the ones that get to the bottom of things. We have now lost the very good locum doctor at our surgery. Do let us know how you get on with being treated, as I am sure a lot of us here think you should be.

[Justiina in reply to nightingale-56]

It's sad we have only few good ones !! Seems it applies to most countries.

Mine is one of those very few (only 10 in Finland who truly understand thyroid) who understand the complexity of autoimmune disorders.

I wish more doctors would have the passion for help!

Naturally I will keep you posted as this has been a journey I wouldn't have been able to do without support and knowledge of HU!

[Clutter]

Justiina,

It's not uncommon for Graves/Basedow patients to have Hashimoto's in tandem. Graves/Basedow cause hyperthyroidism but your TSH 3.2 indicates you are becoming hypothyroid.

thyroiduk.org.uk/tuk/about_...

[Justiina in reply to Clutter]

Thanks Clutter! Excellent link. I have had borderline TPOAB in my past but being gluten, dairy and sugar free might keep my antibodies low most of the time. Never got them tested while I was on "normal" diet so hard to say!