Thyroid UK
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hyperthyroid and ME

Hi

I am new to this process and feeling very unsure how to proceed but here goes!!

I was diagnosed with Hyperthyroid back in March and have tried taking Carbimazole

and PTU. I had to stop taking them as I couldn't function at all. I have had ME for

15 yrs I am not sure if it was the medication itself or my intolerance of lactose that caused the problem. I am trying acupuncture and Chinese herbs at the moment.

I wondered if else has a similar story or any advice

.

I

3 Replies
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Many people, I have read, are diagnosed with M.E. or CFS as they've never had a blood test for their thyroid hormones or result wasn't high enough to be diagnosed with hypothyroidism.

Before blood tests and levothyroxine, we were diagnosed upon our clinical symptoms and given a trial of NDT that was before ME or CFS were 'named' as apart from hypo.

thyroiduk.org.uk/tuk/about_...

As you could not take Carbizamole maybe your TSH was very low and they thought that you were hyper.

I shall give you a link for hypo and one for hyper.

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

I am not medically qualified and am hypothyroid.

When you get blood tests for hypo always get the very earliest test, fasting (you can drink water) and if you were taking thyroid hormone replacement you'd allow a gap of 24 hsur between dose and test and take afterwards.

Always get a print-out of the results with the ranges. Ranges are important for members to comment upon them.

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Thanks so much for your reply. I think years ago my thyroxine levels were borderline low but over time they rose to about 10 and stable for a long time

Now my T4 level is 28 TSH < 0.001 T3 low and Antibodies present Although T4 levels are only a bit above normal I am symptomatic and I think I have had this problem for a couple of years

As my pulse rate and BP are normal I don't want to consider Iodine or surgery right now so am looking for advice and information on how best to manage this

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I am sure if members have some knowledge/experience they will respond.

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