Too Exhausted to even walk: Can someone just tell... - Thyroid UK

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Too Exhausted to even walk

abby3216 profile image
19 Replies

Can someone just tell me if when adjusting thyroid meds, do you just feel More than awful? My doctor is taking me off from Naturethroid and in the meantime, adding Levothyroxie and then will stop that and go back to Armour. I just feel so badly all the time.

I can sleep ok at night but never in the day but I physically feel So Ill all day long. Yes, recently had bloods and will post them later. Actually too exhausted to go find them now. I just need to know....can you describe HOW awful you feel with Hashis Please.

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abby3216 profile image
abby3216
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19 Replies
abby3216 profile image
abby3216

Ferritin 121 (11-200)

Free T3 3.8 (2.5-3.9)

TSH 0.01 (0.45-5.33)

CRP 4.16 (less than 3

T4 1.2 (0.6-1.2)

Vitamin D 52.9

Thyroid Pertoxidase antibody 11.3 less than 9

Thyroglobulin antibody above 500

Was taking 1 3/4 Naturethroid but feeling horrid before while on Naturethroid

Now taking small amount of Naturethroid and 100 Levothyroxine

abby3216 profile image
abby3216

I thought I could add labs to my original post but cant figure out how to do it. Just so hot and clammy and cant think.

humanbean profile image
humanbean

What is the purpose of the "adjustment"?

And why do you have to go on Levo in between the Naturethroid and Armour? Why not just switch straight to the Armour?

One reason why you might feel awful is that someone on NDT of any kind will have got used to having a higher level of T3. If you get it taken away and have to live without it for a while because you are taking Levo you have to hope that your body can create some T3 by conversion. If your body is not good at doing that then the sudden drop in T3 will make you feel dead on your feet.

You haven't said which stage of the process you were at when you got the results you gave. And how long you had been on the dose of whatever you were taking.

To add labs to your original post, you need a picture of your results with none of your personal details showing.

Then click on the square with a v in it at the bottom of your original post, then click on Edit. You can add a link to your picture in the Edit screen. Then click on Post or Submit or whatever the word is.

Your typed in results are easy to read though. So don't bother with a picture this time. :)

abby3216 profile image
abby3216 in reply tohumanbean

I was on naturethroid for two years but never felt well on it.. When I was at 2.5 grains and feeling worse and with no T4' she added levo. Also my Reverse T3 was 19 last time . I don't have the range for that but they said very high on the phone. I don't have any Armour yet but will get it this week.

greygoose profile image
greygoose in reply toabby3216

If your rT3 was high, the last thing you needed was more T4. It would have been better to add in some T3.

Have you ever been on T4 only? If so, do you have any results from that time?

abby3216 profile image
abby3216 in reply togreygoose

I was on Synthroid always until I was changed to Naturethroid two years ago. my other post has the labs from that time but I am contiuning to feel worse.

greygoose profile image
greygoose in reply toabby3216

I don't understand. Two years ago, you said you'd changed to Armour from Synthroid, then you went to Naturthroid, now you're going back to Armour via Synthroid. If Armour didn't work for you before, why are you going back on it?

Seems to me, you've always been under-medicated, and that's why you weren't doing well. But all this chopping and changing isn't going to do you any good.

Also, your conversion isn't good, so you really need more T3 than T4. NDT always has much more T4 than T3, so perhaps that isn't right for you. And adding T4 to NDT is sheer lunacy!

Have you never tried adding some T3 to your Synthroid? That might be the right solution for you, because it's much more flexible. To be honest, I don't really think your endo knows what she's doing.

abby3216 profile image
abby3216 in reply togreygoose

She wants me on Levo only for six weeks. At the rate of 100 to 125. not sure how fast I can increase. Started on 50 mcg but took 100 mcg today and been taking 50 mcg for three weeks.

greygoose profile image
greygoose in reply toabby3216

But, if you don't convert, that's madness. Your FT3 is going to go right down and you will feel worse. Plus, if she was going to go from 1 3/4 Naturthroid plus 100 mcg Synthroid to Synthroid only, you should have gone directly to 125 mcg, not 50. Even then, that's a huge decrease in dose.

abby3216 profile image
abby3216 in reply togreygoose

She told me to take 100 levo today which I did and will continue but add in extra 25 soon?

greygoose profile image
greygoose in reply toabby3216

But what is the point if you can't convert it? You need some T3.

startagaingirl profile image
startagaingirl

Hi - your vit D - what units is that in? It needs to be at least halfway through its range.Have you ever had folate and vit b12 checked? Your CRP shows that you have inflammation somewhere in your body and your GP should be investigating further. Since you have Hashis are you gluten free, taking selenium?

One last point - stop chopping and changing meds, especially between ndt of whatever brand and levo. It shocks your body each time and sets you back again. The rest of your results are fairly good, so maybe you just need a bit of stable time for it all to settle. Sometimes it can take several months after your blood results look good to feel better.

Gillian

abby3216 profile image
abby3216 in reply tostartagaingirl

My vitamin D is in the middle for the numbers. I don't have lab sheet but was told the top of D lab was 100.

I am doing all this under my regular MD doctor. Just not sure where to turn.

greygoose profile image
greygoose

I thought you were on Synthroid. I suggested adding some T3 to your Synthroid. Then you could gradually increase the T3 and decrease the T4 until you feel well.

abby3216 profile image
abby3216 in reply togreygoose

She has me on naturethroid but in the last week transitioned me to Levothyroxine aka Synthroid. if I feel better on this, stay on it. If not go back to Armour. I just cry every day as I feel so awful.

greygoose profile image
greygoose in reply toabby3216

Well, seems to me that that's because you're always under-medicated. Your TSH should be one or under, and your FT3 up the top of the range.

So, to be clear, you are now on Synthroid, right? Ask her if you can try adding some Cytomel to that. But, be warned, you will more than likely have to increase your Cytomel from time to time. Your doctor probably won't understand that, because she seems to like to keep you under-medicated. So, you've got to make her understand. :)

abby3216 profile image
abby3216 in reply togreygoose

I have only been on Synthroid for four weeks from changing over from Naturethroid. ok I will ask her to add Cytomel. I really wanted naturethroid to work for me but she is very smart but as all of them do, freaks when tsh is too low.

greygoose profile image
greygoose in reply toabby3216

Well, you've really got a problem, then haven't you. She's not as smart as all that. And, if she were smart, she would stop swopping you around and give you a decent dose of just one thing for a decent length of time to allow it to work. But, not taking enough of something, and not giving it enough time, is never going to make you well.

If you're taking enough T3, then your TSH is going to be suppressed. There's no way around that, except keeping you sick. She doesn't know enough about thyroid to know that a suppressed TSH is just not a problem. Having a low FT3 is the problem.

abby3216 profile image
abby3216 in reply togreygoose

She said I wasn't converting well and that's why my Reverse T3 was so high. Ok with those numbers...what woud you suggest besides getting a new doctor? Should I ask to stay on Naturethroid and ask for t3 Cytomel?

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