T3 taken away!

[keeponbelieving]

Well it's finally happened. Called in by my GP and told North East Essex are no longer prescribing T3. Guess I will just go away and die quietly somewhere then. Don't want to upset anyone do we? Can I ask admin NOT to close off this thread please. If you are on T3 only and have had your medication withdrawn can you let me know? Thanks.

[Marz]

healthunlocked.com/thyroidu...

Reading your previous post of four months ago has me confused. You stopped taking T3 and others suggested you try NDT. Also there were issues with cortisol - how is that going along ? Also you said nutrients were fine - but as we know fine is sometimes not optimal.

Maybe now is the time to look into NDT to fill the gap ....

[keeponbelieving in reply to Marz]

Sorry - I have never stopped taking T3! Can't get ndt without prescription! We increased the dose and things stabilised now they are taking it off me.

[Marz in reply to keeponbelieving]

There have been lots of posts about T3 - so look around the Forum. If you have had improvements with T3 then you can retain it I believe. Take a look at Clutter - click onto her name and then read her REPLIES where I believe this has been mentioned. Write a new post asking for replies by PM - for a source of NDT from Thailand. Very reasonable I believe.

[keeponbelieving in reply to Marz]

Thanks! It's hard when you feel you have no support.

[Marz in reply to keeponbelieving]

There is plenty of support here if you are on a PC look to the RIGHT of your post and there are 10 similar posts to yours. If on a phone then scroll down and down to find the same heading - RELATED POSTS.

[mpsun]

Not had it withdrawn but can tell you a doctor that wil likely prescribe it in London. But he's private. I pay £40 for 100 tablets (1 grain) and it's worth every penny.

[keeponbelieving in reply to mpsun]

Thanks ! Can you PM me the details? Take care now.

[Dervla123 in reply to mpsun]

Hi mpsun, is that for NDT or T3? Please could you PM his name?

[UStransplant in reply to mpsun]

Could you PM with details please?

[Clemmi in reply to mpsun]

I'd like their details, by PM, please.

[keeponbelieving]

I am thankful for that - but would we need a forum if our doctors were doing their job?

[Clutter]

Keeponbelieving,

Write to your GP and North East Essex health authority appealing the decision as you are well on T3 and attach the BTA FAQS to GPs about switching patients from T3. british-thyroid-association...

[keeponbelieving in reply to Clutter]

Thank you. I have already written to my MP and PALS and will continue to fight this decision. My GP insists "there is nothing they can do" but will ensure they have a copy of the FAQS too.

[Clutter in reply to keeponbelieving]

Keeponbelieving,

Write to your GP practice and to the health authority appealing the decision and attach the BTA FAQS.

[keeponbelieving in reply to Clutter]

Thank you! I will!

[SlowDragon Administrator]

Have you considered taking DIO2 gene test. It might sway the decision

Would your endo give you private prescription?

[Musicmonkey in reply to SlowDragon]

Has anyone swayed a decision by presenting a DIO2 result?

It made no difference in my case, but I was lucky my Endo agreed to oversee my use of T3 which I obtain privately.

My GP supplied a private prescription.

[keeponbelieving in reply to SlowDragon]

Not sure it would help. my niece had it done and sure enough it was positive... I told her to get checked...but Nottingham CCG still said they would not prescribe it - even when the Endo pointed out that no matter how much T4 she took it would not do any good.

She has to travel to Kent to see a private Endo.

Crazy!

[Joesmum]

I collected my 3 tubs of T3 from my pharmacist yesterday.

He apologised for the short expiry dates saying they are now just piling up on the shelves because no one is prescribing it.

I'm lucky. My GP will still prescribe because because my endo says so.

I'm central hypo and have a low conversion rate.

[keeponbelieving in reply to Joesmum]

Well done you! I hope you are well. Yes there is no shortage just lots of cost cutting at the patients expense. My GP is referring me back to the Endo - but I was discharged in 2012 - and I know for a fact he has moved on. Not sure if I want to take "pot luck" or if I should refuse to go!!! There is no clinical need at this point and I am rather suspicious about their motives! But I may be lucky too and he/she will insist....