Red, green and black drugs lists from CCG's are only GUIDELINES they try and impose on GP's. It's not enforceable. (unless you choose to let them get away with it)
Only items on the definitive NHS NHS NHS NHS black drugs list are not prescribable by your GP. It does not include Liothyronine T3.
Don't let CCG's bully you or your GP , work with your GP or another one
check out all my previous posts by clicking on my 'image'
Juliat
Thanks for this advice!
Doctors and endocrinologists are not prescribing, or have stopped prescribing. I know other doctors who were pursued because they prescribed NDT which is a long-standing thyroid hormone, in fact the very original one and many still do well on that today. They have to source their own. The same with T3 now. Doctors will be penalised if they prescribe T3, primarily due to the exhorbitant cost from Amdipharm although they could prescribe other T3's but wont as they aren't licenced.
Doctors penalised how exactly?
by whom?
please expand....
This is one but there are more whose licences were suspended. Dr Peatfield withdrew his licence himself, so he could still advise.
telegraph.co.uk/news/health...
whatdotheyknow.com/request/...
healthunlocked.com/thyroidu...
When Dr Skinner attended the GMC (I think quite a number of times but was found to have no case to answer) there were 2,500 testimonials from his grateful patients bound in red ledgers by the GMC.
I think he appeared about 7 times and it wasn't his patients who complained. He was always found to have treated his patients properly. He was a Virologist who came into 'thyroid' due to being sent patients by other specialists as they couldn't diagnose patients who had 'mysterious diseases'. What Dr S found was that these had hypothyroidism, due to clinical symptoms in which he was trained as a student. He said that we were in a parlous situation due to the guidelines.
He was persecuted for making people well. So obviously more and more and more saw him. Lorraine Cleaver was one who is now well and was on the point of suicide before she joined this forum and luckily he also consulted in Glasgow where she lived. She now has a case going forward with the Scottish Parliament.
Dr Skinner also invited every single endocrinologist in the UK to a Conference to discuss the situation of undiagnosed/untreated patients. One by one they all refused, the last the night before.
We also consulted Drs Skinner and Myhill and others and I agree they were persecuted by the GMC BUT
and its a big BUT they were operating OUTSIDE of an NHS GP practice i.e. 'the norm'
The GMC will always attack the outsider to protect itself and whatever 'guidelines' are flavour of the month (and protect an insider as I have personal experience of too)
Skinner and Myhill set themselves up for persecution in effect. (Sadly the late Dr Skinner came over as rather 'odd' and if you've read his rambling book it did nothing to dispel this impression. Though I do not doubt his intelligence, knowledge and skill.
In the same way that everyone who self medicates and DOSEN'T tell their GP and get regular blood tests is compounding the problem of GP's ignorance and lack of confidence.
When we ourselves operate outside of our local GP practice we too set ourselves apart as 'dangerous' 'misinformed' mavericks to be singled out and cut out. ( and everyone who doesn't say they are self medicating on T3 and feeling better also compounds the problem that Gp's etc etc think T4 alone is doing the job and making things worse)
A GP in a standard practice would not be persued by the GMC for prescribing T3 or NDT for their patients health and within what they consider to be their level of knowledge and confidence (with or without Endo involvment) and with regular follow up checks - that's my view.
Has a GP in a normal doctors practice ever had problems? Apart from having to grow a pair and stand up to a practice manager or the CCG?
There wouldn't be a need for this forum if the 'modern' method of diagnosis/treatment worked for everyone.
Like many on levothyroxine who are well, I doubt they would be on this forum. There'd be no need. Only a newly diagnosed person or one who was suffering due to too low a dose or levo not agreeing with them would join HU.
I doubt a GP in a standard practice would prescribe NDT for their patient and since a few weeks ago T3 has also been withdrawn. When I was suffering, severely, on levothyroxine and I asked to try NDT - refused. I asked for some T3 - refused. I had to find my own way through with the help of TUK (no forum then) otherwise I would have lost a huge chunk of my life - which would have been 10 years so far.
I think Lorraine Cleaver may have a different viewpoint as did the 2,500+ Dr Skinner helped.
He helped suffering patients due to his student training and he came into only by pure chance because, being a Virologist, other Specialists referred their patients to him, due to them not being able to diagnose/resolve the patients' conditions as they were now using blood tests alone for diagnosing.
Why did all the Endocrinologists who were invited to a Conference by Dr S, about the parlous situation of many people who were undiagnosed due to the blood tests but all symptoms ignored, refused. They had nothing to lose but maybe could have learned a thing or two.
Of course most doctors have now retired who were taught as Dr S and Dr P and we now have doctors untrained in diagnosing clinical symptoms.
If our child was unwell, we'd instinctively know something was wrong (they wouldn't be able to tell us). and go straight to the doctor expecting him to diagnose/treat.
They might then refer to a specialist who we'd certainly expect to resolve the situation. Our experts, Endocrinologist, are not fully au fait with symptoms but only take account of the TSH alone. There was a book called 'The Tyranny of the TSH'.
Hi, could you supply me with evidence of this statement - many thanks.
"since a few weeks ago T3 has also been withdrawn."
I WAS NOT in any was disparaing Dr Skinners work but I believe his unusual character hampered his success in changing the minds of Endos and Gp's
Once the GMC went after him he was an outcast and his cause LOST.
No sane Endo would be seen cohorting with him. unjust but true.
Do you think the GMC realised that? ha! Yes I think they did.
We will gain more success in education and change by tackling one GP at a time and one Endo at a time. Even both at the same time.
thanks Julia
Hasn't a GP got to kill a few people before they are struck off?
His unusual character was being straight-forward and plain-speaking. Surprised and astonished that not one other doctor could diagnose/treat those referred to him.
Also he knew the difficulties patients had who had remained undiagnosed/untreated
In has been withdrawn in other areas at different times.
Times report on Extionate drug pricing
'heads up' for patients in Lancashire and South Cumbria wanting a T3 trail ~ "Liothyronine for NEW patients" now allowed by LSCMMG Review.
GP refusing to prescribe T3
Cancer Drug Fund Petition
