Want to come off Lansoprasole: I have a hiatus... - Thyroid UK

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Want to come off Lansoprasole

eghjm100 profile image
32 Replies

I have a hiatus hernia and am taking 20mg lansoproazol sometimes when it gets bad I take 40 mg plus gaviscon I wish I could come off it all but when I try my stomach gets really bad and it takes me 2 weeks to get it under control Any advice pleas is there something more natural that I can take

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eghjm100
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32 Replies
Kalicocat profile image
Kalicocat

I switched to 2 ranitidines per day, then reduced to 1 per day then none. Whenever I feel reflux I use either 4 DGLs or 3 or 4 gaviscons when it gets bad. My reflux is also much better with optimized tsh and T4 levels. When I had gastritis I boiled 7 tblsps of flax seeds in water and then filtered the resulting goo into a jar which I kept in the fridge. Every time I felt stomach burning I would drink the goo. It also helps with reflux. It does this by creating a coating on your esophagus, stomach and intestines. AWESOME solution.

Took about 4 months but it cured my gastritis that had been around for over a year

eghjm100 profile image
eghjm100 in reply to Kalicocat

Thanks for advice like the sound of the goo off to get some flax seed now What is the ranitidine?

Kalicocat profile image
Kalicocat in reply to eghjm100

Ranitidine is Zantac.

soppysokes profile image
soppysokes

We were told if it's 'just' reflux or is due to low acid levels which can occur with thyroid issues then PPI's not necessarily needed but if it is H.Hernia then likelihood is that they will control the hernia better.If you do try to come off them though it needs to be done really,really slowly,decreasing over a good few weeks otherwise the problem will come back with a vengeance-as you have experienced!

Kalicocat profile image
Kalicocat in reply to soppysokes

I have a H Hernia as well. When reflux seems to be really bad I also push down in the epigastric area right below my sternum, this seems to reduce the hernia. Naturopath and chiropractor taught me that.

eghjm100 profile image
eghjm100 in reply to Kalicocat

Wow thanks will give that a try it's mostly pain not reflux

Kalicocat profile image
Kalicocat

DGL is deglycerized licorice. The stuff in licorice that can cause high blood pressure is taken out of DGL.

eghjm100 profile image
eghjm100 in reply to Kalicocat

Thanks can I get this in holland & Barratt

Kalicocat profile image
Kalicocat

I responded to you above just replied to the wrong person. Please read to see what I did to get off PPIs :-)

eghjm100 profile image
eghjm100

Thanks for replying yes I find myself taking more and more and not getting much better and am afraid it will effect my osteoporosis and b12 I do take vitamin s B complex D3 K2 and add calcium to my diet also E and evening primrose oil but feel I would be much better off without lansoprasol

eghjm100 profile image
eghjm100

Thanks for the reply not a distalgesic but PPi digestion tablet but still does have possible nasty side effects

eghjm100 profile image
eghjm100

my mistake each tablet is 30 mg and I sometimes take 2 Had endosopy some time ago which diagnosed HHernia and have been taking Lansoprazol for about 10 years I would probably get more sense out of my Pharmasist than my GP las time I saw my GP he was threatening to stop my T3 luckily I wrot to my CCG and they said they have not yet issued a mandate to their GP's to stop supply and he is still suppling reluctantly tho

Chriskisby profile image
Chriskisby

I used to have lansoprozole and gaviscon for reflux due to hiatus hernia. Since being diagnosed with hypothyroidism last summer (I was very ill) I now suffer from low stomach acid so stopped the lansoprozole. I have to watch what I eat, am now gluten free and have very few carbs as I find these cause pain. I eat small meals and chew well and use apple cider vinegar capsules twice a day, or more often if I feel the discomfort starting. I also drink very diluted lime juice to help with digestion. I find food is much less attractive to me when it causes pain, so I really don't miss overeating. I have lost two and a half stones and use a wide range of vitamins and minerals to add to my healthier regime.

I have learnt what supplements to take from this wonderful website and feel so much better most of the time, though I am still learning. Hope you can do the same. Lansoprozole was no good for me post hypo.

eghjm100 profile image
eghjm100 in reply to Chriskisby

Thanks it's true over eating is a no no will try the lime juice good to know you can get tablet form of cider vinegar as I don't fancy the taste many thanks

I too have been on Lansoprazole for a number of years and also have a hiatus hernia. As a result of a blood test I requested I found that perhaps I'm not absorbing all the nutrients I could be and I believe the route cause of this is the PPI. I have had reflux for many years and took Zantac whenever I felt the rising burning sensation. Lansoprazole was a magic pill for me but...

I tried using Apple cider vinegar but it really didn't work that well and I found myself returning to the PPI. Since then I have started to take Betaine HCl & Pepsin. It appears to be working quite well. I do still get reflux from time to time but I can counteract this by having another tablet.

I also make milk kefir which is a probiotic. There was a mention of it on 'Trust me I'm a Doctor' and they stated that in their trial it was the best one. Fermented milk doesn't sound very appetising but it's OK.

eghjm100 profile image
eghjm100 in reply to

Thanks for the info where do you get the betaine HCI and pepsin from and how do you make milk kefir

Stourie profile image
Stourie in reply to eghjm100

Hi, don't know how to make the milk kefir but betain hcl can be bought in most health stores.

Jo xx

eghjm100 profile image
eghjm100 in reply to Stourie

Thank you for your help

Jean XX

elaine2447 profile image
elaine2447

I think it was mainly because people were taking alcohol with Distalgesics and accidentally killing themselves! I got on really well with them for many years and still have a strip for a rainy day!

elaine2447 profile image
elaine2447

Bit tricky coming off them with a hiatus hernia. I read on the osteoporosis site where quite a few are suffering with reflux and cant take ppi's any more because they cause osteoporosis, they were taking D-Limonene or something like that. I haven't tried it myself as yet.

I got my betaine from Amazon. I got some kefir grains from ebay. Dead easy just throw them in some milk and in 24 to 48 hrs you have kefir. Strain the grains out and start again. The Betaine HCl & Pepsin is working for me

eghjm100 profile image
eghjm100 in reply to

many thanks will give it a go

humanbean profile image
humanbean

One thing I have found helpful is slipperly elm capsules. I've also read that marshmallow root is helpful but haven't tried that myself (yet).

Do you have a "sliding hiatus hernia"? It's where a small portion of the stomach ends up in the oesophagus. Apparently with physical manipulation some people can get their stomach out of the oesophagus. Look on youtube for "sliding hiatal hernia" (which is how the problem is referred to in the US). There are loads of videos on the subject.

eghjm100 profile image
eghjm100 in reply to humanbean

Wow never heard of that but it could be as I don't get much reflux more pain and the more I move about the better it gets and sometime if I can inflate my chest it also helps will have a look.

The biggest problem is going cold turkey with lansoprasole as it seems pointless taking things to increase the acid if i'm taking lanso

humanbean profile image
humanbean in reply to eghjm100

I was on PPIs about 10 years ago and stayed on them for a few years. It took me absolutely ages to come off them. I didn't know anything about PPIs or reflux or the causes of it, or even that it probably had something to do with being hypo.

I definitely couldn't cope going cold turkey. I had to switch slowly from PPIs to ranitidine (trade name Zantac), then I gradually reduced the ranitidine. During the whole process I swallowed enough Gaviscon and similar products to fill a swimming pool I think.

I managed to come off ranitidine, and slightly reduce the Gaviscon eventually. But then I went on pain killers that needed an acid reducer to protect my stomach from them. So I ended up back on rantidine again.

Aaaaagh!

eghjm100 profile image
eghjm100 in reply to humanbean

sound like a tough time you had I'm not even sure if it is low acid that's causing my problem anc certainly don't want to go through what you did to find out there must be some sort of test that can determine if it is low acid

humanbean profile image
humanbean in reply to eghjm100

If I had known something about the possible causes of acid reflux I probably would have done better. And If I'd known I was probably dealing with low acid rather than high I would have done better.

I never used to look up health stuff on the internet, believe it or not. :)

For a home test for low acid see the options on this page :

scdlifestyle.com/2012/03/3-...

The baking soda/bicarbonate of soda option is easy to do at home.

Some other useful links :

scdlifestyle.com/2012/06/hy...

scdlifestyle.com/2012/03/ho...

scdlifestyle.com/2013/10/4-...

eghjm100 profile image
eghjm100 in reply to humanbean

Thanks so much info really appreciate it

elaine2447 profile image
elaine2447

Hi sorry I was with my daughter yesterday. I doubt they would be in date as they were prescribed for my mother who died 12 years ago. I don't pay too much heed on dates with those type of things. I have bromazepam which are years old and don't seem to have lost their efficacy. I would never risk anything like old antibiotics though. The DG's when I worked in a clinic in Melbourne were plentiful in those days and needed to be with the amount of headaches I used to suffer. I believe the main problem with them was respiratory failure when taken with alcohol. I never noticed any bradycardia. I have always suffered with racing heart probably due to stress and too much cortisol and having a PMV doesn't help either. Just have to be careful as they are from the opiate family but the alternative is codeine which isn't great either and can become addictive.

jacksprat92 profile image
jacksprat92

i had a h.hernia, the pain kept on growing untill my g.p referred me to e,n,t , they did a endoscopy ( which isnt as bad as most people think) i had my h.hernia fixed by them pulling the stomach back through the opening they then put a small running stich round it to stop it coming bk through, i have never looked bk, its wonderful, only 2 drawbacks, i find it difficult to eat chichen and i cant vomit but dr advised me of this before the op, but if thats all i have to allow for theres no regrets

eghjm100 profile image
eghjm100 in reply to jacksprat92

That's worth thinking about Why not Chicken?

I make my own. I bought some grains on Ebay and away I went

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