Hope everyone is doing okay!
Is anyone well clued up on medical guidelines re emergency hydrocortisone injections, for people who are steroid dependent for whatever reason? I've seen this stated on the Addisons support group leaflets, but is there any Nice guidelines or something similar that state for anyone who is steroid dependent, for whatever reason?
From what I understand when taking hc for more than 3 months there is a need to carry an emergency injection of hc , have I understood this correctly? My GP still won't issue one although I'm off to work in rural North Wales in the mountains for a few weeks. I'm on hc 20 mg a day for 6 months,diagnosed privately for adrenal insufficiency by saliva testing . My cd 57 count was -8 , the range is 130 to 300! So my immune system is very low.I have my meds bought for me from abroad as they are OTC so no need for a script, licensed from a reputable pharmaceutical company in that country. The GP says she doesn't have the authority to give an emergency injection and to wait for an Endro appointment, this was a month ago , still waiting for an appointment date! Yes I wear a medi alert , steroid dependent silicon bracelet, carry my blue steroid card and have a seat belt alert too. I take 100 mg of hc tables with me every where!
So I'm wanting to fight this as I have strength in me to do so for others who are also struggling with wrong diagnosis and miss treatment but I m not finding the right guidelines or evidence to proceed.
That's why I'm attempting to find something that states any one using Hc needs to be issued with an emergency injection. So weather it's through a diagnosed condition like Addisons or adrenal insufficiency or it's just through a person taking hc through choice or because they just do! If I can find some info I am happy to take action against this health practice and hopefully help others to be able to do the same. Many GP and Endro s are withholding this emergency injection and that's from their own patients that have been diagnosed through the NHS system. Things need to change it's not good enough to treat unwell people like this , it's hard enough living with this disease without all the hassle that the doctors often give us.
Many thanks for your help.