As the title suggests this is my first post. I have come here because I feel very alone with my hypothyroidism. Family don't seem to understand and I feel that my symptoms are wrecking my life. I have had my dose of thyroxine moved up from 125/150 to 175 today but no matter what dose I take or whether I take it with T3 I still feel the same. Symptoms are:
Crippling fatigue
Muscle cramps in legs
Periods flooding my clothes
Hands and feet going so cold they turn white and tingly
Breathlessness
Pins and needles in legs and feet
Carpal tunnel syndrome
Joint aches and pains
Hair loss
Eyebrow loss
Gritty eyes
Clumsiness
Dizziness
Hypertension
Tremor
Swollen legs
Low confidence
Brain fog
Swollen ankles
Puffy eyes
Looking washed out
I would post my thyroid results but the endo says they are optimal. If I need to do this please let me know and I will do this.
Written by
Topaz33
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Never mind what the endo says, post them anyway! I strongly suspect it will just be the TSH. No need to feel alone, there are thousands of us here. xxxx
If your results were optimal you would be feeling well. Those results show there is scope to increase dose to raise FT4 and FT3 and reduce TSH and 175mcg will help to do this.
Hypothyroid patients are often low or deficient in ferritin, vitamin D, B12 and folate which can cause symptoms similar to hypothyroid symptoms so ask your GP to test.
Yes, these results show that you are only just in range, and most people feel better when their T4and T3 are well up in the range, and the TSH is at the lower end of the range.
I can sympathise totally. I've been on thyroxine since may last year. My tsh was 9.28 when diagnosed. I'm now up to 75mg. Daily I feek weak thighs, crippling chronic fatigue, brain fog, off balance feeling as I walk, cold at times, severe anxiety, low mood and it's all led to agoraphobia. Horrible. I also cannot do housework or take kids to the park without a severe crash that lands me in bed for a couple of days with bad weakness and fatigue. I had a crash yesterday. It's a nightmare. I feel your pain.
Yes ask for your results. You can ask your specialists secretary if you call thst department and they may post them to you or even email. I'd then post the results with ranges here for advice.
Have you ever had your ferritin, folate, b12 and vitamin d tested? They can cause a lot of the symptoms you're experiencing.
Also do you know if you have had thyroid antibodies checked? There are two sorts, TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both antibodies are high this means autoimmune thyroid - called Hashimoto's the most common cause in UK of being hypo.
TPO is rarely checked and TG almost never checked. More common to have high TPO or high TPO AND high TG, but negative TPO and raised TG is possible, though rarer.
ALWAYS Make sure you get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results.
If you have Hashimoto's then you may find adopting 100% gluten free diet can really help reduce symptoms, and lower antibodies slowly over time too.
Vitamin and minerals levels are very important. You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D, low stomach acid, leaky gut and gluten connection to autoimmune Hashimoto's
TPO any result higher than 34 & TG any result over 115 equals Hashimoto's
Going gluten free can seem daunting at first, but definitely worth trying. Many of us find it gives immediately significant reduction in symptoms, others it's a more gradual improvement
Masses of gluten free alternatives available in shops. Most supermarkets have a good "Free from" section. M&S & Tesco are my favourites
This is a good way to explain to people as well. There are a number of sites given over to explaining the spoon theory - don't be put off by the mention of disability
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first post, unknown health problem that looks an awful lot like Hashimoto's?
Advice please
Stopping levothyroxine
