I started with a TSH of over 5 and was told to go on 25mcg of thyroxine. After 6 weeks my TSH was down to 3.84 so they put me up to 50mcg. After a further 6 weeks my TSH was back up to 4.2 so they increased me to 75mcg. After 2 weeks on this does I started feeling worse than ever before and because my GP couldn't explain why, I decided to see a private endo.
The endo suggested 50mcg of Thyroxine coupled with 10mcg of Lirothyronine. I managed to get a months worth of this through the assisted conception unit at Guys (as they were the ones who wanted me to get my TSH level down in the first place) but now it is almost impossible to get hold of.
I have felt better since taking this combo but have since learnt that the reason I felt awful on pure thyroxine could have been because it stopped me naturally producing any TSH so I just needed more of it to make me feel better.
I am starting to wonder whether I should ditch the lirothyronine (as it will cost me £200 a month unless my GP will give it to me but they wont seem to) and try a higher dose of thyroxine again. Or should I look at buying an alternative (I've read about cytomel?)
It's really annoying that a private endo would prescribe something that is not possible to get hold of long term!
Any feedback would be much appreciated!