Thyroid UK
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Still Symptomatic

Despite being on 100 m of Levo and recently introduced 10 m of T3, my symptoms persist. I have requested copies of my blood results from both my GP and my consultant so until they arrive, I can't give you any details.

Hair loss, lethargy, weight gain, sweats, sickness, fuzzy brain and eyes, muscle ache - when does it end? Can it end?

I have consulted a nutritionist to see if my diet is contributing in any way but again, until I get my notes, she can't advise efficiently.

Sorry, bad day today - needed a rant, which is now over!

Good luck everybody. Just hope we can all get some relief from this quiet but destructive imbalance!

5 Replies

100 mcg levo, isn't a very high dose. Nor is 10 mcg T3. If you are still symptomatic, the it obviously isn't high enough for you. But, will be interesting to see your blood test results.

Have you had your vit D, vit B12, folate and ferritin tested? The only way I can see that your diet could be contributing to your symptoms is if these are sub-optimal. Or if you are consuming any form of unfermented soy - soy protein, flour, oil, milk, etc.

I think you probably just need an increase in dose. But the bloods will tell all! :)



Yes, vit D was a little low but acceptable, as was B12. Folate and ferritin, no I don't think so. As soon as I get the bloods I will post.

Like knitting fog in the dark without them! Thanks


The low level may be acceptable to the NHS/GP but ideally these levels should be in the upper ranges to benefit you.

1 like

I was going to say, acceptable to whom? Your doctor doesn't have to live with them!

B12 is optimal at 1000. Vit d and ferritin need to be at least mid-range, but better at 100. Folate should be at least mid-range. Anything lower and your body will not be able to use the hormone you are giving it.

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Also have you had thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's, the most common cause of being hypo. NHS rarely checks TPO and almost never checks TG.

If you have Hashimoto's then you may find adopting 100% gluten free diet can help reduce symptoms, and lower antibodies too.

If you can not get GP to do these tests, then like many of us, you can get them done privately

Blue Horizon - Thyroid plus eleven tests all these.


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