abnormal thyroid lab result on a 11 year old girl. - Thyroid UK

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abnormal thyroid lab result on a 11 year old girl.

marcelin2000 profile image
11 Replies

hi guys, I'm new in this forum. I'm going insane after my daughters lab result came high . She has no symptoms (at least the ones mentioned by the dr. or in any other page I have read) but yet, the results are still high. Her thyroid peroxidase are at 476 (<9iu/ml) and the TSH at 10.20 (miu/l) I was advised that this could happen in a lot of girls who are going through puberty (she is phase two, she den's have her period yet) and that it could eventually go back to normal levels but it could also be Hashimoto disease. I can't sleep thinking of what all of these means. Can you give me some guidance/info based on your experience? I will be eternally grateful for your comments.

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11 Replies
108Optimist profile image
108Optimist

She has no symptoms (at least the ones mentioned by the dr. or in any other page I have read)

So what symptoms does she have?

I think Hashis can be ID by a thyroid ultrasound. And well managed by avoiding dietary intolerances (gluten especially), healing any gut issues, and taking natural (or pharmaceutical) thyroid hormones.

TSH and TPO alone do not give a full picture.

You need to know freet3, free T4, TPO, TgAb, TSH, and even reverse T3.

Did tha\ey do any other labs?

If it is something transient then I would assume (but dont know) that it could be managed and monitored.

Most people may be asleep now but this is a very helpful forum and I am sure others will get back to you tomorrow.

You could also let us know what your doctor/endocrinologist intends to do now?

If you dont have all the lab tests you can ask for a print out and make another post with them on.

Im not surprised youre going insane - that is your little girl! Try not to worry too much as even if it is hashimotos she can still have a great life and it is even a blessing to find out now rather than 20 years time.

Unfortunately, the detective work required may take a little time, so settle in and bit by bit you will reveal more and learn more and feel more and more empowered every day. Its okay of you cannot stop worrying but if you can take a deep breath and trust that this group will support you more than you can imagine.

Take care

Treepie profile image
Treepie

On the face of it she has Hashimotos given the antibodies and the high TSH.But it can be transient. If there are no symptoms apparent I suggest testing again in Six months.But if no symptoms why was she tested?

jimh111 profile image
jimh111

I assume there was something that prompted the doctor to run a thyroid test. Maybe she has a goitre (enlarged thyroid) or some symptoms? The peroxidase antibodies can destroy the thyriod gland in which case she would need to take levothyroxine for the rest of her life to replace the hormone she no longer produces. This is called Hashimoto's disease, it is very common. Most people on this forum have much more complicated thyroid disorders, most patients do very well on levothyroxine.

As the thyroid produces less hormone the TSH rises quite dramatically. A TSH of 10.20 is usually associated with symptoms, but it depends on the individual. The high antibodies will usually result in an underperforming thyroid but this is not always so, it can be a transient condition. The doctor should arrange for a follow up blood test in a few months time. If she should start showing symptoms such as tiredness, unusual problems with school work, dry skin or weight gain then you should ask for another blood test and pehaps a prescription of levothyroxine.

If she should become hypothyroid let the school know so that they can make allowances whilst she is recovering. Please don't be concerned, this is treatable and usually the treatment works well.

Well done, brilliant to have found this so early. I'd expect her to be a bit more tired than her peers. If it is chronic lymphocytic thyroiditis, and I expect it is, it is treatable.

DrRebeccaChicot profile image
DrRebeccaChicot

Just to reassure you - I was diagnosed with Hashimoto's in my twenties after my GP noticed I had a goitre. I'm now in my forties and still no symptoms. I'm now trying to reduce the antibody levels with gluten free diet and supplements but it really has had zero impact on my life so far except I get worse colds in winter. I know it's awful when your daughter gets a diagnosis (my daughter was diagnosed with autoimmune neutropenia as a baby...now recovered....and coeliac disease....fine now on gluten free diet.....we obviously have an autoimmune disease predisposition). If it is Hashimoto's, which is very common in females, try not to worry. One good thing about many thyroid conditions is that they are manageable and I'm still on no treatment after over 20 years with Hashimoto's but will probably go on a low thyroxine dose in September (which I should have done sooner to protect my thyroid gland). Hope that reassures you a little bit, you are a wonderful and caring mum x

Katepots profile image
Katepots

I will have had Hashimotos as a child but not diagnosed until my late 30's so although it is very stressful when your child has any illness you have caught it early so it will be far less troublesome.

Hashimotos thyroditis is an auto immune disease that is very common.

She really needs to be absolutely gluton free and sometimes dairy. This is a pain but gluton is imperative to avoid so as to keep the Hashimotos in control. Do some research on leaky gut. She is probably tired more than normal. How does she get on at school as you get brain fog so concentration may be difficult. Vitamin deficiencies run hand in hand with Hashimotos. Check vitamin D, B12, Ferratin and folate levels.

Dr Datis Khazzarian has a great website and a couple of really good books.

Paleo mom website is good.

The immune system recovery plan book is well worth getting.

Good luck and don't get fobbed off by the Drs. She needs NDT

(Natural Dessicated thyroid)

If also keep a diary of her moods, any bloating after meals etc to see what symptoms she actually does have. The autoimmune recovery plan book has a workbook in it which will help you.

eeng profile image
eeng

About 90% of people with thyroid problems do fine taking Levothyroxine once a day. The other 10% frequent this forum. Don't panic reading stuff on here, your daughter will be fine. I had a friend whose daughter was diagnosed in her teens. Her main symptom was bad nightmares and people were suggesting psychologists until the thyroid results came back. She takes Levothyroxine once a day and is now 31 and healthy, happily married with 2 children and a full time job. Try not to worry because children (particularly girls) are excellent at picking up on other peoples' emotions and then worrying unduly themselves.

SuperL27 profile image
SuperL27

We are going through this with our 11 year old daughter too. She has a goitre, normal TSH but waiting on antibody tests. She has other things going on with the thyroid too. It's so worrying but I've reached the conclusion that if it were anything serious then they'd be doing something right away. It's just a waiting for answers game and a case of doing a lot of research so that you are clued up on things. It all gets very confusing. Don't be afraid to ask questions, I'm getting much better at this now!

Mozzymoo22 profile image
Mozzymoo22

Why don't you get private blood's done? Blue horizon do them, you get a far more comprehensive thyroid function test. The thyroid plus 10 is probably the best one. You get a doctors comments with the result by email. Good luck x

faith63 profile image
faith63

She has hashimotos disease. please get her on the right diet to stop the disease before her thyroid is attacked! Google reversing hashimotos and autoimmune diseases. Dr. Mark Hyman and isabella wentz..same thing.

Eddie83 profile image
Eddie83

There is likely something going on with her gut. You may want to get stool testing to see what turns up. My guess is that you will end up excluding problem foods (gluten & non-fermented dairy especially) from her diet.

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