Does anyone have brain fog or memory lapse !!! - Thyroid UK

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Does anyone have brain fog or memory lapse !!!

Chris1961 profile image
87 Replies

Went up town today and couldn't function in the bank ... Felt so hopeless !!! 

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Chris1961 profile image
Chris1961
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shaws profile image
shawsAdministrator

Hi Chris, Your symptoms are very common with hypothyroidism and it takes several months to gradually feel better.

There's no quick fix but a gradual improvement. You wonder where your energy has gone as well as brain at times. Brain fog is common.

Chris1961 profile image
Chris1961 in reply to shaws

Thanks I feel a failure after today's set back . I can't work or lead a normal life at the moment thought I was doing well until today..feeling so confused and helpless feels like how you imagine dementia must be ...I couldn't wait get home ... Everyday routine can be do stressful 

shaws profile image
shawsAdministrator in reply to Chris1961

Yes, it can be distressing. Thank goodness for the internet as we'd be unaware of what was happening to us at all.

When you know the distressing symptoms, at least you know you're not alone. People are either having them now or are now on optimum and feeling well.

Chris1961 profile image
Chris1961

Am gonna ask my gp for some or buy it myself !!! ... Unbelievable we aren't prescribed it. !!! Thanks 

crazycatlady1901 profile image
crazycatlady1901

I have that all the time, it's awful I forget common words or people's names actually forgot my sons after school care ladies name took me 2 days to remember it!! I've seen the woman everyday for 3 years too 

Chris1961 profile image
Chris1961

It's awful , I had a chest X-ray other week ... The radiologist asked me if I had , had one before ... Knew I had but took me a whole remember it was 2010 !!  ( believe it or not that was when I had graves and my heart was 145 beats a minute ) .. I never felt like this then .. Am worse since Xmas when I got flu ... Reckon I have has his now ?? ... Been ok on thyroxine up till then .. Also , hit menopause ... Not sure if my medication not working as well cos of it ... Love having someone talk to for fear of going mad!!  Thanks 

Chris1961 profile image
Chris1961 in reply to Chris1961

Sorry that should say took a while to remember !!! ( story of my life ) ... And should say reckon I have hashis !!  

Astridnova profile image
Astridnova in reply to Chris1961

Could be many causes, including infection,but you could check that:

(a) thyroxine is not out of date

(b) thyroxine has been kept in the fridge

(c) pork thyroid is not out of date

(d) you do not eat until half an hour after you have taken your thyroid meds

(e) you wait four hours after eating protein and half an hour after eating carbohyrdrates before you take thyroid meds

You probably already know all that but others may not.

Granny56 profile image
Granny56 in reply to Astridnova

Why should thyroxine be kept in the fridge?

Astridnova profile image
Astridnova in reply to Granny56

Because it goes stale and doesn't work if it is stored above a certain temperature.  Your pharmacist should issue instructions with your pills that tell you how to store it.  Generally, unless you are in a hot climate, you can keep it for about a week next to your bed, but most should be stored in the fridge.  You have to keep it in original foil packaging and not move it in and out of the fridge much.  You can find a lot on the internet about this, for instance at this site: remotehealthatlas.nt.gov.au... (copied and pasted partially below.)  To my knowledge, pork thyroid gland extract is okay for about six months at normal temps.  The info about thyroxine storage is relatively new and shows that it is likely that many people were using thyroxine at very unreliable dosages for year, decades.  I used to work in psyche units as an RN and I realise that most of our patients rarely received their thyroid medications in a form that they could actually fully use.  It is tragic.  I tend to believe the theory that big Pharma has brainwashed doctors to use synthetic thyroid hormone (thyroxine) instead of pork thyroid by promoting it as more scientifically measured and indicated, but that the reverse is true.  I think that HealthUnlocked is a marvellous reality tester on such things.

This

document

provides  guidelines  for

the

storage

,  supply

and  issuing  of  thyroxine  in

Department  of  Health  Remote  Health  Centres

and

must  be  read  in  conjunction  with  the

following

information:

-

Issuing & Administering Medicines

-

Repackaging Medicines

-

13

-

08

Storage and Supply of Thyroxine

Communique

Background

Changes in the manufacturer storage specifications now require

that thyroxine must remain

both

refrigerated

and in the

original foil

packaging

in order to maintain the manufacturer

spec

ified  shelf  life

.

The  s

helf  life  of  thyroxine

must

be  limited  to  14  days  if

these  storage

specifications are not met. Storage conditions are detailed

below

.

Many  Remote  Health  clients  use  Dose  Administration  Aids  (DAAs)  to  assi

st  in  medication

adherence.

T

hyroxine is not suitable for inclusion in Dose Administration Aids

due its storage

requirements

.

Supplies  of  bulk  quantities  of  thyroxine  are

also  unsuitable  for  those  clients

that

are

unable  to  meet  the  storage  requirements.

The  unique  storage  requirements  of

thyroxine have led to

development of a separate client supply mechanism

.

Ordering

and Supply

Thyroxine  must  be  ordered  using  the  S100  Pharmacy  Order  Form  provided  by

the

contracted

S100  Pharmacy

.  All  strengths  of  thyroxine  are  listed  on  the

Standard  Drug  List

(SDL) and are to be held as mandatory items.

S100 Pharmacies will only supply thyroxine as

imprest  stock,

not  from  client  prescriptions.

S100  Pharmacies  will  instead  place  a  warning

label on any client DAAs or medication packs where thyroxine has been prescribed alerting

the Health Centre and the cli

ent that thyroxine must be supplied as an additional item to the

dispensed medicines.

S100 Pharmacies will ensure appropriate cold chain management and

monitoring for transport of all cold chain products including thyroxine.

Storage

Thyroxine must be store

d

in refrigerated conditions AND in the original foil strip packaging in

order  to

maintain

efficacy  and  optimum  shelf  life  until  issued  to  a  client.  Only  the  strips

intended for issue should be removed from the fridge at any time.

It is important to note

that thyroxine:

-

allowed  to  warm  to  room  temperature  conditions

(≤25

C)

OR  removed  from  the  foil

packaging

must be limited to a

14 day expiry

-

that is constantly removed and replaced back into refrigerated conditions (i.e.

cycling

in and out of the fridge

)

must also be limited to a

14 day expiry

Issuing

Thyroxine

must

be issued to clients

in the original foil strip packaging

in quantities amounting

to  no  more  than  14

days’

supply

unless  the  client  can  assure  responsible  management

including  maintenance  of

cold  chain

.

Thyroxine  should  be  iss

ued

from  the

Health  Centre

imprest

stock

.

REMOTE HEALTH ATLAS

THYROXINE

STORAGE

, SUPPLY

&

ISSUING

REMOTE HEALTH

ATLAS

INFORMATION SHEET

Storage and Issuing of Thyroxine

Developed by:

Quality & Safety Team

Page

2

Reviewed:  

Endorsed by: 

Remote Health Pharmacy Group &

R

emote Executive Leadership Group

Release Date:

August

2013

Next Review:

August

201

4

If it is re

quired that thyroxine strips

be cut to achieve the desired quantity, t

he strip must be

cut in a manner that

preserve

s the

identification of the medicine name, strength

and expiry

date

on the part of the strip that will remain in Health Centre Stock

.

Labelling

All  thyroxine  issued  to  clients  must  be  labelled  according  to  the  standard  described  in

Repackaging Medicines

.

The following information

must

be

include

d

on the me

dicine label:

-

client’s name

-

name of medicine, strength, form and the quantity supplied

-

prescribed dose, frequency and route of administration

-

date

issued

to the client

-

initials

/ electronic identifier of staff member supplying the medicine

-

location and contact details of health centre

-

expiry date +/

-

batch number

(note

if the client cannot assure cold chain

maintenance

the expiry should be listed as 14 days from the issuing date

)

Additionally a notice should be added to indicate that the medicine be stored in a cool place,

refrigerated if possible.

Example Label

Documentation

Each  i

ssue  of  thyroxine

to  a  client

must  be  documented  in  the  client

’s

electronic

health

record

.

Key Practice Points

Thyroxine is not suitable for inclusion in client DAAs.

Thyroxine must be issued in intervals no longer than fourteen days to ensure the storage

specifications are maintained, unless the client can assure responsible management

includ

ing maintenance of cold chain.

Health Centres must maintain all strengths of thyroxine as imprest stock and store stock

in a manner that will allow for optimum product shelf life.

S100 Pharmacies will supply thyroxine only as imprest stock ordered by Healt

h Centres

and will not individually dispense thyroxine for clients.

Health Centres must issue prescribed thyroxine from imprest stock.

Thyroxine must be appropriately labelled for supply according to

Repackaging Medicines

Eutroxsig 50 microg tablets (14)

(Thyroxine)  

Take ONE (1) tablet oral each morning.

**r

efriger

ate or store in a cool dry place**

John Citizen

HRN:0987654

Batch:ABX234

Expiry:dd/mm/yyyy

H Practitioner

DD/MM/YY

YY

Remote Health Centre Name

KEEP OUT OF REACH OF CHILDREN

Granny56 profile image
Granny56 in reply to Astridnova

Thank you this is interesting. Do you think storage instructions are country specific and refridgeration needed only in hot climates? 

 "Eutroxsig 50 microg tablets (14)

(Thyroxine)

Take ONE (1) tablet oral each morning. **refrigerate or store in a cool dry place**

John Citizen Batch:ABX234

H Practitioner

HRN:0987654 Expiry:dd/mm/yyyy

DD/MM/YYYY

Remote Health Centre Name

KEEP OUT OF REACH OF CHILDREN

 "

My Thyoxine (Euthyrox by Merck Serono) states store under 25 degrees Celsius (which is the same as that mentioned in your link) and protect from light. Instructions on the use of storing them in alternative containers include a warning about the potential for inadvertently using expired medication however, does not state that this method cannot be used.

Astridnova profile image
Astridnova in reply to Granny56

For all climates.

I assume you also know the rules about not consuming food for half an hour after thyroxine and not taking thyroxine for three hours after protein meals or an hour after carbohydrates? Plus to avoid taking it with other medications. There are also some special rules about specific medications.

Sheila N

Granny56 profile image
Granny56 in reply to Astridnova

Yes thanks, I always take my thyroxine on an empty stomach at 06:00h with a large glass of water.

I will email Merck and ask about the refrigeration as this is not included on the patient information leaflet.

Yes, we all know exactly what you're going through. Not helped by the family saying: "Ooh, you're getting dementia." either.

Chris1961 profile image
Chris1961 in reply to

It's scary !! 

misswinky34 profile image
misswinky34

Hello, brain fog is the worst, I once left 60 pounds behind at a cash machine.. Numerous meals sat on the job cooking away to themselves and almost caught fire.. Really scary! I work in a nursery and wAs terrified I would make s mistake. My levels are in the 'normal' 😬 Range but it still comes back every now and then it's been the most unpleasant symptom of hypo I've had. I can cope with the cosmetic side, lbs it and nails and stuff, but I need my brain in tact!! Xx

Chris1961 profile image
Chris1961 in reply to misswinky34

Yeh me you !!! X

Astridnova profile image
Astridnova

Re brain fog, things have greatly improved since I started taking B12 then pork thyroid, but before that I had a wierd thing of saying a word then not being able to recall if I wanted to recall it to repeat it in the next sentence.  It was really really noticeable and embarassing. Also, I used to be driving and suddenly not remember where I was going.  After a few seconds I would remember but it was like a total blank until then. This stopped happening for six months or so until a few days ago, when it really took me by surprise and freaked me out.  Generally though my thinking is 100% better and I have taken up oil painting (which I stopped ten years ago) and making huge progress.  Also have lost weight and can do several things in one day and look like myself, so don't get shocked by the strangely puffy rather stupid looking face in the mirror anymore, which is gratifying.

Chris1961 profile image
Chris1961 in reply to Astridnova

I had that feeling driving too , it's awful ... I seem worse trying handle everyday things such as paying bills and shopping ... It just seems so hard work . It didn't used to . I can't work which is frustrating .. Hoping my increase medication works thanks 

Pastille profile image
Pastille

Hi Chris, yeah I get you, I lost my keys 3 times last year. All times locked out. The last time had collected spare keys left with family and lost those too and had to get locksmith out. I lost my bankcard twice and regularly forget my age!! ( might be on purpose that lol ) I regularly forget dates, pin numbers etc. Once I forgot my granddaughters name when some one asked me after she had just been born. I did remember after a few minutes but that was scary!! Also I forget my words mid-sentence. It is comforting to know you're not alone :)

greygoose profile image
greygoose

Yup, happens all the time. Once, writing a cheque in a shop, I couldn't remember how to spell the word 'four'. I just stood there, helpless, unable to ask for help, unable to admit I was that stupid! lol

I'm used to it, now, I just make a joke out of it. I Don't feel a failure because I know it's not my fault, it's my thyroid.  

Pastille profile image
Pastille in reply to greygoose

GG it's 'foor' !!   he he just kidding :)   (excuse to use smiley face)

greygoose profile image
greygoose in reply to Pastille

Yeah, you shouldn't say that, I might take you seriously!!! Do you know that being unable to spell is a hypo symptom? Wish I'd known that when I was at school!

Pastille profile image
Pastille in reply to greygoose

It's funny you should say that because I was always really good at English language and spelling at school and these days I spell the odd random very short word wrong and think 'That just doesn't look right!' it used to bother me but then things got worse and the spelling was irrelevant ....... :)

greygoose profile image
greygoose in reply to Pastille

Well, to me, that's just more proof that I've been hypo since I was a child - if more proof were necessary! I used to get into a lot of trouble with my spelling, and it really wasn't my fault. I got branded stupid for not being able to spell. :'(

Pastille profile image
Pastille in reply to greygoose

Really? that's awful, and you couldn't be further from it! If only they could see you now, imparting wisdom to the needy, they would eat their 'correctly' spelt words :)

greygoose profile image
greygoose in reply to Pastille

Oh, if they'd seen me for the last... 60 years, they would eat their words!!! I'm pretty sure the junior school stopped me getting into the Grammar School at 11. However, I had better teachers at the secondary modern, who brought out the best in me, and I went to the Grammar School at 13. Since then, there's been no stopping me! lol

However, they would probably just put it down to me being a 'late developer'. Couldn't possibly be their fault! lol

greygoose profile image
greygoose in reply to greygoose

PS they're probably all dead by now, anyway! So, it doesn't really matter.

Pastille profile image
Pastille in reply to greygoose

hahahahah!! :)

Pastille profile image
Pastille in reply to greygoose

I would hope things would be very different now and teachers would try to find a way to bring out the best in a child. Rather than just judging and dismissing them. :(

greygoose profile image
greygoose in reply to Pastille

One would hope... but I have my doubts.

linlow profile image
linlow in reply to greygoose

I know that one! except for me it worked in reverse :(. I did get into grammar school (wouldn't have dared do anything else with a schoolteacher mother) but was ridiculed for what in hindsight were undoubtedly hypo symptoms.  It is pointless crying over spilt milk but I have always felt that I would have faired much better if I had gone to secondary modern.

greygoose profile image
greygoose in reply to linlow

Going by the secondary modern I went too, I have my doubts. But, then again, all those girls I went to school with, fit and healthy and good at games, getting good marks, going on to Oxford or Cambridge, what did they do with their lives? To be honest, nothing much. I Don't really feel I missed out on much as far as education was concerned.

My only regret is that I wanted to go to RADA when I left school, and they persuaded me I wasn't good enough, and refused to support my application. That would have been so great! My head mistress told me, in a round-about way, that I was only fit to be a secretary (no offence to secretaries, but I didn't want to be one!) But, I made it in the end, anyway - not to RADA, but onto the Professional stage. So, ya boo sucks to them! lol   

in reply to greygoose

Me too......13+ success in order to finally get to a school that gave me my best school years.... A Technical school,college and school of Arts......I cried when I left........all a lifetime ago now.......often wondered now whether late development was thyroid but didn't know it at the time.

greygoose profile image
greygoose in reply to

Could very well have been...

humanbean profile image
humanbean in reply to greygoose

greygoose , my spelling is not good now. I used to spell correctly automatically. Now it takes effort.

The worst for me though, is that I have started using words randomly in some circumstances.

Suppose I want to use the word "they're". What will actually come out is there or their, and which one that ends up being used is random.

I have problems with where and wear, right and write, deer and dear - to use the fancy word I think these are called homophones - and there are loads more examples I've got wrong, if only I could remember them!

greygoose profile image
greygoose in reply to humanbean

I think that's a very common problem - even with people who aren't hypo! Funnily enough, I Don't have that particular problem.

But... I've added in an extra problem by living in a foreign country. And, when I'm writing in French (and, it's weird, but I spell better in French than I do in English) but sometimes, I think 'et' and type 'and'; I think 'mais', but I type 'but', etc. It's crazy! It's as if my hands have a mind of my own! lol   

Pastille profile image
Pastille in reply to humanbean

That's what I do. It used to annoy me when anyone else did it now I do it. At least you remembered they are homophones......on the bright side :)

humanbean profile image
humanbean in reply to Pastille

You're giving me too much credit! I had to look the word up. :D

annie-7 profile image
annie-7 in reply to greygoose

Hi greygoose , your comment about shops and cheques has reminded me what happened a few months ago.

I was all set to pay for my shopping by credit card, then a terrible panic came over me, I couldn't remember how to pay by credit card! So, I handed over my card, expecting the shop assistant to put it through the sliding carbon paper machine thingy! Doh! Those haven't been in use for years!

Finally, the shop assistant said "It's contactless, you just wave it at the machine", but could I remember which way around it goes, nope! The feeling of panic was so awful and I felt like a prize prat.

greygoose profile image
greygoose in reply to annie-7

Yes, I can imagine. But, that system must be fairly new, mustn't it? I've never come across it. Here, you always have to stick the card in the machine and then type in the pin code. My problem comes when trying to type in the...

annie-7 profile image
annie-7 in reply to greygoose

Most shops have had contactless here for a few years, (which I don't like, but it is useful when I can't remeber the pin!)

The other that happens is, when talking I can't find the right word, so I try to remember it through association, usually going through a long list of gobbledy gook in the process! My family now ask me how my brain FROG is today!  You gotta laugh, otherwise you'd cry!

greygoose profile image
greygoose in reply to annie-7

Families can be so funny. Not!

veecaa profile image
veecaa

I followed a strict elimination diet to identify what foods I was sensitive to and noticed that when taking even the smallest amount of gluten the brain fog was noticeably worse. 

AnitaApple profile image
AnitaApple

Ditto ditto - I have looked back on my diaries and realise that I have been feeling foggy for a long time! Sometimes at work I would think 'I must write that report' and find to my astonishment that I'd already written it. Scary ! Often I would feel on the edge of all the office banter just 'winging  it' and running on auto pilot . When I try to describing to friends I say its like feeling jet lagged the whole time . 

Chris1961 profile image
Chris1961

Thankyou ... It's nice know I aren't alone 

Pastille profile image
Pastille in reply to Chris1961

It was my daughter who first noticed it with me actually. She noticed before I did. She said I was repeating myself, telling her things I had already told her and when she told me anything I forgot and she had to tell me again :/ P.s I don't drink lol

greygoose profile image
greygoose in reply to Pastille

Oh, I know the problem!!! lol

Ricycle profile image
Ricycle

I was like that until I was optimally medicated and it was other people that encouraged me to go to my GP. I apparently had important conversations with colleagues that I just did not remember and sometimes I would drive somewhere and wonder how I'd got there as I didn't remember any of the journey. 

Pastille profile image
Pastille in reply to Ricycle

Omg!! that is very worrying. Glad you're better :)

annie-7 profile image
annie-7 in reply to Ricycle

Hi Ricycle , over 10 years before I was diagnosed Hypo, I was driving some friends to a particular town.

I had been driving for 30 minutes or so when a voice from the back said "Is this the right way to Falmouth?" I was driving to Truro! I often ended up in the wrong town! (with no memory of how I'd got there!)

Granny56 profile image
Granny56 in reply to annie-7

I did that last week... Scary!

Astridnova profile image
Astridnova

Thank you everyone for those descriptions of your thinking problems.  I would like to hear as much as anyone can tell me.  I recognised quite a few. I'm bilingual and a really good speller and writer, but, me too, I sometimes have to look up an ordinary word just to be sure.  The stuff about paying bills etc., yes, hard work.

Also, from a child, I have been totally hopeless at arithmetic and last few decades find it very difficult to remember phone numbers. In fact I avoid anything with numbers.  I can use statistical graphs and remember complex theories - but not the numbers.  And I know a lot of history - but have to check dates all the time.  In fact I find it really difficult to calculate when something will occur, or to follow a roster.  And I don't have much of a concept of things like 'next Tuesday': always seems to me like a long way away.  My friends are aware of that and they say things like: Well, you know that today is Saturday?  And that Sunday comes after that?  And Monday after that, so Tuesday is in four days...  Generally I function quite well, surprisingly, but dates and long division... not.

greygoose profile image
greygoose in reply to Astridnova

Oh same here! Numbers are terrible! I can't even remember the birthdays of my grandchildren! And the only histroical number I've ever remembered is 1066. Don't ask me why.

And I've only ever memorised two telephone numbers in my whole life - one was our first telephone when I was 19, the second is my telephone number now, at 71 - and that's because both of them were a logical sequence of numbers. The rest, forget it!

Pastille profile image
Pastille in reply to greygoose

1066 Battle of Hastings!! It's the only one I ever remember lol :)

linlow profile image
linlow in reply to greygoose

Probably the most significant year in all English history due to the Norman Conquest and the bringing about of an end to the Dark Ages. Though it might be because of a lately popular book called 1066 and All That.

greygoose profile image
greygoose in reply to linlow

Well, I'm old enough to remember life before the book. lol We often used to go to Hastings when I was a kid, and visited historical monuments, so it probably stems from there. Maybe if I'd lived near Agincourt, I'd remember the date for that battle, but as it is... :)

linlow profile image
linlow in reply to greygoose

Ahh.  I was brought up in Brighton, so not that far away for day trips, but it is my dad's copy of the book I remember.  Funnily enough I was just watching Henry V take the field at Agincourt (and read the wikipedia page on the battle) but I still couldn't tell you the date! :)

greygoose profile image
greygoose in reply to linlow

lol

in reply to greygoose

Perhaps you were a Roman in a school play!!!

I was a Charles Kingsley Water Baby .....my one line....." I decorate the Rock Pools "..... I was six and didn't make the big day .....went down with Bronchitis the week before!!...... Oh, such memories. 

greygoose profile image
greygoose in reply to

Ha ha! I remember I got the role of the Virgin Mary in the school nativity when I was 10. About a week before the production, I went down with Chicken Pox! I was devastated!

No, I never played a Roman soldier. We tended more towards the Greek, and I always got shoved in the chorus. But I did get to play M de la Trémoille in L'Alouette by Jean Anouih one year. No boys in our grammar school, so the larger girls had to play men's parts. lol 

in reply to greygoose

Wonderful memories Greygoose to look back on!!

I too spent years in the chorus or the crowd scenes until my big break in my final year at sixteen when I played Gwendoline Fairfax in " The Importance of being Earnest"

Whenever I see that play now ( it has been on TV) It always seems a bit boring and not how I remember it...............may be because of my stage kiss with a boy from the sixth form!!..............

greygoose profile image
greygoose in reply to

lol Could be that! But plays are always more interesting when we're in them, because we see them from a different angle.  

red_head40 profile image
red_head40

Yes all the time. I have to write every single event or appointment in my diary or calendar or i end up missing them completely(and being charged for missed appts). I have forgot peoples names when im talking to them,including whom i see/speak to on a daily basis,forget what im talking about mid-sentence and feel my face turning red when i get funny looks! (altho this could be to do with menopause/hot flushes,lol)) it is embarrasing especially at work! People must think i am lazy and stupid when this couldnt be further from the truth! Been hypothyroid for 18 years. 

Astridnova profile image
Astridnova in reply to red_head40

I clicked on 'report' for this post, unintentionally.  Sorry if this causes problems.  Please refer them to this post for explanation.

Astridnova profile image
Astridnova in reply to red_head40

Oh I do identify with the missing of appointments that you have carefully written down.  I AM better at this since medication with pork thyroid and B12 sublingual 5000iu.  I am much improved on names, but remember how I would be talking to colleagues and desperately wondering what their names were.  I used to have to remember about 30 patients each morning (in psyche nursing) plus changing rosters of colleagues and doctors, plus meetings where past patients were referred to.  In fact I used to be able to memorise all the patients with the help of a printed list in the mornings, but it would take me TIME to recall their names.  Also, I have a very picture-referenced memory: I tend to remember visual details and I don't know where the hell I store the names mostly - unless they are really unusual, like rumplestiltskin or something.  Also, I still sometimes call my best friend and my partner by each others' names or even the dogs' names.  Sometimes I call my best friend by my name.   This has all improved, as I noted, but I can see that I may have appeared extremely eccentric in the past and it was a great worry.  One thing I could do that most people could not: although I was hopeless at arithmetic, I seemed to be able to recall exact pathology results for a few days after I read them, which made me look very alert in meetings. 

Chris1961 profile image
Chris1961

Mine is combination of hypo and menopause it's so worrying ... Mornings are awful .. I don't want get up ... Spend most of my day worrying about how awful I feel ... Thankyou for your comments , I so relate to them x

red_head40 profile image
red_head40 in reply to Chris1961

Chris1961  I can totally relate to how you feel. Ive just been told im going thru menopause and feel as if lately my symptoms have worsened. The depression,anxiety,panic feelings are all heightened by hormones going haywire. I honestly thought i was losing it. Hang on in there, we are all in the same boat x

Chris1961 profile image
Chris1961 in reply to red_head40

Oh god so glad it's not just me .. I was fine until January ... Been on thyroxine 3 years no prob ... X

Granny56 profile image
Granny56 in reply to Chris1961

Maybe menopause is the root cause of your forgetfullness and not hypo?

When I was in the menopause before being diagnosed hypo, I took the dog for a walk and came back with the lead in my hand. I had no idea the dog was missing. On many occasions I found my keys in the fridge or freezer, obviously got there when putting the shopping away. I also woke up in the middle of the night convinced a plaque of locusts were flying around the bedroom. These were really scary times but my memory improved as did the temporary visual halucinations.

Now with hypo my memory is really bad again, I keep leaving my handbag behind, so far I have been lucky enough to be reminded by honest people but one of these days ...

Chris1961 profile image
Chris1961

I have write everything down too ... I have try live today and stop worrying about tomz ... 

linlow profile image
linlow in reply to Chris1961

just make sure you can remember where you put the note ;)

And don't worry too much, it will get easier.  The best thing is to make a joke of it with strangers - it covers up those oh so embarrassing moments - and enlist the help of family and friends to be patient whilst you have a blank moment.

You need T3. This is how myxedema (hypothyroid) coma starts - brain fog then a kind of state that could be called dementia. Before I was taken to hospital in the first stage of nyxedema coma  I didn't know what year is it or what's my name. Sometimes I didn't know where am I or who am I. 70% of my memory was gone. T3 changed all that and thank God in most cases your mind and memory can return to you like noting ever happened.

Granny56 profile image
Granny56 in reply to

So glad you found a way out of this situation. However, what scares me is getting to that state and it not being recognised as being related to myxoedema by  the doctors.

Chris1961 profile image
Chris1961 in reply to

How much t3 do you take ? 

I get this a lot but it's improved since starting meds. I would actually quite often forget words mid sentence. Leave things behind at home all the time. Walk into rooms and not know why i was there. Also my head would just cut out and I'd go into a trance of just blackness and I'd have total loss of reality then just come back. Like I'd lost that section of my life. Its bizarre and I think the more ill you get with your thyroid the worse it becomes.

Astridnova profile image
Astridnova

On the question of meds, pork thyroid contains all the thyroid hormones and so appears much more reliable. My doctor lets me control the dose.  It is however possible to be on thyroxine (as you can read in many posts) and still not be getting the hormonal mix you require, hence, sinking into myxodema.

I do so appreciate talking about these thinking problems. Could read about it all day!

Pastille profile image
Pastille in reply to Astridnova

Astridnova does your gp prescribe NDT?

Astridnova profile image
Astridnova in reply to Pastille

What is NDT?

Pastille profile image
Pastille in reply to Astridnova

Natural dessicated thyroid. It sounds like your doctor prescribes it to you rather than synthetic T4? pork thyroid?

Astridnova profile image
Astridnova

Oh Yes!  We just call it dessicated pork thyroid.  I take 1grain daily.  It is fantastic.  I also take B12 5000 iu daily. I am so lucky to have found our doctor.

Chris1961 profile image
Chris1961

Seems I aren't alone after all !!! ... It feels like living in slow motion when it happens !!! ... Takes a while for yr brain catch up !!! Thanks to everyone on here I managed get my mess raised to 125 . , 100 was no where near enough !!! ... Am trying eat healthier too ... X

karlos920 profile image
karlos920

I've lost count of the amount of times ive put food in the oven or microwave and forgot about it or i've walked into a room and forgot why I was there still better than I used to be at least I don't fall asleep on the bus anymore.

madmumofmany profile image
madmumofmany

All the time I hate it also panic attacks my forgetfulness often makes me panic which in turn makes it harder to remember

london81 profile image
london81

Ive been dealing with hashimotos for around 18 months, im on NDT and nutri adrenal extra, plus vit c and vit d. I work out and dont drink alcohol. 3-4 weeks ago my issues were bloating, gas, frequently going for loose stools(sorry!). I could somewhat handle that side of things as was going on for years. However the fatigue, brain fog and lack of sharpness was making my life a misery. I was also falling asleep late only to wake up a couple of hours later. I work part time and I'm a single mum, i was cutting short social events and dreading work even though i love the job. I started taking neirozan plus , magnesium spray on my belly each morning and Ashwagandha powder in a glass of water, all added into my early morning routine. Ive also started eating only meat, veg, good fats and hot choc or cereal for a sweet treat( with almond milk. No dairy, low sugar and no white bread, rice, pasta etc. It sounds drastic but im desperate.I feel miles better and the brain fog is essentially gone, im so happy I hope it lasts and I wanted To pass on in case this helps anyone! Will also post on here , I must add Im not medically qualified and can only judge whats best for me, i was also diagnosed by Dr P so cant say that what works for me will work for others, this is my personal story!

vm133 profile image
vm133

I am newly diagnosed but and am shocked at how common brain fog is and how difficult it is to get diagnosed.

My children get annoyed because I have been asking them the same question repeatedly and forgetting their response. I've been studying for an MA and only now realise the really negative impact that this has had on my ability to study. The financial impact is huge - I've changed to part time work from September because I didn't think I could cope with working full time - I've been coming home from working and having a nap and waking up each morning feeling as exhausted as when I went to bed.

@greygoose - have you considered that you might be dyslexic (as well as hypothyroid)? Poor spelling and slow processing speed are indicators.

cph1963 profile image
cph1963

I can totally relate to that. It's embarrassing sometimes :(

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