Hello. This is my first post on a site like this but I am totally lost at the moment and looking for any advice. I'm a 40yr old woman diagnosed with Graves in August. I had been going to my GP regularly for 18mnths complaining of chest pain, blurry vision, shaking, memory loss, extreme fatigue (can sleep for 12hrs and wake exhausted), and constant dizzy feeling. I was told repeatedly there was nothing wrong and I was anxious and overworked being a single mum to a 2.5yr old at the time. My mood rapidly declined as I have always been a happy healthy person and felt I was going mad and imagining my symptoms.
I finally snapped in August this year and demanded tests - the 1st blood test since I had been visiting the GP over the 18 month period. They came back showing I had overactive thyroid. Was put on carbimazole and referred to Endocrinologist. 4 weeks into carbimazole I was feeling progressively worse and I nearly collapsed at work and was taken to A&E. They kept me in for a week as my blood pressure was up and down like a yo-yo, couldn't stand from diziness etc. They think I had an allergic reaction to carbimazole and changed me to PTU. There is no evidence from multiple blood tests that it was an allergic reaction. Could it have been wrong dosage?
Felt no better at all on PTU. Dizziness / headaches/bad vision being my biggest symptom. 15 days into PTU I saw the Endocrinologist. He confirmed Graves and told me to carry on with PTU plus bloods every 6 weeks.
2 weeks ago my joints started hurting. My right hand/arm is particularly weak and I drop things. I have swelling around the base of my right thumb. GP decided to take me off all medication for 2 weeks to give me a rest. This decision made without checking bloods. Said the swelling in my hand is nothing to worry about and has probably always been there. It hasn't! I'm 40yrs old - I know what my hands look like!
2 weeks on no medication I am now completely floored by it. Haven't been able to work. Can't even walk my little boy to school. I am at a complete loss. Do you have any advice please?
I should point out after shouting and screaming and crying I finally had blood tests yesterday but am scared as to what happens next.
Many thanks and sorry for the ramble 😊