Tsh yoyo 1.2-3.4-1.8-2.8: I feel so bad at the... - Thyroid UK

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Tsh yoyo 1.2-3.4-1.8-2.8

Kaylywayly88 profile image
7 Replies

I feel so bad at the moment with a long list of symptoms.

Tsh was 1.2 on 75mcg of levo

Then 3.4 1 week after stopping levo

Then 1.8 4 weeks later

Then 2.8 2 weeks later

What is happening, could me not being able to have restful sleep ie falling asleep easily but dreaming and waking all night be due to this fluctuation

The Drs are saying maybe stress anxiety and depression but my gut tells me it isn't 😢

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Kaylywayly88
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Clutter profile image
Clutter

Kaylywayly, why was 75mcg stopped?

Kaylywayly88 profile image
Kaylywayly88 in reply to Clutter

I started feeling hyper symptoms so freaked out and stopped taking it, then docs said to stay off it so they can take a better reading x

Kaylywayly88 profile image
Kaylywayly88

Are these done on a normal blood test or would I have to request them? Xx

Kaylywayly88 profile image
Kaylywayly88

I'm currently under an endo privately so why wouldn't he have tested them!!

Why is it normal for levels to fluctuate that much?

Were all the tests done at exactly the same time of day under the same conditions (fasting etc)? TSH varies according to the time of day (up to 75%), time of year, whether you have eaten or not. Not a very useful test really.

Kaylywayly88 profile image
Kaylywayly88 in reply to Angel_of_the_North

Only the last one was done fasting in the morning, the two before were late afternoon.

I'm so frustrated at the moment with all different symptoms the worst of it sleep disturbance but I'm on beta blockers and have read they don't help which is no good as I didn't sleep well before.

I'm considering taking a low dose of anti depressants, while they are figuring it all out as I do most days feel down and anxious probably due to some external factors but mostly it's because I don't know what's going on with my health!

Angel_of_the_North profile image
Angel_of_the_North in reply to Kaylywayly88

You'd expect TSH to be lower in the afternoon. I suspect you are undermedicated - but you need FT4 and Ft3 to be sure.

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