More troubles, thyroid or b12?

Just when I start getting over the shock about the hairloss I have noticed a big bald patch on my eyebrow?? AND my eyelashes are basically stuck to my mascara wand. Is this something else to do with thyroid or b12d? It's like a nightmare that never ends. I thought with levels being ok things would get better but no they seem to get worse still with the hair side of things. I'm still working on b12 and aware this could be a prob too but I'm getting so frustrated.

Thyroid sufferers - any pointers? Did yours stop falling out and regrow?

B12d sufferers - advice? Last time my b12 was low at 347 and the doc said she would let me try injections of I got ok from my midwife (17w pregnant at the mo). If my levels get boosted do you think it would get better? Have any of you got any pointers?


23 Replies

  • Sometimes it is another autoimmune Disease and I hope it is just the lack of thyroid hormones. Hair loss is quite common with hypothyroidism. See your GP and see if he has a diagnosis.

    Many people with hypothyroidism find the hair thins and eyebrows, as well as all body hair disappear but it can return.

    You poor thing, you are also pregnant too so I hope whoever is looking after you makes sure you are on optimum thyroid hormones.

    It's not good enough for your hormones to be o.k. they have to be at an optimum level as well as your B12, Vit D, iron, ferritin and folate.

    If you have a copy or get a copy from the surgery make sure the ranges are stated, post them on a new question.

  • What other autoimmune disease could coz this sort of hairloss? I'm convinced I may have alopecia!

    I'm going to the docs on Tuesday to get my 4 weekly thyroid test done so I am going to ask about b12,vitD, ferritin folate and iron can be added on because I need something done about this before I go completely bald. I'm 26 and it's scaring me to death. This is my first pregnancy and I tried so hard for it and can't enjoy it with all this happening. I just need it fixed or hope that I will get there ..

  • I have had Alopecia Areata 4 times at yearly intervals so get GP to check.

    Did your GP increase your levo due to pregnancy. You are right to ask him to do B12, Vit D, iron, ferritin and folate.

    If your blood test for your thyroid hormones isn't at the earliest. Cancel and make an early one, fast, and don't take levo for about 24 hours between your last dose and the blood test. You can drink water. This helps the TSH remain at a higher level and some doctors reduce our doses to keep the TSH 'in range' that's not right but they don't know it

    Hair loss is one of the most common queries as is weight gain. Both clinical symptoms.

  • I've had an uat for 6 years and the hairloss has only started the beginning of this year! I don't get it. Yes they increased me to 125 levo but my tsh was creeping back up so I think I may have to have another increase. How common is alopecia? How did u have it diagnosed? Did it get better and grow again? Sorry for all the questions in just really worried x

  • I have been completely bald for 3 summers past. Hair slowly grew back and then dropped again. I did find on the 4th year that Nizarol Shampoo helped a lot. I didn't lose it all but had patches.

    This year (by now I know all the warning signs) I began turmeric capsules (good for all autoimmune conditions I read). When my scalp began it's usual sensations (and if I pulled a few strands of hair and they came out I took an anti-histamine tablet and used Nizarol. This summer I've kept my hair although it is thinner and I didn't need to wear a wig.

    We don't know why we get autoimmune conditions it's our own body that does it.

  • When u say sensations what do you mean? I get a weird thing in my scalp like the feeling you have when your hairs been up in a ponytail all day and j take it down? If you know what I mean. Sensitive kind of feeling weird to touch. Is that the kind of sensation?

  • Sometimes my scalp feels tender. Sometimes it feels irritated, Sometimes it stings. So it varies. Get your GP to give his opinion. Mine told me right away. Usually, I think bald spots appear too if its alopecia. I hope yours is just thinning hair which should be fine when you are on an optimum of thyroid hormones.

  • I ask because I get that feeling. Where it feels tender or kinda weird like your hairs tied up. I actually think it may be that because I know people say they lose hair but I actually lose a lot. I've actually counted hairs that fall out in a day and I've lost almost 400 in one day. On average I lose about 300. I also have a round spot at the front which makes me think alopecia as its a round spot about the size of a 50p that has hardly any hair at first I thought my hairline was receiving. Now I have a small circle of my eyebrow that has gone?

  • Sounds like it is alopecia. I hope not.

  • :( I thought so too. I really hope not .. Don't think I could take that as well as everything else. Can I ask how I got diagnosed? Did the doc do anything first or did they refer u to a dermatologist?

  • I asked to be referred to a Dermatologist but I went private. I got steroid injections into my scalp. It helped but hair still fell out.

    I believe 'whatever' attacks the bulb of the root of our hair and it dies as it is seen as an enemy (I suppose like the attack on our thyroid gland). The hair then falls out. It takes time for the 'bulb' to restore and then new hair should begin to come through again.

  • I've read a lot but what u just said made so much sense lol! Thank you. I have hashimoto another auto disease so I'm guessing I may have it too. Do you know how common it is for hashi patients to develop alopecia? Is it a lot? I honestly can't believe it's happening I don't know how you coped. I feel I am going into a deep depression about it. Your a brave one!!! I hope I can be brave one day too. I think if I ask to be refered they will just say it's pregnancy for me

  • I just didn't let it bother me. One reason is that a very good friend, who'd been complaining for a few years about 'female problems' and had an op privately but it still continued.

    A couple of years later she was diagnosed with a type of cancer and within 9 weeks she was diagnosed, got married, died and was buried. What an utter shock to everyone especially her family.

  • Omg that's such a shame.

  • Hello hun I'm not sure what's what with either I have a b12 number of 173 doc refused jabs so I'm on jarrows 5000mcg 11 days in but my hair on my head comes out really easily if I take out my hair band its covered in hair I moult worse than my cats! I know pregnancy can wreck havoc with hormones hun could be that congrats on pregnancy. Did you get levo increased once pregnant are they monitoring you well I only ask due too my experience of docs and midwife earlier this year which wasn't great noone knew a thing.

    Hopefully things settle soon good luck x

  • Yes I made sure I was monitored every 4 weeks for my thyroid. I know pregnancy could coz things like that but I've had this since the start of the year so waaaaay before I conceived. My hair comes out in actual clumps. I'm starting to have bald patches now my eyebrows and lashes are starting too it's getting beyond a joke. I just need to get it fixed

  • Heart breaking hun sorry your going through this I'd go back too docs nit sure what they can do but hopefully there is something

  • Me too

  • This is an excerpt which may be helpful in it's explanation:

    Hair loss and Thyroid disease

    Severe and prolonged hypothyroidism and hyperthyroidism can cause loss of hair. The loss is diffuse and involves the entire scalp rather than discrete areas. The hair appears uniformly sparse. Regrowth is usual with successful treatment of the thyroid disorder, though it will take several months and may be incomplete. It is unusual for mild (e.g. subclinical) hypothyroidism or hyperthyroidism, or short-lived thyroid problems to cause hair loss.

    Some forms of hypothyroidism and hyperthyroidism come on abruptly and are diagnosed early, while others may have been present for months or years before diagnosis. Hair loss due to thyroid disease becomes apparent several months after the onset of thyroid disease. This is due to the long hair cycle. In such cases, paradoxically the hair loss may follow the treatment for the thyroid and the thyroid medication may be erroneously blamed, leading to withdrawal of treatment, which in turn may worsen the hair loss.

    I also think low B12 may be problematic too so with your thyroid hormones plus B12, I hope your hair returns quickly.

  • Thank you shaws if I get my b12 sorted I'm hoping it comes back. My thyroid levels are suppose to be treated so I just don't understand why it's still happening!

  • Get a print-out of your blood test results with the ranges and post on a new question and emphasise that you are also pregnant. We are entitled to copies of our blood tests.

  • Yes I usually ask. I just forgot last time but j will ask to get all I can and post it. It will probably be some

    Time next week to get them back

  • MI'm finSx, It sounds like one part of your problem is that it's making you feel very upset. I agree with you that its a horrible situation and one thing after another :( But I've found often fighting it makes it feel so much worse. Working on accepting things and feeling okay about myself even if I'm not how I expected to be has helped me a lot.

    I gained 4 stone over my treatment, and when I first found out I might gain a lot of weight I thought I would be devastated if that happened to me. But in the end I haven't given it too much thought, because it's actually physically being ill that's worse, and the other things I miss out on. In the end even tho I'm mostly housebound Im actually more grateful that I don't have some of the more serious symptoms I read about other people developing, lots of pain, heart conditions, diabetes, getting taken into A& E on the regular.

    I found mindfulness really helped with this. But also I was so determined not to be destroyed by it. Like Shades was saying, I looked at friends in different situations. The one that helped me the most was seeing a friend fall apart with stress over a health scare. It made me realise nothing is worth that, my life is totally different now, but it's not destroyed, just different.

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