Endo appt today

[BeccaBurton]

Hi

I have my first appointment with an endocrinologist after three years on levothyroxine.

I want to know if my tiredness is cfs or due to my Levo not being ideal. I want to know if citalopram is affecting uptake of levo.

What else should I be asking or telling them please.

My apt is at 4pm today.

Thank you

Becca

[Marz]

Did you manage to follow the advice from your thread of a month ago ? The information from Louise ? The results of the B12 - Ferritin - VitD are also important....if any of these are low you will feel unwell. Have you increased your dose ?

What are you hoping your Endo will do you ? It is important to have some clear ideas of your aims so you can guide the conversation in a positive direction.

Hope all goes well today

[BeccaBurton in reply to Marz]

Hi Marz

My vit d tested low and so I've taken supplements and this has made me feel a bit less sore but not less tired and more like me.

Yes agree re clear idea of what I want. I would like to try some other form of levo but not sure if they'll laugh me out of the room! My doc is very clear they don't prescribe anything else on nhs

[Marz in reply to BeccaBurton]

How much do you take of VitD ? What was your result ? You need to dose according to your result . Difficult for people to assist if we do not know your results. It is often advised here that we do not accept OK or Normal from the medical people. Where you are in the range is critical to your wellbeing. GP's don't care as they can then prescribe you lots of pills for lots of conditions when you may just be deficient in thyroid hormones or vitamins and minerals....sad but true.

Your levo will not convert from T4 into the ACTIVE T3 if your Ferritin is Low - along with the Iron - Folate - B12 - VitD. You also need to know if you have anti-bodies and therefore have Hashimotos.

Do you have any gut issues ? I only ask as I believe serotonin is made in the gut....

[BeccaBurton in reply to Marz]

Ok point taken. If the endo has access to my results I will ask for them, if not I'll phone surgery.

I've had ibs. Recently though I cut out wheat (to help with suspected Fibro and have had next to no issues with my gut.

I take 2 x 10 squiggly sign tablets a day

[Marz in reply to BeccaBurton]

Sounds positive to cut out the wheat. Not sure what squiggly tablets are

[BeccaBurton in reply to Marz]

He he vit d

Yeah what a huge difference cutting wheat grain and a lot of sugar too. Lost a stone since Chrystmas though plateaud at the moment!!

[BeccaBurton in reply to Marz]

Ferritin and b12 ok

[Marz in reply to BeccaBurton]

When you say OK - what were the results ? B12 needs to be more than 500 and the Ferritin around 80/90.... Do you supplement ?

[BeccaBurton in reply to Marz]

I got off the phone and realised I difny have the numbers. She said take an over counter iron supplement which I did but that upset my stomach and I've not been back since.

[Marz in reply to BeccaBurton]

There are products called Gentle Iron - also VitC needed to help absorption....think the Gentle Iron is made by Solgar....

[BeccaBurton in reply to Marz]

Oh I'll look into that, thank you. I take effervescent vit c at least twice a day.

[BeccaBurton]

Hmm I've been on citalopram for 17 years due to not making seratonin.

[HarryE]

You HAVE to get your actual results, real numbers, not just OK or normal. CFS is a SYMPTOM, not a disease.

[BeccaBurton in reply to HarryE]

Thank you Harry, I will.