Thyroid UK
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Survival Guide all NHS patients must read

Dr Phil Hammond writes in the Daily Mail (as posted on the NHS England forum)

just one of the points..."Take your medical records with you"

"Carrying a printed copy of your medical records with all the key information - current problems, medical history, investigations, drugs, allergies and copies of letters - can make a huge difference."

it's easier said than done to convince the receptionist we are entitled to our records.... roll on on-line access.... J :D

6 Replies

Roll on, please.

Has anyone actually received access to their records since 31st March this year?

Whilst I gained access to the EMIS system, I actually cannot do anything except order repeat prescriptions, and book one appointment, at 09:10 on Wednesday morning, with one doctor, at the wrong surgery (ours operates two sites and I am not supposed to be able to go to the other one).

Edit: Add link:

Since April 2015 all GPs should offer their patients online access to their GP records.


At the beginning of the year, the ability to book appointments had been removed from my surgery's EMIS system. I got an appointment with a Nurse Specialist (no GPs available, at one of the largest surgeries in the UK) who sent me along to my GP, who saw me at the end of that morning's session and sent me to hospital.

I enquired last week about a test the hospital had arranged: GP couldn't find the results.

Earlier, my GP (or whoever) hadn't uploaded my most recent TSH test result, before taking an extended break over Easter. It's still not available. I had a telephone consultation with another GP, who said the test result must be on the hospital system, told me what it was, and asked my interpretation :-) I got agreement to increase my dose of levothyroxine using tablets I had left over, due to feeling cold with extra clothing at a room temperature of 25C (etc., etc.!).

My GP had mentioned an increase of an anti-hypertensive but when I put in an online request it was rejected. My hypertension has been inadequately treated since first diagnosed, over a year ago. When collecting drugs last week, the ones from the rejected request were with them, and could've been used for the past five weeks. GP suggested another drug, which is really box-ticking before my appointment with a specialist, and is a worse culprit for causing problems than an alternative, which led to me having leg ulcers needing dressing for three months.

I seem to have been responsible, in part, for my hypothyroid diagnosis. Now there's the tantalising (and potentially life-saving) prospect of showing the hypertension is not "essential", and curing it with T3 or NDT.

Lack of information, appointments, drugs, hospital beds and "cooking the books" by staff are all hurdles...


I posted this 4 days ago and did not have one reply :-(

Thank you for posting again....

1 like

sorry Marz missed your post!

Rod - I have same EMIS access since diagnosed, just to request repeat prescriptions and make appointments.

1 like

Hi all, I can only book appointments and request repeat prescriptions on line ( only a few appointment times are ever available, none are early morning slots). If I need levo, I still have to make appointment to see doc. I seem to be spending my time either in various waiting rooms or stuck on the phone trying to get a suitable appointment time. (It often takes 15 minutes, sometimes longer.)


I must be fortunate as my GP and her receptionist always give me a print out of my bloods - I just pop in and ask and it is done there and then. It is so useful to have. Hospital bloods - I get my results through text with results, comments and advice from my endo followed up with a letter confirming this and a new blood test form. It means I can keep on top of any dose changes and is done very professionally - excellent service and support... but I know that I am lucky.


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